Pbc/AIH

[terri2109]

Just been diagnosed with aih/pbc overlap

I've had pbc for 5 years

Does anybody know the mean life expectancy for prednisone unresponsive aih treatment combined with pbc?

[Hidden]

I have both too. I am diagnosed late January of 2017. My dr told me that pbc is secondary to aih for me. I’m ok. Taking meds and trying to move on and live. I have new friends that understand and care so do you. We will be fine. I’m taking prednisone and AZA for the aih and Urso for pbc

[mjk98 in reply to Hidden]

What is AIH?

[Ktltel in reply to mjk98]

Auto Immune Hepatitis

[Ballymahon2 in reply to Hidden]

Did you have symptoms with aih

[Ballymahon2 in reply to Hidden]

Did you have separate symptoms for aih

[mjk98]

ok thanks

[PBCRobert Partner]

Hi, Terri.

I don't have stats for life expectancy, for all there may be other info that can help.

Feel free to message me.

Robert.

[terri2109 in reply to PBCRobert]

Hi Robert. Can you tell me the difference between Aih and inflammatory pbc?

I've had pbc for 5 years but just been diagnosed with aih overlap. I'm pretty worn out and in pain and I'm a foster carer and a granny and need more energy. I'm down to 20mg prednisone now started at 40 for two weeks then decrease by 5

[terri2109 in reply to PBCRobert]

Also the cosultant said i may not have aih it may be the pbc. I had a biopsy

[Sachin1234]

Hadely 3 months..

[Hidden]

Terri if you are in the USA. You should try to get an apt with the Mayo Clinic. In my case and being diagnosed so early, according to my Dr. I should be ok. Of course I have to watch out for other diseases and side affects but for me my pbc is secondary to aih. What country are you in

[terri2109]

Hi

I'm in UK

I didn't have inflammation at the first biopsy but I have this one 6 weeks ago. Saw the consultant last week and they don't think the prednisone is working, well not the way it's supposed to.

I do look like professor Klump tho lol

[Hidden in reply to terri2109]

Well the plump goes down as you drop your mgs. I’m down to 10 mgs well I was given the option to stay on prednisone or change to the other steroid. With the other one, the side affects are less severe. I would be able to lose weight and my on face. In the negative side. There is a 10% chance of it not working for me. I decided to stay with the prednisone. As long as I’m not having any other affects. I don’t want to flare. I have to stay on prednisone till aug of next year. I was expecting a taper at my last apt. Didn’t happen. But oh well