I'm soooo happy. Just for today my alt is 117. And the rest are within normal range
Most of you know I was diagnosed stage one 22 years ago by accident when the enzymes where 600 and was immediately given a liver biopsy and urso forte
Stage one for 22 years and very compliant. I guess I am lucky but it's a precarious situation so I cannot be complacent
I will remain on this site as many are scared with a diagnosis so unfamiliar to the medical profession
Bonnie ford
!!! That is amazing!!! What has your ALP trend been over the years? Congratulations.
finding the ALT and ALP readings really confusing many on the PBC foundation seem to have raised readings mine are slightly raised and my consultant seems concerned. Well done though on your results hope they remain low, they seem to yo-yo for no reason
That’s fabulous and so encouraging! Thank you for sharing something so positive x
That is so wonderful! Can you share what you have been doing? Are you on a certain diet regimen?
Bonnieanne54,
How wonderful. Certainly gives us all hope. We are all different but this is good news to hear.
Thank you for sharing! 😊
Stella ❤
This is wonderful to know! I am happy for you. My doctor, Hepatologist told me if you have PBC, as long as Alk Phos is under 200...that is okay.
Nycgirl
That’s encouraging about high enzyme level being ok. My hepatologist told me if enzymes are elevated, risk of biliary tube damage,
Did you have to change your lifestyle after diagnosed if you did what did you do, please briefly describe!
That's amazing, stay well. If you have any tips Iam sure we would all love to read them.
Bonnieanne
Lifestyle?
What do you do to keep enzymes low and symptom free beyond Ursodyoxycholine?
Jlruggie
no sugar, flour or wheat.(thats just me) lots of water, and only the urso but its 2000 mg a day (4 500 mg pills) also I was only 600 (liver enzyme) when diagnosed and it immediately went to 180
Yay!!!!
My liver dr is liver nutritionist as well he hasn’t put me in any diet restriction but due to my reactive hypoglycemia I have to limit carbs,sugar and caffeine like foods which I hVe done since 4 months and lost 10lb😔...I still drink beer and now thinking about switching to wine 🤔
Today, I visited my endocrinologist and we talked about my high abnormal b12, my protein diet and bloating problem after eating bbq and fat on the stool.
In conclusion she prescribe bile tablet for fat digest does any one take bile table ?
Thank you
Do u take Urso ?
Yes !
That confusing to me as that By my understanding Urso is bile. Is that your understanding also ? Anyone else have thoughts on this posting ?
Yes, from my reading about Urso, it is a natural bile salt.
You are right urso is bile acid ! I will talk to my liver dr and see what does he says 👍🏼
I did talk to my liver nutritionist he told me it is fine to take both not in same time tho..both medicines are made for different purposes and they work differently in our body too..I’m not going to take it until I again see my liver dr next month...
Stage 4 PBC
Has anyone with PBC ever had a TIA or mini stroke?
