I don’t want to panic anyone but yesterday when applying for travel insurance I Googled PBC and came across the following on Medicinenet.com in answer to how long one might expect to live with PBC. (This wasn’t a question on the form but the cruise travel specialists we were attempting to get a quote from didn’t recognise/list this disease so I was attempting to see if there was another name it might be known by -fyi, there wasn’t!):
“Advances in treatment have extended the life expectancy in the past many years. The average survival expectancy after diagnosis for a patient with PBC who is asymptomatic is 16 years while that of a patient with symptoms is 7.5 years”
Now I don’t know when this was written but, having been diagnosed in 2008 (& being currently asymptomatic) this suggests I have 6 years left but, should I suddenly develop symptoms my time might be up!!
However, I could have had PBC for years before I was diagnosed, so I might already be dead according to this article....
The point I’m trying to make (apart from keeping away from Google) is, what is this article based on?
Is there actually any data to support it that I’ve been living in ignorance of or is it just another ill-informed opinion about PBC?