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PBC Foundation

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All posts for April 2018

OCA Press Release 4/13/18

A fellow PBCer on another site shared this with me today. Seems so far, OCA is doing very well. If you’re interested in reading it go to this site:...

A fellow PBCer on another site shared this with me today. Seems so far, OCA is d...

gwillistexas

•6 years ago

16 Replies

Charlie horses

Does anybody get severe leg cramps (charlie horses) l dont have slight scaring

kingsnorth

•6 years ago

11 Replies

Bladder

Does anyone feel like they are getting a bladder infection But your not.

My-life

•6 years ago

7 Replies

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Confused

New but not to pbc had it since 1979 on no medication have blood test every 6 months or 12 months then just get told either up or down fine come back. All I no...

New but not to pbc had it since 1979 on no medication have blood test every 6 mo...

Ruthyloo

•6 years ago

7 Replies

Lab Results

Just wanted to share lab results. TBIL 0.40 (0.20–1.30) DBIL 0.30 (0.00–1.10) ALP 132 (38-126) same as January AST 30 (14-36) ALT 26 (9-52) ALB 4.3 3.5-5.0)...

Just wanted to share lab results. TBIL 0.40 (0.20–1.30) DBIL 0.30 (0.00–1.10) A...

gwillistexas

•6 years ago

26 Replies

Bone/muscle pain

Some days it feels like bones are just breaking from normal activities.... of course they are not but some days are good with no pain and then other days it’s...

Some days it feels like bones are just breaking from normal activities.... of co...

Pamela4475

•6 years ago

29 Replies

I found this study interesting. Possible genetic virus/PBC

https://globalnews.ca/news/1840509/liver-disease-breakthrough-at-university/

Maur22

•6 years ago

33 Replies

Reporting in.

Hello. I thought I’d post results of my appointment with specialist. Blood tests. ALP- 245, bilirubin - 16. AST & ALt both marginally elevated. Fibroscan is...

Hello. I thought I’d post results of my appointment with specialist. Blood test...

Jeanb47

•6 years ago

4 Replies

Food

Garlic powder and onions are ok for pbc.... right?

Pamela4475

•6 years ago

8 Replies

LFT - ALP is up total bilirubin is down

In my recent blood test, my ALP tripled but my total bilirubin went from 1.0 to .9. I also recently did an MRI where the doctor said there was no further...

In my recent blood test, my ALP tripled but my total bilirubin went from 1.0 to ...

danaLL

•6 years ago

17 Replies

Newly diagnosed

4 months ago I had blood tests for tiredness and it highlighted poor liver function, more blood tests and then a scan which showed multiple and large...

4 months ago I had blood tests for tiredness and it highlighted poor liver funct...

ENuk

•6 years ago

1 Reply

Interesting Read.....I'm going to give Raw eating a try. What can it hurt?

Below is an article I found by googling "PBC and eating Raw." Also... I am not advocating anyone going off their medication. Anything anyone tries should first...

Below is an article I found by googling "PBC and eating Raw." Also... I am not a...

Ktltel

•6 years ago

20 Replies

My New journey, living with PBC

3/19/2018 I was told I have PBC. I began taking Ursodiol on 3/20 to begin this new journey of life with PBC. I must say I am a bit scared but hopeful and glad...

3/19/2018 I was told I have PBC. I began taking Ursodiol on 3/20 to begin this n...

PBCforJPM

•6 years ago

4 Replies

Urso and other medication

Morning I've been given folic acid to take as I'm low, but also have hydroxychloroquine pills to start, I'm having a eye test before I take hydroxy But I've...

Morning I've been given folic acid to take as I'm low, but also have hydroxychl...

Pinkcrush

•6 years ago

4 Replies

Confused about pbc and cirrhosis

I am confused. I am in stage 2 of pbc. What is the difference between stage 2 of cihorris and stage 2 of pbc. If i do get to stage 4 of pbc is that when u...

I am confused. I am in stage 2 of pbc. What is the difference between stage 2 o...

KevinHall10_

•6 years ago

44 Replies

Hepatologist

I was diagnosed with fatty liver then PBC after a biopsy in 2013. I been on urso ever since & been getting ultrasounds every 6 months along with blood work. My...

I was diagnosed with fatty liver then PBC after a biopsy in 2013. I been on urso...

Yankeerose3

•6 years ago

19 Replies

Pbc/Aih

Hi everybody. Hope everyone doing well. Does anybody struggle with legs and feet walking especially first thing in a morning or if been sat for a while.

Hi everybody. Hope everyone doing well. Does anybody struggle with legs and feet...

janine541

•6 years ago

13 Replies

New Here!

Hi, I am in the know about PBC because I have had it for 10 years. I would like to meet some of you and gain some friends who are going through the same...

Hi, I am in the know about PBC because I have had it for 10 years. I would like ...

Figgy-Zen

•6 years ago

14 Replies

Need to know about test results

Hi everyone I have had BPC for about 5 years now, on Urso but I don't know what a I should be asking about my blood results and levels should be. I did not...

Hi everyone I have had BPC for about 5 years now, on Urso but I don't know what ...

Jan1111

•6 years ago

6 Replies

Vitiams

Has anyone taken omega q plus?

KevinHall10_

•6 years ago

3 Replies

waitibg

hope all r well..i was diagnosed a yr ago with pbc..because of some doubts with the dr i had i took myself to a liver clinic...they took a blood sample and...

hope all r well..i was diagnosed a yr ago with pbc..because of some doubts with ...

Hidden

•6 years ago

8 Replies

Diagnosis

I was diagnosed with very early stage PBC from a hepatologist. I had slightly elevated LFt's AMA M2 was 1:640. All other tests were normal. Fibroscan was...

I was diagnosed with very early stage PBC from a hepatologist. I had slightly e...

Ellyne

•6 years ago

19 Replies

Anyone here live near Langley Mill Nottingham?

Hi it’s me again,still a bit worried but trying my best to live normally while waiting for my repeat test in 6 weeks time.Hope there’s somebody here who live...

Hi it’s me again,still a bit worried but trying my best to live normally while w...

Mariandy

•6 years ago

5 Replies

Fasting

Has anyone tried fasting? There is new evidence that suggests intermittent fasting works to kill bad cells and stimulates new cells. It has been shown to...

Has anyone tried fasting? There is new evidence that suggests intermittent fast...

JWJD

•6 years ago

41 Replies

Confused

Hello , I was diagnosed in October 17 I'm taking ursodeoxcholic acid I'm feeling sopoorly. Since November I had about 8 weeks of labrtynitious Then...

Hello , I was diagnosed in October 17 I'm taking ursodeoxcholic acid I'm feelin...

246810

•6 years ago

12 Replies

PBC Foundation App

So, I am writing to you on the subject of the app, once again. I hope you have already joined the PBC Foundation (for free) and have downloaded the app. If...

So, I am writing to you on the subject of the app, once again. I hope you have ...

PBCRobert

Partner•6 years ago

30 Replies

Pineal gland

Having seen a 2nd gastroenterologist re having a fibroscan she sent me for MRI with contrast due to symptoms of nausea fatigue and headache . The result of...

Having seen a 2nd gastroenterologist re having a fibroscan she sent me for MRI w...

Joel31

•6 years ago

10 Replies

Weight loss

Does anybody have weight loss with URSO. Ive lost weight since taking URSO 2 months ago and really cant afford to. A lot of people have put weight on im losing...

Does anybody have weight loss with URSO. Ive lost weight since taking URSO 2 mon...

kingsnorth

•6 years ago

18 Replies

Alpha gal, Urso, and high cholesterol and blood sugar.

I have a severe allergy to mammal products called Alpha Gal. Last year I found out I also have PBC right before I found out I had Lyme disease. My symptoms...

I have a severe allergy to mammal products called Alpha Gal. Last year I found o...

Beejoyful

•6 years ago

32 Replies

Transjugular liver biopsy

Has anyone had a transjugular liver biopsy? I am scheduled for one next week and am very nervous about it

Has anyone had a transjugular liver biopsy? I am scheduled for one next week and...

happy0507

•6 years ago

3 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for April 2018

OCA Press Release 4/13/18

Charlie horses

Bladder

Confused

Lab Results

Bone/muscle pain

I found this study interesting. Possible genetic virus/PBC

Reporting in.

Food

LFT - ALP is up total bilirubin is down

Newly diagnosed

Interesting Read.....I'm going to give Raw eating a try. What can it hurt?

My New journey, living with PBC

Urso and other medication

Confused about pbc and cirrhosis

Hepatologist

Pbc/Aih

New Here!

Need to know about test results

Vitiams

waitibg

Diagnosis

Anyone here live near Langley Mill Nottingham?

Fasting

Confused

PBC Foundation App

Pineal gland

Weight loss

Alpha gal, Urso, and high cholesterol and blood sugar.

Transjugular liver biopsy

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