I was diagnosed with PBC on Thursday, this was after seeing a gastroenterologist for, I think, about 4 years. I was referred to him from the rheumatologist after going to him with my raynauds and getting abnormal liver function results on my blood tests. I went every 6 months to the gastro (& every 18 months to the rheumo) having fasting blood tests done beforehand which always came back with abnormal liver function results but which he couldn't find a diagnosis. He used to ask if I had itching, which I didn't but never asked me about tiredness which I had in bucketloads but didn't tell him about as didn't think it was to do with what was going on with my liver (researched loads to see if it was down to the raynauds!). A year ago he sent me for a biopsy which came back inclusive and still no mention of PBC from the Gastro, but due to high cholesterol he put me on statins, which after being on for a month sent my blood results even higher so I stopped them!
The time before last he told me he was going to send my biopsy off to to Cambridge for further diagnosis (I was a bit miffed that this hadn't happened already, not really sure where it was sent before!).
So that then brings me up to Thursday where I eventually get a diagnosis.
I'm thinking I must have had this for at least 10 years which is about the time the raynauds started and which I've read can often be a disease that people with PBC have (along with other autoimmune conditions).
In one respect I'm pleased to eventually get a diagnosis & be able to put my tiredness down to an actual cause but in another I'm pretty annoyed that it's taken this long to diagnose. I'm also taking heart from the fact I must have had it for a long time and it obviously hasn't got loads worse.
I wasn't too concerned when he told me but have read up on PBC a lot since then which has made me realise it is quite a serious condition. I've been put on Urso and will go back to Gastro in 4 months. I also went through early menopause starting in my late 30's. I'm 49 now and still work full time (which can be exhausting).
Just wondering if anyone else has had similar experiences with getting diagnosed and also whether early menopause can be a sympton of PBC (nothing said about this on the web).