Shaky and tired

[246810]

Hello lovely people

Can I ask if any one gets very shaky and light headed when they have over done things? Also I have to sit down for awhile too , but I don't sleep just read . If you have fatigue do you sleep or just rest . Thank you for reading

[butterflyEi]

Hello again 246810

Have you had your ECG yet? Do you know if your shaky lightheadedness is more that problem than the PBC. I do get overtired then I cannot sleep but just rest.

☺

[246810 in reply to butterflyEi]

Hello butterfly , this Tuesday I have it fitted for 48 hours . They lost my paper work , so I've had to wait another 2 weeks . Thank you for replying x

[butterflyEi in reply to 246810]

I hope you will feel better after this but please take care of yourself

😊

[4pjx__]

I have times where I can hardly stay awake. That usually happens in the afternoons....then I'll have nights where it is really a challenge to get to sleep or stay asleep.

Pam

[246810 in reply to 4pjx__]

Hello thankyou for replying , hope your having a good day

[4pjx__ in reply to 246810]

Thanks. I feel like I'm on a pretty good stretch of energy this week. 😁

[Aussielouise]

Yes I get that horrible feeling like I’ve suddenly had the plug pulled sometimes too. I get the shakes and get light headed. Sometimes it’s just like I don’t have any energy but stil can’t sleep. Especially if I do something the day before

[246810 in reply to Aussielouise]

That's just how it feels, thank you for replying . I hope you are having a good day . Thank you for replying

[Hidden]

hi i have similar turns i also have had heart scans ecgs heartboxe fitted first one for 48hrs typical only had one turn i was getting either extra beat or miss beat they recommended bisoprodol or live with it i tried 1 tablet i was alwful so i chose to live with it then after about 18mth it got more so i went back referred again had a heart box fitted for 2wks u have a sheet where wen u have a turn u mark down what u were doing i had a cpl of real bad ones the results were same dr asked can u feel it silly? anyway i am back tp living with it but not sure how much more i can take it consumes my life scared to gp out in case scared to go abroad in case which is stupid as i have had it for 4yrs now i hope u get sorted mine is worse with anxiety so u may find u have a few more befor tues hope not also have u done a diabetes check as this can do this as well good luck

[246810 in reply to Hidden]

Hello , thank you for replying, i will be glad when they fit the ECG , on Tuesday , I've been so worried to do too much. I'll let you know .

Thank you again . I hope you are having a good day

[Hidden]

I have the fatigue, where it’s like the plug has been pulled from my energy stores but it’s not a sleepy tiredness, but I do have to rest when it happens and Its always in the afternoon which i understand is what happens with pbc.

I also get hypoglycaemic if I eat late , this is where where I shake, feel unsteady and sweaty, I get this if I don’t eat regular meals, I now have four small meals a day which helps a lot. If I do get an attack I have a quick snack, followed by something more substantial.

I went through the ectopic heart beats, heart monitors and visits to cardiology they are really scary if you get them a lot, and I was scared of doing anything. So much so i was given a scan of the heart and all was okay. I think once you get through your tests you will start to feel better and relax a bit and that will help. I was given propranolol to take but I didn’t like the thought of taking a drug to change my heart rate when there was nothing wrong with the heart so I never took it. I was advised that light exercise like walking was the best thing for me. Which I started doing twice a day and I don’t get them anymore unless I have too much caffeine. Hope all goes well for you keep us updated.

[246810 in reply to Hidden]

Thank you for replying , I am so fortunate I have found all of you. Yes I will let you know , hope your having a good day .

[Hidden in reply to Hidden]

hi hope u don t mind me asking but your post sounds like me i have i have pbc which according to tests /bloods is under control accord to hosp but i have fibromyalgia as well so never really no which is causing me a prob i put it down to fibro but anyway you were saying about your heart beat i havr been to cardiolgy first 4yr ago underwent scans boxes all came back fine except with the extra beats /missed i feel so ill wen this happens and at times have near passed out they offerd bisoprodol i tried one at lowest dose it floored me could nt move i have lived with them for 4yr in total i asked to be referred back they did wore the box for two weeks showrd up exactly the same prob they are awlful u can t plan well i can t scared stiff some days to move i think sometimes u can get to focused on them well i know i do lol hope they carry on getting less or u find a solution good luck xxx

[Hidden in reply to Hidden]

Hello Pattie,

I had a diagnosis of fibro as well, but on my last visit rheumatology decided it was not fibro causing my problems. Of fatigue, palpitations, and wide spread pain. Oddly she decided it was all neurological, and gave me amytriptaline to help with sleep as I wake at 3am most mornings with such a dry sore mouth (sicca syndrome) I’am so against pills I never took them either. She gave me a web site to read about it. nuro.org or something similar a google will find it.

The cardiologist I saw was very thourough with all testing,and I hope I explain this right, he explained that the hearts electrical activity fires thousands of time a minute and what I feel as an extra/missed beat is ‘one ‘out of time with the other thousands so has no clinical relevance for me, and are what is called ectopic beats. I do get a run of them like a flutter that’s scary so they gave me propranolol then I tried bisoplorol but I couldn’t take it either, it knocked me out ,he said to lower the dose or take only on the days it felt worse. I have as he put it an optimal perfect blood pressure so I think It lowers it to too much.

I’am a sufferer of panic attacks too, and that makes them worse at times, but most days now I don’t feel them, I think the exercise worked for me but I did check with the consultant first and was told light to moderate exercise walking / swimming. I started with exercise bike and walking above all I lowered my caffeine. ( I drink loads of tea/coffee a day) and I don’t feel them now, where I could feel them in the chest and neck before felt like every other beat they were so bad.

There still there if I take my pulse I can feel about one a minute so doing okay. The pbc seems to to be stable, with a sheerwave scan at the normal/mild range and alp at 170. All other tests normal. Just a rash, when in the sun that bothers me at the moment otherwise doing good and keeping positive, 8 nearly 9 years along the road.

I must recommend the meditation once a day, this helped lower my anxiety about the palpitations I still do it daily in that afternoon slump a lot of us get, gives me something positive to do when I can’t do anything else. Hope some of that long history helps you or others. Take care and if you get worried about the missed beats, keep going back to doctor, I did until I felt reassured.

[Hidden in reply to Hidden]

oh my word u sound like my innerself even to the coffee and anxiety i know there not suposed to be life threatning just wen u get them its a case of trying to control the panic that goes with them oh well hopefully one day it will be sorted im so pleased u are feeling better Amyltriptyline is a fibro tablet as well and works for some people i have nt found anything for my dry mouth sicca i had a lemon spray but was only momentarily but hey ho there a lot worze illness around good luck xxx

[Hidden in reply to Hidden]

Your right about the anxiety they are so scary and one seems to feed the other, that’s why I like the n edit action. I do hope you find something that works for you soon.

I have salivix, pastilles and biotene gel on prescription for dry mouth may be worth a try, I use the gel at night just before going to sleep it helps a bit. Take care and do lots that you enjoy and leave the chores, well that’s my motto.

[Angelann69]

Yes! I do. I'm working myself to death moving. Making sure everything is spotless for the Realtor walkthru. I shake when my pain is bad too. You are not alone

[246810 in reply to Angelann69]

Thank you for replying

[ENuk]

I have exactly the same and describe it as having the plug pulled as well. A complete loss of energy when I have to sit down. I also get shaky and assumed that was hormonal, however I put a lot of symptoms down to hormones before I had PBC investigations!

I sleep badly at nights but am under enormous stress (not related to PBC) so that could be a factor. In the afternoons I have to rest and will sleep.

It's seems to one of my major symptoms, the absolute tiredness that I can't go through and have to rest.

Good luck with ECG

[246810 in reply to ENuk]

Thank you for replying , I just feel so scared to do much, which isn't good either . Yesterday was a. Busy ish day , today has been a write off. Thank you again . Hope you are having a good day

[58goose]

Yes, light headed and shakes - I sit down with a drink and a small snack and rest till I feel better so perhaps low blood sugars for me. One of these days it will happen when my daughter is with me and I'll get her to test my blood sugars with her test machine (she is diabetic) but it's not a big problem for me otherwise. When I'm 'tired' I just rest, read or just zone out for a while - I try to pace myself with busy and rest days. Hope you feel much better soon.

[246810 in reply to 58goose]

Thank you for replying , yes I'm starting to learn to pace myself . Hope your having a good day