Would be very grateful to hear of others experiences. Can PBC be "in remission"?
I've always understood that it was a one-way process in which progressive damage took place to the bile ducts and there ain't no way of stopping it, and the jury is still out on whether urso slows it down.
But I've had a consultant write in response to recent blood tests, which show my biliruibin back to the level it was in 1998, that my PBC may be "in remission".
Now, as I understand it, for the disease to be "in remission", that would have to mean that your bile ducts are regenerating themselves? And that is not supposed to happen?
I have always been told that PBC is a one way disease, gradual and progressive destruction of the bile ducts.
Test-wise, I have had a high (1:160 upwards) AMA M2 antibody since 1998 but otherwise normal LFTs. The bilirubin has always been within normal range but always very slowly rising, from 9 in 1998 to 16 in 2013 (on a scale of 1 to 20). (I am sceptical about the meaning of LFTs by the way, having seen a relative with normal LFTs then be shown to have a totally destroyed liver).
Recent blood test showed bilirubin at 10 (ie back pretty much to 1998 levels).
Would be very grateful to hear if anyone else has had similar experiences and whether their consultant believes that PBC can be "in remission". Thanks