There are so many interesting / important questions aqnd topics around here, it is saddening that there are no answers for all of them from a medical perspective, but there are things that one can know - accurate, compnehensible information and very good counselling and support - by the PBC Foundation that is, who has opened this HEalthUnlocked forum on PBC.
I have seen that quite a few people on this blog do not know about this foundation nor have addressed it. They have been helping PBC patients for 16 years now, they do know what they say about this condition and - highly important - about SELF MANAGEMENT AND LIFE WITH PBC.
Indeed. To put it frankly, if we had known the PBC Foundation and all the information and help othey provide whi8lst my mother was still alive, it would have helped tremendously with her PBC situation, self-management, state of mind.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Fundraising for the PBC Foundation
PBC/AIH overlap
