PBC Foundation
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Hepatologist

I was diagnosed with fatty liver then PBC after a biopsy in 2013. I been on urso ever since & been getting ultrasounds every 6 months along with blood work. My blood work has been normal but ultrasounds since shows cirrhosis, PBC & fatty liver. My GI DR never told me I have cirrhosis and claimed liver don't cause pain but just seen a hepatologist who says it does and will be getting my first fibroscan. Looking forward to knowing just how bad it is. Anything I should ask?

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Does the hepatologist have all your ultrasounds? Maybe you want him to take you through at least the most recent one & ask him to discuss your fibroscan results in context of the ultrasound to get a better understanding. Also if there is anything else you or your medical team should be doing to manage the condition to keep it from progressing. You might also want to transition to seeing the hepatologist going forward if you feel he/she better fulfills your care requirements vs the GI. Just some thoughts.

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Thanks. I requested a copy of my biopsy, all the ultrasounds & records that my GI DR has then gave it to him.

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I don't see where I commented, I go back for results of fibroscan on June 4th.. He must not to very worried because test was entered into my chart and he didn't call me

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Wow...that is a long time to wait. I would be frustrated regardless. Does my chart have the score? So at least you know.

I am type A personality...I hate waiting for results.

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Prayers for you. Still trying to understand the diagnosis myself. Neex lots of i fo

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Prayers to you hun. Still trying to understand the diagnosis myself. Need lots of i formation. Trying to put this puzel together.

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Thanks... prayers to you too

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Glad to see your hepatologist is ordering fibroscan. It will measure a broader area of your liver for stiffness. My GI prefers it over biopsy. When is your fibroscan scheduled?

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April 21st

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Let us hear.

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Ok. Thanks

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Now I received a call from my PCP asking me to call her and another few hours later from an cardiology office but I didn't get the messages until I got home from work... After they closed. So stressful!!

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Funny my GI prefers the biopsy over the fiberscan I've had both done

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All of your blood work has always been normal? I’ve asked my GI doc to test me for AMA and he won’t because he says my liver tests are all normal. However I have positive ANA with centromere pattern, my joints aches for no reason, my rheumy says I am cleared of all autoimmune on her end. I’m beyond frustrated. Should I push for this?

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You should do whatever makes you comfortable. Maybe go to another doctor for a second opinion.

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Hey everyone.... Got the results of my fibroscan... Stage 3 cirrhosis, Nash fatty liver & PBC

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