I need a medication break: Its been a year... - PBC Foundation

PBC Foundation

9,484 members8,376 posts

I need a medication break

4 Replies

Its been a year and a day since I got the news my enzymes are elevated.

A few weeks later medication started.

I’m being careful for what I wish for.

I’m realizing that my wishes are granted. However not with the outcome I want.

I just need a break with the steroids and AZA.

Just a week.

I know the outcome will not be what I want.

I just need a medication break

Read more about...
4 Replies
Ktltel profile image
Ktltel

I can't say I totally get it. I'm on 2 drugs that make me just a little nauseous and dizzy, and not all the time. Steroids and Aza is something else altogether. You don't want to lose any ground by going off of them, and steroids need to be tapered off of.

Your numbers looked so good the last time you shared. How are you feeling?

Stella ❤

in reply toKtltel

Stella I love you like a sister. Your advice is always caring and thoughtful. You would make a great therapist. There was so many times I believed that I was sinking and you pulled me out.

Ktltel profile image
Ktltel in reply to

Awe Jenny your too kind❤. We all listen to each other. I just know that going off meds isn't a good idea. I wish I had your numbers! You mentioned your Doc is trying to turn your hep around. He believes it's possible. I wish that was the case for PBC too.

Keep going. Your numbers are going in the right direction. And, I'm no therapist by any stretch of the imagination lol. But, I am here if you ever need to talk. I can't promise I won't bring the Bible into it though. Lol 👍

Stella ❤

in reply toKtltel

My alt is 10 and ast is 12 and alk is 63. I eat very little during the day and drown myself with drinking water. Them at night I wake up a few times and raid the food pantry. The manufacturer for my prednisone was changed. It’s a different pill and I don’t like it all. My previous steroid had fillers of some kind. I’m down to 10 mgs. Even with my numbers where the dr wants to see them at he’s keeping me at 10 until August.

Not what you're looking for?

You may also like...

Anxiety medication and PBC

Hi, just want to preface this post by saying I’m seeing my doctor at the end of the week but I’m...
ginabean profile image

I need a reminder...

Hi PBC family, I Hope everyone is doing as well as can be expected. And for those of you...
Ktltel profile image

Need a ray of hope

Hello all. How many of you have had PBC for 15-20 years and are doing okay? I’m very new to this...
Irisw profile image

A lot of medication

Hi Iam on what seems to be a lot of medication for my pbc, iam sure it's making me feel worse iam...
Starcat profile image

I really need some advice

A year ago I was referred to gastroenterologist by my rhematologist as he suspected I could have...
bullett profile image

Moderation team

See all
PBCCheryll profile image
PBCCheryllAdministrator
janethomas profile image
janethomasModerator
Cupcake1971_ profile image
Cupcake1971_Moderator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.