I am in double shock now , my specialist said all my autoimmune test s were negative when he emailed . His secretary sent me the results and can you believe the Mitochondrial abs m2 was positive for PBC and my liver function test have gone up agAin. I cannot believe he did not see the result . He has apologised , o have never felt so drained . I am on my own my husband is working away and I am a shaky gibbering , crying wreck . I now await biopsy . In a way I feel strangely relieved that o now know what is going on and fibro scan showed mild fibrosis . Sorry to go on . I was wondering whether to see the leading expert in Birmingham Mr Hirshfield . I have lost a bit of confidence in my specialist . Never thought I would say that😢
Thank you for letting me off loAd
MiriAm x
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Mirimaur
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*hug* I'm so very sorry for the shock you are going through. At least you know what is going on with your liver and have found a nice group here for support. ❤
Bless you I am the Glue . I can't stop crying. My specialist emailed a little while ago . I sent him all my results I cannot believe he did not see them . He is so kind and very well thought of . I'm not sure whether to go to Birmingham to Mr Gideon Hirshfield .
I have lost a bit of confidence yet I so liked the professor. He is knowledgeable and caring . Thank you for my hug in a way I am relieved . I can't thank you enough
Hi Rocki My specialist called me this morning and explained what happened . Was not his fault . I feel much better since speaking with him. He knows all the drugs as he helped develope them he has booked my biopsy and I am to have a bone scan . I do trust in him I was just very confused last night, thank you for helping me
Thank you Rickie I was upset last night . When he called this morning he spent a long time on the phone calming me and explaining everything . He wants me to have a bone density scan and wants to prescribe special supplements for my bones. He will explain more when I see him
Thank you for caring about me and helping me . I very sensitive in nature a little fragile but try to be strong within
Mirimaur. I understand how you feel. Those bone density scans are very important. I take supplements but have already fractured both my patellas and left arm. Must say I am nearly 77. So there is lots of hope for you young ones. Take care. All the best x
Sachin , you are right . He called me this morning chatted with me for fifteen minutes to calm me down and to explain what happened . It was to do with the lab. He is a leading authority on these diseases and worked on the drugs we use. I do trust him he is so very kind and gentle with me and very knowledgable. I was feeling angry and sorry for myself last night . I am grateful I now know what is wrong . I will get tearful again I sure. Just grateful there are drugs that can help
The fact that he took the time to call you back and reassure you says a lot about him. He clearly gave it much thought after you hung up and tried to find out how it happened and felt like he let you down - and then did something about it. In my book, that shows he is conscientious and caring and that you should give him another chance.
Dear litsygirl I agree with you . He is very knowledgable He is an eminent professor on liver studies . He is also a very lovely kind person .I asked him if he would be there for my liver biopsy as I am scared. He said he is not normally present but if I let him know the date and if he is the hospital he will be there . I actually feel very blessed to have him and his team at the Royal Free. I just pray my biopsy will be ok . Thank you for your lovely reply
My professor called me this morning to explain everything , it was not his fault as such . I do trust in him he is also a world wide renowned figure in these illnesses. He was active in the development of the drugs used for PBC
I will just move on have my biopsy done next week and try to be positive , thank you for the info on Mr Hirshfield I will mention to my specialist . I feel a bit stronger now relieved we know what's going on . My fibro scan showed mild fibrosis . I will let you all know what happens
It's all sorted now , he has spoken to me and I will see him . I do actually trust my professor. He is very clued up on it all . I was just feeling upset yesterday . Actually I still am today but not with him.
It was a mistake from the lab. He noticed it today and called me .
I would be too, I was misdiagnosed by 2 GI clinics I was so upset I isolated myself for months, now in good hands at U Of M expert liver clinic there. Hang in there but still get copies of all your tests and review them yourself.
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