Ocalvia: Hi everyone Is there anyone on... - PBC Foundation

PBC Foundation

9,484 members8,376 posts

Ocalvia

IOW-gal profile image
9 Replies

Hi everyone

Is there anyone on here who has been given Ocalvia here in the UK.

Just got back from my annual consultation and my doctor is considering recommending me for this.

Just wondered if anyone else has experience of this.

Many thanks Eileen

Written by
IOW-gal profile image
IOW-gal
To view profiles and participate in discussions please or .
9 Replies
LisaC22 profile image
LisaC22

Hi Eileen. Would recommend you have a look back at some posts from last week. Some news came to light regarding dosage. Very important that you make yourself aware & your doc also if he/she is not already. That way you can both make an informed decision. I am in the same situation myself. You will also find feedback from people who have been on it. Generally results seem to be positive but you do need to be fully informed. You can scroll back to last week or do a search under Ocaliva.

gwillistexas profile image
gwillistexas in reply toLisaC22

Intercept responded & had conference call w/FDA this morning. All seems clear as long as dosed properly.

LisaC22 profile image
LisaC22

Also the last post before yours has more info too.

gwillistexas profile image
gwillistexas

IOW-gal, I am currently on Oclavia.

butterflyEi profile image
butterflyEi

Hi there is a post by Jo_Br on the most rdcent information on Ocaliva. It was posted sometime in the last week.

gwillistexas profile image
gwillistexas in reply tobutterflyEi

Yes. Also, Intercept published news release September 25th. 😊

billhunter profile image
billhunter

I did not respond to urso on its own years ago so asked to have fibrates. This worked! Bezafibrate 400mg per day. Now this is finally accepted as a therapy . Quite a benign drug with less risks I think. Just an idea. William

gwillistexas profile image
gwillistexas in reply tobillhunter

Hi. Has it kept your levels down?

zinchunter profile image
zinchunter

My lfts were erratic but on a rising trend with urso alone. This was some 6 years ago. I saw research with fibrates that looked positive. So started. Immediately lfts fell back and are now on still erratic but steady lower level. My consultant is happy and recommended me not to change to other drugs that were not available years ago but now are.

Not what you're looking for?

You may also like...

My Hands

OK here is what has been going on, over the last year my right hand has changed dramatically it...
LisaBamaArd profile image

Adderall or Ritalin for brain fog/mood stabilizer and fatigue

Has anyone been put on Adderall or Ritalin for these side effects? My nurse wants put me on Prozac....

Research Participation

Hi everyone! I have been asked to participate in a research project to study a potential new drug...
LeanCat profile image

itching in the ears

I’ve had Pbc for several years and have itching on my body. I have a dear friend who also has PBC....

Modafinil for fatigue

Does anyone know if the drug Modafinil is used in the UK and/ or Ireland to treat PBC related...
SC49 profile image

Moderation team

See all
PBCCheryll profile image
PBCCheryllAdministrator
janethomas profile image
janethomasModerator
Cupcake1971_ profile image
Cupcake1971_Moderator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.