At the Mayo again

It sure is much better to be in our new RV then a hotel.

First blood at 6:30 am. Now waiting for my 10:30 apt. If all goes well I get the lower my prednisone

For some reason I’m having pain with n my liver area as well as pancreas

[IAmTheGlue]

I hope that your appointment goes well! Good luck!

[4pjx__]

Good luck Jenny! I hope everthing goes perfect!

[YADILURO]

GOOD LUCK

[Hidden]

All blood work is fine. My igg is low. The dr said that it’s probably my normal. I have no inflammation and I have no liver scarring. He’s going to order a fibroscan next year. From there he will decide if he wants me to have another biopsy. But he’s very pleased. He said that if I can’t deal with the weight that I gained and my poofy face that he would take me off the prednisone. I decided that I would rather have health and raise my 10 year old. I haven’t gained weight in over a month but I will remain on 10 mgs of prednisone and 50 mgs of AZA and 1000 mgs of urso. My husband agreed that we should care more about my health. I can change the prednisone at anytime in the future. I have autoimmune hepatitis and I have pbc. It’s so far only in my blood thanks to fast acting doctors and a member who advised me to see a liver dr and not a GI.

[Sachin1234 in reply to Hidden]

How do we know when pancreas is hurting ?

[Ktltel in reply to Sachin1234]

I get sternum pain that I can feel in my mid back... and nausea. But that can be gastritis too.

[Sachin1234 in reply to Ktltel]

My mid back always hurt and I have nausea in the Morning and in the evening 😔

[Ktltel in reply to Sachin1234]

My Amylase came back normal. My lipase stays too low.??? They don't know. Just keeping an eye on things for now. Really watching what I eat.

[Sachin1234 in reply to Ktltel]

Good 👍🏼

[Hidden in reply to Sachin1234]

I get all kinds of upper quad pain. I really don’t know what’s hurting and why. I have to work harder on my diet.

[gwillistexas in reply to Hidden]

I hear you. I don’t have a lot of pain but when I do I think, what have I done now☹️

[Hidden in reply to Sachin1234]

For me I am assuming that it’s my pancreas because I google the area that’s hurting.

[IAmTheGlue in reply to Hidden]

Fantastic news!

[Ktltel in reply to Hidden]

Yay Girl!!!

❤❤ Keep managing this new normal!! You can do it. So happy to hear good news!

Stella