Hi - so when my sister found out about my PBC she wanted to see if she was a donor match for when that time came. She called me up and asked me about my blood type and the next day she went for her apt with her dr. He said she'll be tested if / when that time comes and not to worry about it, and he told her a transplant was a last resort and according to her was lax about it all.
This frustrates me because a) he doesn't know me and doesn't anything about MY PBC (my stage, symptoms etc)... (regardless of what the books say in med school) and I'm mad that he told her to get tested at the time.
If my sister knew NOW that she was a match, she would have to quite drinking (she's a HEAVY drinker) so her liver could have time to regenerate so she'd be a suitable donor when my time comes. But because he told her to get tested "at the time" it won't matter if she's a match because her liver will be so damaged from drinking it won't have time to regenerate before I need it and she won't be a suitable candidate for a donor.
Sweet of her to get tested - she thought if she was a match she could donate now and I'd be rid of PBC. her intentions were good. But I'm frustrated with her doctor's reaction.