Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,534 members • 23,840 posts

All posts for September 2024

Necessary cofactors and dosages for Vitamin b12 injections to work

Can anyone inform me as to all the necessary cofactors and dosages that need to be taken to ensure Vitamin b12 injections work. I have the MTHFR gene and slow...

Can anyone inform me as to all the necessary cofactors and dosages that need to ...

Thyropausal

•4 hours ago

1 Reply

low in iron and B12

found out I’m low in iron and I’ve got pernicious anemia. From my understanding having regular B12 injections has lowered my iron and ferritin. Should I...

found out I’m low in iron and I’ve got pernicious anemia. From my understandin...

qwertystar

•8 hours ago

1 Reply

Sore red tip of tongue vitamin b12 injections

After 2 weeks of alternate day b12 injections I have developed a sore red tip on my tongue, is the b12 making me deficient in something else? Or what could be...

After 2 weeks of alternate day b12 injections I have developed a sore red tip on...

Thyropausal

•9 hours ago

1 Reply

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Ocular/retinal migraines

Apologies for yet another post.. but I truly feel like I'm being battered with one thing after another. I am trying to piece together what is B12 and what is...

Apologies for yet another post.. but I truly feel like I'm being battered with o...

ClaireWF1346

•1 day ago

25 Replies

Being asked to track my working hours after OH referral..

Hi everyone. Wondering if anyone can advise. I was diagnosed with B12 deficiency a few years ago and have been getting injections every 8 weeks since then. I...

Hi everyone. Wondering if anyone can advise. I was diagnosed with B12 deficien...

Squirrel_enthusiast

•2 days ago

6 Replies

Help what happened?

My ferritin saturation has dropped since b12 injections! What do I do? I feel so ill! We now think the only reason I was low in b12 was a very very...

My ferritin saturation has dropped since b12 injections! What do I do? I feel s...

Popcorn12345

•2 days ago

23 Replies

Iron and transferrin levels

Just had blood results. Shows my iron has plummeted since an iron infusion in February. Now reads 7. Yet comment next to this result is 'normal'. How come....

Just had blood results. Shows my iron has plummeted since an iron infusion in F...

fiftyone

•2 days ago

8 Replies

Starting SSRI during reversing out?

OK, I realise that I sort of asked this in my post a couple of years asking for help, but I think I've finally convinced myself that I'm not sure I can deal...

OK, I realise that I sort of asked this in my post a couple of years asking for ...

Laverdista

•2 days ago

16 Replies

Do people with PA/B12 deficiency get run down more easily, even if undergoing treatment?

hi all! I’m in the midst of a long stretch of work (9th straight day) and I am so much more exhausted than everyone around me. I have PA and I am self...

hi all! I’m in the midst of a long stretch of work (9th straight day) and I am s...

marlesk

•2 days ago

4 Replies

stress

I am 87 yrs old and live alone and at the moment have exhausting visits from children ( 50- 60 yrs old) for their 3wk holiday from abroad and I am exhausted.Is...

I am 87 yrs old and live alone and at the moment have exhausting visits from chi...

Io1000

•2 days ago

18 Replies

Hypertension and B12

Just wondering if others have had issues with B12-raised hypertension? I've suffered with hypertension for a while (>5 years) and it has gone through periods...

Just wondering if others have had issues with B12-raised hypertension? I've suff...

Laverdista

•3 days ago

14 Replies

High MCV & MCH update

Good morning all I just wanted to update you on my previous post. All blood tests came back normal apart from very high B12 and Folate and a note under...

Good morning all I just wanted to update you on my previous post. All blood tes...

Ipsofacto01

•3 days ago

2 Replies

reverse out twice?

Hi Friends, I was diagnosed with b12d in June 2023. I found a way to get weekly shots, and largely got better from the horrible neuro symptoms. I then got...

Hi Friends, I was diagnosed with b12d in June 2023. I found a way to get weekly...

MuppDog

•3 days ago

14 Replies

Thank you

Just wanted to thank all the forum members who replied to my plea for help yesterday. Thanks for allaying my fears a bit, and giving me some hope that I might...

Just wanted to thank all the forum members who replied to my plea for help yeste...

Laverdista

•3 days ago

23 Replies

Dr David Morris - essential viewing video on B12 def.

https://vimeo.com/891099138/4150efa06b?share=copy I've posted this because it has some amazing information which lots of people seem not to have managed to...

https://vimeo.com/891099138/4150efa06b?share=copy I've posted this because it h...

auldreekie

•4 days ago

26 Replies

Help finding cardiologist - Bradycardia - West Herts NHS Trust (Will travel for good private Consultant)

Long story short..finally got GP to look at low bp (been low for 20 years but..) I asked for a different GP after being told time and time again 'some people...

Long story short..finally got GP to look at low bp (been low for 20 years but..)...

auldreekie

•4 days ago

1 Reply

Feel at rock bottom and can't see a way out. Need help to get over this.

Hi all, Sorry if this seems like another 'needy post. I've bored you all enough with my problems over the last few weeks. Now one month into my SI EOD, and...

Hi all, Sorry if this seems like another 'needy post. I've bored you all enough ...

Laverdista

•5 days ago

60 Replies

Forum has been source of sanity in my B12 mystery journey

It's obvious we're becoming the experts by researching everything--while in distress I might add, so hard. I feel for everyone's suffering at the hands of...

It's obvious we're becoming the experts by researching everything--while in dist...

Sunvalley12

•5 days ago

26 Replies

Correct dose of b12 post abdominal surgery/stoma bag

I am trying to help my son. Many years ago he was diagnosed with Crohns disease and over the years has had extensive abdominal surgery. He now has a stoma...

I am trying to help my son. Many years ago he was diagnosed with Crohns disease...

Vonni7

•6 days ago

36 Replies

I did a 45 minute spin class last night and I feel no pain today

Just wanted to share a positive update. Been on b12 injections since around March 2023. It's been a rough ride to say the least but I'm celebrating cuz I was...

Just wanted to share a positive update. Been on b12 injections since around Marc...

Iheartb12

•6 days ago

10 Replies

B12 leaking out of top of vial. Safe?

I'm about half way thru a bottle. When I put the needle in the top to push the air out and suck it in to the syringe it goes into syringe fine but starts...

I'm about half way thru a bottle. When I put the needle in the top to push the a...

Iheartb12

•6 days ago

9 Replies

Why do I feel so much better in the evening?

Been self-injecting EOD for 4 weeks now. My symptoms before injection were tearfulness, anxiety, shakiness, memory loss, cognitive issues, blurred vision and...

Been self-injecting EOD for 4 weeks now. My symptoms before injection were tearf...

Laverdista

•7 days ago

9 Replies

does it matter if you take folate or folic acid?

hello Everyone, I 've been wanting to try the folic acid in a tablet, I currently take a multi / natural food multi that has 280 micrograms in a serving. I...

hello Everyone, I 've been wanting to try the folic acid in a tablet, I current...

JesusMercy60

•7 days ago

4 Replies

Wow...happening now in the USA. Curious if this is why B12 is hard to get across USA.

https://www.youtube.com/watch?v=0JzKmlvIFew

PaintLadie

•7 days ago

7 Replies

Frequent urination after B12 injections

Just wondering if anyone else experiences the need for frequent urination, a short time after self-injecting? I'm finding that within 30 minutes of the...

Just wondering if anyone else experiences the need for frequent urination, a sho...

Laverdista

•7 days ago

16 Replies

Anti-Vitamin B12 HoloTC antibody

Does anyone know any more about this test? Anyone had the test? Anyone had a positive result? Anti-Vitamin B12 HoloTC antibody ...

Does anyone know any more about this test? Anyone had the test? Anyone had a p...

helvella

•7 days ago

3 Replies

Biting the bullet

Hi all, after lurking and dithering for so long I've decided to bite the bullet and try SI. I know there are millions of posts on the topic but my brain fog is...

Hi all, after lurking and dithering for so long I've decided to bite the bullet ...

ChardieL

•8 days ago

1 Reply

Two positive IFA tests, one negative. But positives were all about an hour after receiving b12 injections?

I had low b12, at 156. They gave me the injection. About an hour later they drew my blood and I was pos for IFA but neg for PA. I had an endoscopy and had no...

I had low b12, at 156. They gave me the injection. About an hour later they drew...

ProtectAnimals

•8 days ago

12 Replies

Active B12 test in USA?

Has anyone ever been able to find and take an active/functional B12 test anywhere in the USA? It is so frustrating that this test is unavailable in America.

Has anyone ever been able to find and take an active/functional B12 test anywher...

Greeneyecolor

•9 days ago

28 Replies

very high B12 no injections or supplements

Has anyone had very high B12 ? My B12 has been 2000 for years .. I have peripheral neuropathy which I was told 21 years ago was caused by low B12 .. had 12...

Has anyone had very high B12 ? My B12 has been 2000 for years .. I have peripher...

lynnwin

•9 days ago

28 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2024

Necessary cofactors and dosages for Vitamin b12 injections to work

low in iron and B12

Sore red tip of tongue vitamin b12 injections

Ocular/retinal migraines

Being asked to track my working hours after OH referral..

Help what happened?

Iron and transferrin levels

Starting SSRI during reversing out?

Do people with PA/B12 deficiency get run down more easily, even if undergoing treatment?

stress

Hypertension and B12

High MCV & MCH update

reverse out twice?

Thank you

Dr David Morris - essential viewing video on B12 def.

Help finding cardiologist - Bradycardia - West Herts NHS Trust (Will travel for good private Consultant)

Feel at rock bottom and can't see a way out. Need help to get over this.

Forum has been source of sanity in my B12 mystery journey

Correct dose of b12 post abdominal surgery/stoma bag

I did a 45 minute spin class last night and I feel no pain today

B12 leaking out of top of vial. Safe?

Why do I feel so much better in the evening?

does it matter if you take folate or folic acid?

Wow...happening now in the USA. Curious if this is why B12 is hard to get across USA.

Frequent urination after B12 injections

Anti-Vitamin B12 HoloTC antibody

Biting the bullet

Two positive IFA tests, one negative. But positives were all about an hour after receiving b12 injections?

Active B12 test in USA?

very high B12 no injections or supplements

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