Pbc/Aih

[janine541]

Hi everybody. Hope everyone doing well. Does anybody struggle with legs and feet walking especially first thing in a morning or if been sat for a while.

[Ktltel]

Absolutely. You didn't mention what sort problems you're having. Stiffness? Weakness? Pins and needles?

I have RA along with PBC so, I'm the stiff Tin Man if I've been sitting for 5 minutes. I mean, Ouchie!

[janine541 in reply to Ktltel]

Yes i struggle to get going when ive sat down. The pain in my feet and legs is awful

[Aussielouise in reply to janine541]

Me too! Rhumatologist sent me to see a neurologist to check for neuropathy but tests came back negative. Got so bad two weeks ago I was struggling to walk so went and saw locum GP who thought it was all part of my autoimmune immune problems I also have sjorgins. I’m 56 but if I bend down I have real trouble getting up!

[janine541 in reply to Aussielouise]

Yes im the same. 46 and its awful

[1Rockinsis in reply to janine541]

Mine too (feet and especially legs) It keeps me from doing so many things I wanted and want to do. Sometimes it feels like a prison wondering if there is going to be a place and rest for a while.I pray often but then it gets to the point that this is what God has for me for the present time. He has saved my life several times in the past. I hope you get to feel better.

[Yankeerose3]

What actually do you mean. Sometimes my legs feel so heavy makes me wonder how I am able to walk

[janine541 in reply to Yankeerose3]

Hi mine are very painfull

[Yankeerose3 in reply to Yankeerose3]

My legs feel very heavy at times too

[Yankeerose3 in reply to Yankeerose3]

Mine too

[My-life]

My legs at night. Start wanting to move.keeps me up. Darn legs. Love you all.

[Memom]

I also have sever muscle tightening of the thighs in the morning, or after sitting a long time. I dread going to the movies or the theater.

[Hidden]

I also have PBC/AIH and been referred to rheumatologist recently due to bloods indicating RA. I struggle getting out of bed,stiff. I also get a lot of pain in hands,west’s and feet. With muscular pain in thighs . You you get some relief soon x

[Yankeerose3]

I also, have the same problem