Burning in legs & feet: Does anyone have... - PBC Foundation

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Burning in legs & feet

Ohio82 profile image
5 Replies

Does anyone have problems with burning in their legs & feet ? It is not all the time but it comes and goes. It is not a tingling and is not numb.

Thoughts or suggestions. Just one more thing. I am thinking I may have a pinched nerve.

Blessings to all 😃

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Ohio82 profile image
Ohio82
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5 Replies
Michiganpbc profile image
Michiganpbc

Maybe see a neurologist if your doctor can't help you. I have peripheral neuropathy from autoimmune disease but burning is a symtom that can be from a few different things, I would ask your doctor he can refer you to have it checked out.

Shulsey profile image
Shulsey

Hello Ohio82, for me, it felt like the soles of my feet were extremely bruised & on fire. Then it went into my legs. Before I went to see my neurologist my skin felt as if it was in extreme pain. Couldn't even handle hugs from my soon to be 9 yr old daughter without crying out. I've been diagnosed with fibromyalgia. Yet, one more autoimmune disease that no one can see but I can surely feel. I take Amitriptylin 50mg (generic form of Elavil) a hour before bed. It helps but Im going to see if she will increase the dose another 25mg which will then be the max dose. Im starting to have difficulty getting out of bed in the morning again, due to the soles of my feet. You might ask your specialist if they would refer you to a neurologist. Hope this has help a bit❤️

Stay strong❣️

Shannon

butterflyEi profile image
butterflyEi

I have just complained of something similar. GP prescribed ed gabapentine which has helped a bit. Early days on treatment though -:)

Shulsey profile image
Shulsey in reply tobutterflyEi

I too was given gabapentin, but the rheumatologist that prescribed it said for me to take it at dinnertime. Unfortunately, about 20 min after taking it I would be asleep & drooling in my recliner haha. I guess you could say that it helped a bit but it certainly did not help with getting my kiddo to bed or anything done in the evening simply because I was passed out🙄. I no longer take that.

butterflyEi profile image
butterflyEi in reply toShulsey

Hi Shulsey

Mine is spread over the day, 100mg 3 times a day and I have not experienced tiredness like that. We are all so different with how we respond to medications. My worst reaction when I doubled the dose as instructed after one week was the sudden appearance of bruising which I will speak to the doctor about next week. Needless to say I went back to the starting dose.

best wishes

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