Bone density scan

[Steelie]

Just had my results back from my scan , results show my bone density is slightly diminished which is called osteopenia , anybody else been diagnosed with this ?

[Karaliz]

Hi Steelie

I have had osteopenia for at least 5 years and it has yet to progress to osteoporosis which is good ( most recent dexa scan 3 weeks ago). I am 52 with widespread cirrhosis and was diagnosed with PBC at 38.

Cheers

Karaliz from Australia

[Hidden]

Take calcium supplements & vitamin D daily. Do weight bearing exercises. This will help with maintaining bone mass.

[Hidden in reply to Hidden]

Don't drink colas or too much coffee; they leak calcium from your bones making it weaker.

[Steelie in reply to Hidden]

Thanks for the advice

[Steelie in reply to Hidden]

I’ve been taking 2 calcium tablets a day for 2yrs and a victim D once a day ever since I was diagnosed with PBC .

[Hidden in reply to Steelie]

That's great. It could have been worse if you didn't do this. Do strength training 2-3 times a week to maintain bone mass. Consult with your doctor for additional suggestions.

[Bonnieanne54]

i am 62 years old, diagnosed wth stage 1 at 40. (still stage 1) i was diagnosed with osteopeni 5 years ago . i was on prescripion strength vitamin d 1 x a week and calcium

last year diagnosed osteoperosis with 40 percent loss in left hip...now 500 units c once a day was added and Boniva once a week

[Sachin1234 in reply to Bonnieanne54]

How did you manage such a long time from stage 1 to stage 1.. can we get some tips..I don’t know what stage my liver is but I feel like crap every day..

Dx pbc 2014

Dx hypothyroid 2015

Dx reactive hypoglycemia 2017

Dx sjogren 2017

[Bonnieanne54 in reply to Sachin1234]

I guess I am lucky. I don't eat foods that cause arthritis like symptoms such as caffeine and night shades. I guess they caught it early and I reacted well to the ursodol

[Sachin1234 in reply to Bonnieanne54]

ursodoil is working very good even with alcohol drinking for me as well...my liver panel is normal except vit b12 which was very high so been told to cut down on that vit...I don’t have diet restriction but recently I’m diagnosed with reactive hypoglycemia so I have to be very careful with carbs now..only problem I’m having right now is fatigue for 45 mins or an hour and whole body heats up like I have a 110 fever after I eat.. we still couldn’t figure out yet why my body heats up 😔 beside that I’m healthy as normal people

[gwillistexas in reply to Sachin1234]

Remind me what stage you are?

[Hidden in reply to Bonnieanne54]

How do they track what stage you are in? Biopsies or bloodwork?

[Karaliz in reply to Hidden]

The stage relates to liver damage rather than PBC specifically.

Only a biopsy can determine a stage.

Karaliz

[gwillistexas in reply to Karaliz]

According to my dr, my liver has zero scarring. My stage 2 (low end), is mild/moderate scarring in duct.

[Bonnieanne54 in reply to Hidden]

my biopsy 22 years ago showed no scarring so based n that and the enzymes I was labeled stage one. The fibroscan I took last year showed no scaring and great elasticity so Im going to go with the enzymes until further notice

[iagra]

I have osteopenia. I do bone density scans every other year. Urso is said impact the bones. Make sure you take enough calcium and Vit D. I check Vit D level once a year during my annual, to make sure it's normal. Vid D is needed for better absorption of calcium.

[Lcagar63]

Hi steelie I was diagnosed with ostapina when I was first diagnosed with pbc last June. I am on calcium and vitamin d tablets. I feel fine

[gwillistexas in reply to Lcagar63]

How much calcium & vit d do you take. Right now I take 1200 calcium w/1000 vit d

[Hidden in reply to gwillistexas]

I take a multivitamin, vitamin D 2,000 IU, Citracal 630 mg includes Vitamin D of 500 IU, & fish oil.

citracal.com/calcium-produc...

[gwillistexas in reply to Hidden]

nycgirl2012, when I had my hysterectomy in 1995, my dr said take 1600 calcium daily. I got off it somewhere along the way. I am taking Citracal 1200/1000 vit d3.

[Hidden in reply to gwillistexas]

I only started the calcium recently. I injured myself running due to over use of knee. So I went for a another bone density test. Had one done a few years ago. Anyway, I lost some bone density so I decided to take calcium in addition to my multi. I shared that with my Hepatologist & he said that I had a perfect plan.

[gwillistexas in reply to Hidden]

I’ve only been taking it again about a month. I asked about Omega 3 & Dr said ok to take. How much do you take?

[Hidden in reply to gwillistexas]

I take Nature Made fish oil 1200 mg, I take 2 with a meal. Pre PBC, I took a multi & the fish oil. Only added vitamin D when Hepatologist tested me for D. He gave me prescription strength D for like 3 weeks to build it up, then the over the counter D daily for maintenance. He told me to go out in sun for 10-15 minutes a day. My dermatologist said to take supplements instead as sun is damaging to our skin.

[gwillistexas in reply to Hidden]

Yes, my dr said grab all the sunshine I can. I will be having d checked soon. Mine was very low several years ago along with b12 being depleted. B12 shots for 3 months & script for d. Both got back where needed to be. I slacked off. I take sublingual b complex that has b12 also.

[Hidden in reply to gwillistexas]

What made the doctor test for. B12?

[gwillistexas in reply to Hidden]

I lost my dad in 2010. After being with him 14 days at the hospital & all day for 2 weeks at hospice, I was run down. So I went for check up. That was one of many things they checked.

[Hidden in reply to gwillistexas]

Sorry about your dad...sounds stressful.Do you get B12 tested on a regular basis now?

[gwillistexas in reply to Hidden]

Thank you. I still miss him so much. Was such a sweety & I’m the only child. No I don’t have it checked regularly. My Internist will check if I ask, especially if I’m feeling tired. But now the good ole PBC does that sometimes. Hard to tell.

[Hidden in reply to gwillistexas]

Losing a loved one just leaves a hole in your heart. Time doesn't heal it; just learned to live with it. Take care of yourself!

[gwillistexas in reply to Hidden]

So true. Thank you & you do the same 😊🦋

[gwillistexas in reply to Hidden]

Once I finished shots, he said take sublingual because as we age the stomach lining doesn’t absorb pills very well.