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PBC Foundation

9,391 members • 8,002 posts

All posts for November 2017

Swollen glands on one side

I have painfull swollen glands in my neck on one side, it's really painfull to swallow, but I dont have a sore throat, it kept me awake all night. My docs are...

I have painfull swollen glands in my neck on one side, it's really painfull to s...

SharonM69

•6 years ago

7 Replies

Feeling irritated!!!

Hi all. I went to see my rheumatologist recently due to raised ANA's on a routine blood test. Also raised M2. She feels it's nothing from a rheumatology point...

Hi all. I went to see my rheumatologist recently due to raised ANA's on a routin...

Flower-powr

•6 years ago

22 Replies

T-Cells

I re-posted this link in my previous thread but wasn't sure if you get notifications or not. Anyway, I know this is complex and not PBC specific however it...

I re-posted this link in my previous thread but wasn't sure if you get notificat...

donna01

•6 years ago

1 Reply

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Newly diagnosed with preclinical PBC

Just got a call yesterday from my gastroenterologist telling I have preclinical PBC and he set me up with an appointment to discuss treatment. I have a high...

Just got a call yesterday from my gastroenterologist telling I have preclinical ...

labootz16

•6 years ago

53 Replies

Diarrhea

Does anyone else with PBC suffer from prolonged bouts of Diarrhea? I can have severe bouts of this for 3 or 4 months at a time and then it can disappear for a...

Does anyone else with PBC suffer from prolonged bouts of Diarrhea? I can have se...

AmandaSlater

•6 years ago

28 Replies

So fed up of feeling ill

Hi there, I had hepatitis about 20 years ago, was itchy and felt like flu whole time. By the time it was picked up it had cleared and I have been clear of the...

Hi there, I had hepatitis about 20 years ago, was itchy and felt like flu whole...

S1cknt1rd

•6 years ago

16 Replies

AIH/PBC over lap sindrome

Just went to see the hepatoligist and said I have AIH and PBC overlap síndrome. And she prescribe me prednisone and azathioprina. I am scared of the side...

Just went to see the hepatoligist and said I have AIH and PBC overlap síndrome. ...

YADILURO

•6 years ago

4 Replies

Is my reasoning faulty?

Elevated liver function tests led to a diagnosis of PBC in October 2016. (Positive AMA and liver biopsy, moderate to severe cirrhosis stage 4). Is my thinking...

Elevated liver function tests led to a diagnosis of PBC in October 2016. (Positi...

ILik3Pizza

•6 years ago

11 Replies

Akaline phosfates almost normal

I'm soooo happy. Just for today my alt is 117. And the rest are within normal range Most of you know I was diagnosed stage one 22 years ago by accident when...

I'm soooo happy. Just for today my alt is 117. And the rest are within normal ra...

Bonnieanne54

•6 years ago

20 Replies

Support

Hi does anybody know about I'll Heath tier 3 as I could be heading that way

Victorwhite1968

•6 years ago

2 Replies

To build or not to build

I am really confused (again) should I be improving my immune system as I thought that part of the PBC problem was immune system being too active and attacking...

I am really confused (again) should I be improving my immune system as I thought...

Biddyb

•6 years ago

10 Replies

Urso-responsive cholestasis?

Hello! I've been poked and prodded for 6 years. Long story short, I've had every test available (in two different cities) and my GI Dr. told me that because I...

Hello! I've been poked and prodded for 6 years. Long story short, I've had every...

emilyellafaye

•6 years ago

3 Replies

New member newly diagnosed

Hi. 59 year old man in Seattle. Just diagnosed as stage 3 and taking Urso and Cholestyramine currently. Waiting on bone density test and referral to...

Hi. 59 year old man in Seattle. Just diagnosed as stage 3 and taking Urso and Ch...

JGM59

•6 years ago

14 Replies

Aches and pains

Ok PBC ers, one of the main problems that have cropped up in the last few posts are muscle and bone aches and pains lots of ideas as to what could be the cause...

Ok PBC ers, one of the main problems that have cropped up in the last few posts ...

Biddyb

•6 years ago

1 Reply

Muscle pain

Hi I was diagnosed with pbc in September,after second opinion am back on waiting list for biopsy re aih or fatty liver , just wonder if anyone else suffers...

Hi I was diagnosed with pbc in September,after second opinion am back on waiting...

Louisethew

•7 years ago

15 Replies

Pbc/AIH

Just been diagnosed with aih/pbc overlap I've had pbc for 5 years Does anybody know the mean life expectancy for prednisone unresponsive aih treatment combined...

Just been diagnosed with aih/pbc overlap I've had pbc for 5 years Does anybody k...

terri2109

•7 years ago

13 Replies

Urso is working

Hi. Its been a while since i have posted. I recently had my labs drawn and my ultasound labs are back to normal and ultasound is pretty normal with subtle...

Hi. Its been a while since i have posted. I recently had my labs drawn and my ul...

Bakerc

•7 years ago

2 Replies

Ppi and urso

Hi all I am sure it has been asked before but ny acid indigestion has got worse. I have had pbc for about 5 years and take 1000 mg ursofalk capsules daily....

Hi all I am sure it has been asked before but ny acid indigestion has got worse...

mel16

•7 years ago

13 Replies

Too many URSO?

Not sure if I have taken my URSO twice is this dangerous. I may have taken them with and after a meal.

Not sure if I have taken my URSO twice is this dangerous. I may have taken them ...

Gillian61

•7 years ago

15 Replies

Antibiotics and PBC

When I had an endoscopy in order to check for varices, a large erosion /ulcer was found. Told I have helicobacter pylori bacteria and will need two antibiotic...

When I had an endoscopy in order to check for varices, a large erosion /ulcer wa...

Madannabel

•7 years ago

9 Replies

Bone density scan

Just had my results back from my scan , results show my bone density is slightly diminished which is called osteopenia , anybody else been diagnosed with this ?

Just had my results back from my scan , results show my bone density is slightly...

Steelie

•7 years ago

31 Replies

New Member

65 years old. I was diagnosed early stage (synthomless) in 2003. I am taking Urso 500. 3 pills a day wich I find a walmart drugstore ($114 for 90 pills) with a...

65 years old. I was diagnosed early stage (synthomless) in 2003. I am taking Urs...

hopereyes

•7 years ago

7 Replies

Question About Pain

Okay so does anyone else experience pain in the lower right quadrant and pain in the right arm? Also the itching is so bad cannot sleep, feeling miserable...

Okay so does anyone else experience pain in the lower right quadrant and pain in...

lorilee58

•7 years ago

2 Replies

Pregnant and looking for a friend

37 years old and I'm 23 weeks preggo and have new onset prurititus that is making my life hell. It starts at night and hits my hands and feet hard but also...

37 years old and I'm 23 weeks preggo and have new onset prurititus that is makin...

Grace8888

•7 years ago

10 Replies

At the Mayo again

It sure is much better to be in our new RV then a hotel. First blood at 6:30 am. Now waiting for my 10:30 apt. If all goes well I get the lower my prednisone...

It sure is much better to be in our new RV then a hotel. First blood at 6:30 am...

Hidden

•7 years ago

14 Replies

Equivocal Result on PBC

Hi, I had bloodwork done on 9/27 and my ALT and AST were slightly elevated, ALT 71 and AST 46. Did bloodwork again on 10/12 and ALT was 118 and AST was 71. My...

Hi, I had bloodwork done on 9/27 and my ALT and AST were slightly elevated, ALT ...

rudi7834

•7 years ago

16 Replies

Hair Loss with Urso

I have been on Urso for 9 months and I am non responsive. I am on the highest dose available and have bad side effects such as my hair falling out. Has...

I have been on Urso for 9 months and I am non responsive. I am on the highest d...

happy0507

•7 years ago

16 Replies

Alk phos level and ezetimibe

I have just been told that at 285 my alk phos is too high and I should start another drug called ezetimibe on top of the urso. I have to stop breastfeeding my...

I have just been told that at 285 my alk phos is too high and I should start ano...

rubyrose15415

•7 years ago

1 Reply

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for November 2017

Swollen glands on one side

Feeling irritated!!!

T-Cells

Newly diagnosed with preclinical PBC

Diarrhea

So fed up of feeling ill

AIH/PBC over lap sindrome

Is my reasoning faulty?

Akaline phosfates almost normal

Support

To build or not to build

Urso-responsive cholestasis?

New member newly diagnosed

Aches and pains

Muscle pain

Pbc/AIH

Urso is working

Ppi and urso

Too many URSO?

Antibiotics and PBC

Bone density scan

New Member

Question About Pain

Pregnant and looking for a friend

At the Mayo again

Equivocal Result on PBC

Hair Loss with Urso

Alk phos level and ezetimibe

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