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Pernicious Anaemia Society

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All posts for August 2018

Use Pre injection swabs - yes or no

What are the pros and cons of using the Pre injection swabs. Is it better to use them or not? I have been reading that just washing is enough and the swab is...

What are the pros and cons of using the Pre injection swabs. Is it better to use...

carer999

•6 years ago

6 Replies

Pernicious anaemia and fibromyalgia

It’s been a while since I’ve been on here, life has a funny habit of getting in the way! What can I say, I went for my rheumatologist appointment. Apparently...

It’s been a while since I’ve been on here, life has a funny habit of getting in ...

heather_turner

•6 years ago

12 Replies

Requesting Doctors Appointments?!

Hi, I was trying to book another doctor’s appointment as I’ve been in increasing amount of pain over the past few months. The receptionists was pleasant enough...

Hi, I was trying to book another doctor’s appointment as I’ve been in increasing...

Lavender-Flowers

•6 years ago

7 Replies

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Are frequently blue lips a B12 def symptom?

My lips have often gone blue when cold but they have recently gone blue when warm and after exercise or when sat in the office but not cold. GP is arranging a...

My lips have often gone blue when cold but they have recently gone blue when war...

tiredBFmum

•6 years ago

3 Replies

Would you recommend lamberts methyl b complex?

I have had my active b12, intrinsic factor and folate tested during a long few months with no supplements. both NHS and private GP think I should stop...

I have had my active b12, intrinsic factor and folate tested during a long few m...

tiredBFmum

•6 years ago

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Blood test readings, help required

Hello, I don't know how to read my test results, can you help? Is my folate low? I have had the 6 loading doses of b12 6 weeks ago, but feel no better. Coded...

Hello, I don't know how to read my test results, can you help? Is my folate low?...

Bornactor

•6 years ago

4 Replies

PA or purely thyroid related?

I’m about to tackle GP regarding my ongoing symptoms and all advice welcome. I have a strong family history of hypothyroidism, both (younger) sisters one with...

I’m about to tackle GP regarding my ongoing symptoms and all advice welcome. I h...

LowB12

•6 years ago

3 Replies

B12 self injecting

I have a friend who has B12 injections from gp but not as often as she says she needs them. She has bought some injections from abroad and is going to use...

I have a friend who has B12 injections from gp but not as often as she says she ...

Sylvia22

•6 years ago

7 Replies

Advice please

Hi everyone I finished my loading injections 4 weeks ago, felt a little improvement but still tired, heart palpitations, vision impaired, tinnitus etc so went...

Hi everyone I finished my loading injections 4 weeks ago, felt a little improvem...

RJGFiona

•6 years ago

7 Replies

Where to dispose of sharps bin?

I have successfully completed my first B12 self injection, and was just wondering what happens when my sharps bin is full. I know my local council will collect...

I have successfully completed my first B12 self injection, and was just wonderin...

Cherj

•6 years ago

6 Replies

Unsure I’m getting the right treatment for B12 deficiency

Hi all. I’ve recently been diagnosed with B12 deficiency but without pernicious anaemia. My B12 level is currently 101 but my doctor has told me that’s normal....

Hi all. I’ve recently been diagnosed with B12 deficiency but without pernicious ...

Pheonixnite

•6 years ago

11 Replies

Newsletter symptomami, is still IT PA?

Hallo I have PA for 4 Yeats nie. Recent I'm getting extremely dissy when getting up or walking fast, very weak and sleapy when i didn't eat enough. Have...

Hallo I have PA for 4 Yeats nie. Recent I'm getting extremely dissy when getting...

Ela1

•6 years ago

1 Reply

First blood results, now second results

Hi First B12 blood test was back in March this year, catergorises as ‘LOW’ with a reading off 177. Doctor refused to medicate me for this even though I was...

Hi First B12 blood test was back in March this year, catergorises as ‘LOW’ with...

Hayleyjel

•6 years ago

6 Replies

Looking for a Haematology consultant with knowledge of PA

Can anyone recommend a Haematology consultant with a good understanding of PA? I live in Gloucestershire/near Bristol but am happy to travel if need be.

Can anyone recommend a Haematology consultant with a good understanding of PA? I...

drvicclarke

•6 years ago

2 Replies

Dangers of misusing Nitrous Oxi

I saw this on TV yesterday evening....

clivealive

Forum Support•6 years ago

4 Replies

I'm new here - normal (?) B12 levels but low folate - help, I don't know what to think...

I'm new here - normal (?) B12 levels but low folate - help I'm TOTALLY confused.... Having felt absolutely awful for ages and suspecting a thyroid problem I...

I'm new here - normal (?) B12 levels but low folate - help I'm TOTALLY confused....

gingermoo

•6 years ago

7 Replies

PA Testing Questions

I have Hashimoto’s and in the past tested low for vitamin d. I’ve been fatigued for many years and have had some mild memory issues. About 3 months ago I...

I have Hashimoto’s and in the past tested low for vitamin d. I’ve been fatigued ...

aggleflaggle1045

•6 years ago

6 Replies

Supplies of B12 from Versandapo

Hi all, just to say that Versandapo now have supplies of B12 Rotexmedica (10x1m dose) and I have managed to purchase some via PayPal as I understand some of...

Hi all, just to say that Versandapo now have supplies of B12 Rotexmedica (10x1m ...

Deetha

•6 years ago

8 Replies

B12 Test Results

Hi guys, I was wondering if you could look at these results for me and advise. I originally had a full blood count and B12 checked at the beginning of the...

Hi guys, I was wondering if you could look at these results for me and advise. ...

Theopop

•6 years ago

3 Replies

Please Help Us!!

I posted on behalf of my 19 year old daughter about 18 months ago about her extreme fatigue, lack of energy, digestive problems, not feeling refreshed after a...

I posted on behalf of my 19 year old daughter about 18 months ago about her extr...

janey1234

•6 years ago

19 Replies

Repeat b12 blood test after 6 loading doses - desperately need help

Hiya, I originally visited my dr complaining of fatigue - she tested my B12 which was low enough that she commenced me on the 6 loading doses (completed mid...

Hiya, I originally visited my dr complaining of fatigue - she tested my B12 whi...

Emmy2018

•6 years ago

12 Replies

Questioning lab results? Hoping someone can help!

I’m down to getting iron transfusions only monthly now along with b12 injections and don’t seem to have any more energy or I can’t seem to tell or feel any...

I’m down to getting iron transfusions only monthly now along with b12 injections...

Milescircus

•6 years ago

8 Replies

Fatigue just won't go away

I've been SI for four years every other day with methylcobalamin and have seen much improvement, though still bone weary fatigue when I do more than a few...

I've been SI for four years every other day with methylcobalamin and have seen m...

Musicgirlie

•6 years ago

17 Replies

IM injection technique question

When you inject, do you pull back on the needle to see if blood is drawn up? I've seen some advice to do this, but some instructions I've seen skips this step.

When you inject, do you pull back on the needle to see if blood is drawn up? I'v...

cdragin

•6 years ago

12 Replies

B12 levels just revealed, feel it may be pernicious anaemia

Hi everyone, I've had a range of symptoms for a year and a half now including chronic fatigue, pain in muscles and arms, dead arms and legs, joint pain, memory...

Hi everyone, I've had a range of symptoms for a year and a half now including ch...

lookingforanswers1

•6 years ago

1 Reply

Methylcobalamin injection supplies

can people please advise where online they buy their Methylcobalamin ampules for Self injections. thanks Joanne

can people please advise where online they buy their Methylcobalamin ampules for...

jarlethblue

•6 years ago

10 Replies

100 Rotexmedica Hydroxocobalamin ampoules 30% off

At the moment the above are on sale at versandapo.de at €48.19 plus €9.00 courier to U.K. . They are 1mg x1ml ampoules . Best price I’ve seen for ages ....

At the moment the above are on sale at versandapo.de at €48.19 plus €9.00 couri...

wedgewood

•6 years ago

2 Replies

After 2 months

So my daughter has been on Hydroxy Cobalamin jabs for 2 months. Currently on one a week. The improvement has been good even though we have had trouble...

So my daughter has been on Hydroxy Cobalamin jabs for 2 months. Currently on one...

Dadvatar

•6 years ago

4 Replies

Low B12 with neurological symptoms

Hi everyone. My story goes like this. It all started with tingling and numbness in the feet in March,17. It progressed to severe pain in both the feet and also...

Hi everyone. My story goes like this. It all started with tingling and numbness ...

Kish2929

•6 years ago

4 Replies

Hives after B12 injection

I've been having three-monthly B12 injections for almost three years now; a few days ago, for the first time, I had an outbreak of hives about an hour after my...

I've been having three-monthly B12 injections for almost three years now; a few ...

Thalia56

•6 years ago

25 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2018

Use Pre injection swabs - yes or no

Pernicious anaemia and fibromyalgia

Requesting Doctors Appointments?!

Are frequently blue lips a B12 def symptom?

Would you recommend lamberts methyl b complex?

Blood test readings, help required

PA or purely thyroid related?

B12 self injecting

Advice please

Where to dispose of sharps bin?

Unsure I’m getting the right treatment for B12 deficiency

Newsletter symptomami, is still IT PA?

First blood results, now second results

Looking for a Haematology consultant with knowledge of PA

Dangers of misusing Nitrous Oxi

I'm new here - normal (?) B12 levels but low folate - help, I don't know what to think...

PA Testing Questions

Supplies of B12 from Versandapo

B12 Test Results

Please Help Us!!

Repeat b12 blood test after 6 loading doses - desperately need help

Questioning lab results? Hoping someone can help!

Fatigue just won't go away

IM injection technique question

B12 levels just revealed, feel it may be pernicious anaemia

Methylcobalamin injection supplies

100 Rotexmedica Hydroxocobalamin ampoules 30% off

After 2 months

Low B12 with neurological symptoms

Hives after B12 injection

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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