At the Mayo again: It sure is much better to... - PBC Foundation

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At the Mayo again

14 Replies

It sure is much better to be in our new RV then a hotel.

First blood at 6:30 am. Now waiting for my 10:30 apt. If all goes well I get the lower my prednisone

For some reason I’m having pain with n my liver area as well as pancreas

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14 Replies
IAmTheGlue profile image
IAmTheGlue

I hope that your appointment goes well! Good luck!

4pjx__ profile image
4pjx__

Good luck Jenny! I hope everthing goes perfect!

YADILURO profile image
YADILURO

GOOD LUCK

All blood work is fine. My igg is low. The dr said that it’s probably my normal. I have no inflammation and I have no liver scarring. He’s going to order a fibroscan next year. From there he will decide if he wants me to have another biopsy. But he’s very pleased. He said that if I can’t deal with the weight that I gained and my poofy face that he would take me off the prednisone. I decided that I would rather have health and raise my 10 year old. I haven’t gained weight in over a month but I will remain on 10 mgs of prednisone and 50 mgs of AZA and 1000 mgs of urso. My husband agreed that we should care more about my health. I can change the prednisone at anytime in the future. I have autoimmune hepatitis and I have pbc. It’s so far only in my blood thanks to fast acting doctors and a member who advised me to see a liver dr and not a GI.

Sachin1234 profile image
Sachin1234 in reply to

How do we know when pancreas is hurting ?

Ktltel profile image
Ktltel in reply to Sachin1234

I get sternum pain that I can feel in my mid back... and nausea. But that can be gastritis too.

Sachin1234 profile image
Sachin1234 in reply to Ktltel

My mid back always hurt and I have nausea in the Morning and in the evening 😔

Ktltel profile image
Ktltel in reply to Sachin1234

My Amylase came back normal. My lipase stays too low.??? They don't know. Just keeping an eye on things for now. Really watching what I eat.

Sachin1234 profile image
Sachin1234 in reply to Ktltel

Good 👍🏼

in reply to Sachin1234

I get all kinds of upper quad pain. I really don’t know what’s hurting and why. I have to work harder on my diet.

gwillistexas profile image
gwillistexas in reply to

I hear you. I don’t have a lot of pain but when I do I think, what have I done now☹️

in reply to Sachin1234

For me I am assuming that it’s my pancreas because I google the area that’s hurting.

IAmTheGlue profile image
IAmTheGlue in reply to

Fantastic news!

Ktltel profile image
Ktltel in reply to

Yay Girl!!!

❤❤ Keep managing this new normal!! You can do it. So happy to hear good news!

Stella

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