Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

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All posts for September 2020

Is it possible not to absorb B12 injections?

Can you get to a point where your body no longer absorbs b12 injections? Reason i ask cause when i barely started injecting about 4 or 5 months ago i was...

Can you get to a point where your body no longer absorbs b12 injections? Reason ...

texans2002

•4 years ago

4 Replies

Can you trust private B12 injections?

Hi everyone. I have been recommended B12 injections by my private GP and so far it's been a nightmare figuring out how to get the loading doses (she's the...

Hi everyone. I have been recommended B12 injections by my private GP and so far ...

SKalila

•4 years ago

23 Replies

What do these results mean please. I have hashi underactive, type 1 d, fibro.

Hi again here are my results Vit b12 247ng/l 145-910 Folate 8.6ug/l 3-20 Ferritin 48ug/l 10-150 (Ferritin - 25-74 does n8t exclude iron...

Hi again here are my results Vit b12 247ng/l 145-910 Folate 8.6ug/l ...

Soundwell1

•4 years ago

13 Replies

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When did you feel “normal” again after treatment and what is the new range for b12 levels?

Two questions: 1. How long after starting b12 injections did you feel back to your previous self/ “normal” again? 2. Many doctors use the 200-800 range as...

Two questions: 1. How long after starting b12 injections did you feel back to y...

Ashley820

•4 years ago

9 Replies

Daily headaches — cause?

Hi, everyone! I worry that this is a silly post, because the answer might just be “take more B12” and/or “wait for the iron to work,” but — — like many of...

Hi, everyone! I worry that this is a silly post, because the answer might just ...

still_elsewhere

•4 years ago

16 Replies

Why do I need to also supplement with a folate or a Complex B vitamin when supplementing with B12?

Hi, Spent a few hours last night trying to find scientific papers/writing on the need to supplement with folate when one supplements with B12. No luck. I'm...

Hi, Spent a few hours last night trying to find scientific papers/writing on the...

looking_for_answers

•4 years ago

10 Replies

Ive found this at Aldi !!!!!!!!!!!!!!!!!!!!

Hi all, while eventually getting out to do a bit of shopping i came across a protien tin called "Engivita". Ive looked online and seen it going for £8 on...

Hi all, while eventually getting out to do a bit of shopping i came across a pro...

jonnylongton

•4 years ago

13 Replies

Struggling to find more b12 ampoules

Hi has anyone been ordering b12 ampoules during lock down? I’m struggling to find any and https://www.versandapo.de are not posting out of Germany. Are there...

Hi has anyone been ordering b12 ampoules during lock down? I’m struggling to fi...

LittleA

•4 years ago

9 Replies

B12 injections

Update on my B12 injections. I called my doctor on Thursday and spoke to him on a consultation over the phone he said my levels were now normal and I said I...

Update on my B12 injections. I called my doctor on Thursday and spoke to him on ...

Nibbles72

•4 years ago

4 Replies

Advice please

After some advice for my 16 year old daughter. She has always been clumsy but over the past few months is getting more so as well as forgetful, extremely...

After some advice for my 16 year old daughter. She has always been clumsy but o...

marsupial

•4 years ago

11 Replies

Update - Vertigo & Hand Tremor

Hi, my doctor has said she will refer my daughter to a neurologist to look into the vertigo and the hand tremor/shaking. Also an ECG, is this normal in...

Hi, my doctor has said she will refer my daughter to a neurologist to look into ...

Dogwalker123

•4 years ago

2 Replies

Nitrofurantoin B12 deficiency?

I have taken Nitrofurantoin on advice from my doctor for infections but I’ve only found out now that there is a caution about taking it being deficient in...

I have taken Nitrofurantoin on advice from my doctor for infections but I’ve onl...

LittleA

•4 years ago

2 Replies

B12 injection

I'm on B12 injections every 3 months I seem to be trying to catch my breath all the time. I also have a bald patch of hair from a itchy scalp, also my...

I'm on B12 injections every 3 months I seem to be trying to catch my breath all ...

LisaNewb

•4 years ago

3 Replies

Shaking & Vertigo after 6th loading injection...

My daughter is 15, had her 6th injection Friday but has had vertigo symptoms and her hands are shaking? Is this normal and should I treat the vertigo? Or will...

My daughter is 15, had her 6th injection Friday but has had vertigo symptoms and...

Dogwalker123

•4 years ago

6 Replies

Tremors worsened since having treatment

I’m very fortunate since having treatment my gait and tremors have worsened. It’s not painful. I’m just curious to know is this the B12 repairing the nerves or...

I’m very fortunate since having treatment my gait and tremors have worsened. It’...

Narwhal10

•4 years ago

5 Replies

Where do I order b12 injectable from please I'm in UK!!

Hi I'm Laura in UK, I've been left to suffer with the b12 deficiency for a few years now, I had to fight for a few years to get blood tests!! And I've been...

Hi I'm Laura in UK, I've been left to suffer with the b12 deficiency for a few y...

Louloulou72

•4 years ago

25 Replies

Is anyone aware of a connection between PA and Peripheral?

Would more B 12 help? I’ve just been diagnosed with PN and wonder if they are connected?

Would more B 12 help? I’ve just been diagnosed with PN and wonder if they are co...

Slap

•4 years ago

8 Replies

Which national chemists sell B12 injections in the UK?

Hi, Have just found out that Superdrug will administer B12 injections for £29 at certain of their health clinics - as I understand it, they need your GP's...

Hi, Have just found out that Superdrug will administer B12 injections for £29 at...

Greyfeathers

•4 years ago

26 Replies

Follic acid

Can a lack of follic acid cause terrible muscle and joint pain? I'm so tired and I'm in absolute agony. My legs lower back ache so much. I can't even walk...

Can a lack of follic acid cause terrible muscle and joint pain? I'm so tired and...

Donby

•4 years ago

6 Replies

Absolutely raging.

So spoke to head GP this morning, he said NICE guidelines say once levels are above 180 there is no more need for injections!!! So they have denied any further...

So spoke to head GP this morning, he said NICE guidelines say once levels are ab...

Parksy

•4 years ago

19 Replies

Predescribtion for b12 required

Any DR here can provide me with predescribtion for b12 injection

Issa101

•4 years ago

5 Replies

Units in GPS hydroxycobalamin

Can someone please tell me what measurements our injections are in uk please. I’m preparing for phone call from practice manager so urgent please

Can someone please tell me what measurements our injections are in uk please. I’...

Parksy

•4 years ago

4 Replies

Injections from Germany how much are they?

Just in case docs decide to stop mine xx

Vps1980

•4 years ago

8 Replies

Lab reference ranges internationally

Just out of pure interest does anyone know the lowest range of b12 deficiency where they start treating internationally. I know in UK it’s 150 and in Japan and...

Just out of pure interest does anyone know the lowest range of b12 deficiency wh...

Parksy

•4 years ago

6 Replies

Drinking and PA / IDA

This is a silly question on its surface, because Prosecco isn’t exactly a health tonic — we all know that! But I was wondering if PA (and/or IDA) might offer...

This is a silly question on its surface, because Prosecco isn’t exactly a health...

still_elsewhere

•4 years ago

39 Replies

Excruciating Facial Pain radiating to head.

Does anyone else experience this ? I can normally cope with it but today I have had 3 episodes - the last is still on going and it’s been over 2 hours. I rang...

Does anyone else experience this ? I can normally cope with it but today I have ...

Narwhal10

•4 years ago

17 Replies

diagnosis

Can anyone explain how Pernicious Anaemia is diagnosed.

Ronsville2

•4 years ago

5 Replies

Blood work could be suggesting pernicious anaemia

I hope this is the right place to put this I’ve been seeing a doctor in a gi due to on going problems I recently had a 2cm polyp removed, I had blood work...

I hope this is the right place to put this I’ve been seeing a doctor in a gi du...

Louise_18

•4 years ago

5 Replies

B12 d cured???

Hello all. I sent in an email with my symptoms and my needing more frequent injections of B12. I received a quick reply telling me to make a telephone...

Hello all. I sent in an email with my symptoms and my needing more frequent i...

3rdNettydoon

•4 years ago

15 Replies

Stubborn teen update

Thank you for your replies a few days ago. My grandson agreed to a private blood test but the first date available when he is not away with his sporting...

Thank you for your replies a few days ago. My grandson agreed to a private blood...

Auntyp62

•4 years ago

22 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2020

Is it possible not to absorb B12 injections?

Can you trust private B12 injections?

What do these results mean please. I have hashi underactive, type 1 d, fibro.

When did you feel “normal” again after treatment and what is the new range for b12 levels?

Daily headaches — cause?

Why do I need to also supplement with a folate or a Complex B vitamin when supplementing with B12?

Ive found this at Aldi !!!!!!!!!!!!!!!!!!!!

Struggling to find more b12 ampoules

B12 injections

Advice please

Update - Vertigo & Hand Tremor

Nitrofurantoin B12 deficiency?

B12 injection

Shaking & Vertigo after 6th loading injection...

Tremors worsened since having treatment

Where do I order b12 injectable from please I'm in UK!!

Is anyone aware of a connection between PA and Peripheral?

Which national chemists sell B12 injections in the UK?

Follic acid

Absolutely raging.

Predescribtion for b12 required

Units in GPS hydroxycobalamin

Injections from Germany how much are they?

Lab reference ranges internationally

Drinking and PA / IDA

Excruciating Facial Pain radiating to head.

diagnosis

Blood work could be suggesting pernicious anaemia

B12 d cured???

Stubborn teen update

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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