Good afternoon everyone.
Been ages since I have been on here. Hope you are all keeping well.
Been a bit off colour for a few weeks and been having tests done. Got the results today and my pbc is progressing. Had a fibroscan and showing sign of its getting worse.
Next step is another scan to look at my autoimmune system and a bone density scan. then gonna look at a liver biopsy and talk about where I go from there..
I am sorry your PBC is progressing, I hope your scans come out good.
The color in my face is getting darker and uneven. I wasn't sure if this was a symptom of PBC. Do you know if it is?
Hello Littletonya. Yes it is said that in a live disorder we can acquire a darkened (or tanned) skin.
When I started to itch early 2010 that led to PBC diagnosis December htat year, with the itching at the backs of my knees especially the skin started to look bronzed. That isn't the case now as over time with the itch I still have my skin has started to toughen on my legs in particular from my knees down and the skin has tanned considerably.
I was asked only yesterday if I'd been to 'the Caribbean' as with the short bursts of the UK sun we have had in the last few months and the fact I will then sit out in the sunshine for around an hour for lunch, I seem to just really tan. During the winter months the tan seems to take a lot longer than it would a normal person to lighten up. I always had skin that never really went red in the sun but I was never a sunbather. Now it seems I dont' have to be out very long to gain a 'suntan'.
Thank you
Yeah.. I noticed that as well. I am also very itchy around my chin area and noticed it was darker as well. Strange stuff.
Hi donna
Sorry to read of your troubles. Seems like the medics are on the case and I hope they can help you. Keep us up to date with how you are getting on. Best wishes to you.
Best of luck Donna - will keep you in my prayers as you go through your tests. Keep us posted!
Hi
Its worrying I know. Did the people who did the fibroscan give you a result? I was given one...Consultant hasnt suggested a biopsy although I have cirrhosis. I am also having a bone density test and had an ultrasound this week to check for cancer of liver as the liver is more prone to this....its all go, an MRI next week because of consistent low back pain..that is worse than the liver problems at present as I cant do as much as I Would like and sitting is very sore.
I dont have suntanned skin look but the skin on my arms is very hard and dry.
Good luck and remember there are peole on line here who have progressed beyond PBC Stage 3 nd are still active as they can be and have hope and many good times.
I am sorry it is progressing. I know the URSO just slows PBC down so is it just a crap shoot as to how long it lasts? I just started and I would be devastated if it stopped working. I take each day as it comes but I have read on this site that for some the Urso works for many years....#hopeful
Thinking of you
I hope you're doing as well as can be and have friends and family looking out for you. Take care x
Thanks for all the reply's really means a lot.xx
Hi everybody. How your all keeping well. I have now been told i have portal hypertension. its enlarged varices veins in the gullet, i have now started taking beta blockers. Go back to see the specialist next week to discuss if i'm having a liver biopsopy ( im hoping not).
Can any one let me know if they have had one and what to expect.
Whatever they decide i will keep smiling as i know there are people far worse than me..
Keep smiling all. 
Hi everyone. I was wondering how often you have your blood taken to check the progress of PBC? After I was told I have PBC my Gastro. told
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Hi I'm Sue
Hi everyone wanted to share something with u all that might help. 
