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Pernicious Anaemia Society

31,951 members • 23,091 posts

All posts for July 2023

Obtaining B12 for self-Injection

Having read avidly for many months on this forum I am ready to start self injecting. I did print off a post that covered purchasing how to start etc but in my...

Having read avidly for many months on this forum I am ready to start self inject...

Nonameme

•9 months ago

14 Replies

B12D bloods show positive TPOAb

Hi Guys A few weeks ago, I posted concern over hubby's bloods when GP said all was fine. To cut a long, and sadly not unfamiliar story to you short, I...

Hi Guys A few weeks ago, I posted concern over hubby's bloods when GP said all ...

Wwwdot

•9 months ago

9 Replies

If your doctor worries that too much B12 is toxic, show them this study on ALS & B12

ALS is the same as Lou Gehrig's disease, and is also what Stephen Hawking had. It is a neurodegenerative disease, thought to mostly affect the motor neurons....

ALS is the same as Lou Gehrig's disease, and is also what Stephen Hawking had. ...

jade_s

•9 months ago

12 Replies

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what type of folate to take with b12 injections

Hi I was diagnosed with Pernicious Anaemia in 2017 and am on 8 weekly injections now. I also SI usually once a week. I still have lots of symptoms and...

Hi I was diagnosed with Pernicious Anaemia in 2017 and am on 8 weekly injecti...

Cn13

•9 months ago

5 Replies

PAS Research- a question

Does anyone know what the latest is, regarding the research PAS conducted into why some people need more frequent injectuons than others? It seemed promising?...

Does anyone know what the latest is, regarding the research PAS conducted into w...

Sneedle

•9 months ago

4 Replies

Anyone experience morning hunger but nausea when trying to eat?

Hello, My daughter has asked me to ask if anyone experiences not being able to get food or liquid down in the morning, despite feeling hungry? She gets...

Hello, My daughter has asked me to ask if anyone experiences not being able to ...

Sneedle

•9 months ago

16 Replies

Confused by B12 deficiency symptoms

Good morning from a confused anxious member. After I had my loading shots I tried to persuade my GP to give me more frequent injections due to my neuropathy...

Good morning from a confused anxious member. After I had my loading shots I tr...

Kerrieblue

•9 months ago

17 Replies

Be Careful

Morning everyone, hope you are all well. I have pernicious anaemia and through the years have managed with self injections, resting, eating as well as I could...

Morning everyone, hope you are all well. I have pernicious anaemia and through t...

Miss-guineapig

•9 months ago

32 Replies

PA B12 deficiency

hello l was wondering at what point do you start to feel better after the B12 injections? I have just finished my period of injections every two days. I have...

hello l was wondering at what point do you start to feel better after the B12 in...

Ooopsy

•9 months ago

11 Replies

B12 serum test level of 165(lab normal values 160-899)

Hello.My b12 serum level came back 165 pg/ml that my lab notmal range was(160-899pg/ml). Im 35 yrs male. I have symptoms like sleeppy, brain fog, feel dizzi or...

Hello.My b12 serum level came back 165 pg/ml that my lab notmal range was(160-89...

Emiroskui

•9 months ago

18 Replies

Advice about diarrhoea symptoms please

I have had very little assistance from my GP in relation to my Pernicious Anaemia with gastric parietal cell antibodies diagnosis earlier this year. GP...

I have had very little assistance from my GP in relation to my Pernicious Anaemi...

yorkshiregirl4

•9 months ago

43 Replies

blood results and one mthfr variant - help please 🙏

Hi I have been trying to get my head around all of this and I find it very confusing. Can anyone give their honest opinion on my vitamin levels. I am about...

Hi I have been trying to get my head around all of this and I find it very conf...

Kath2022

•9 months ago

13 Replies

I hate Covid!

So here I am AGAIN with Covid. The last bout was in October last year, so I've had a few clear months this time. When I've had it before, I know that it...

So here I am AGAIN with Covid. The last bout was in October last year, so I've h...

topazrat

•9 months ago

52 Replies

Pelvic Radiation treatment

Previous pelvic radiotherapy risk factor for B12 deficiency20th July 2023 The National Institute for Health and Care Excellence (NICE) have published their...

Previous pelvic radiotherapy risk factor for B12 deficiency20th July 2023 The N...

3rdNettydoon

•9 months ago

15 Replies

B12 deficiency, macrocytosis, and potassium drop

I have macrocytic anemia. My MCV for the past 7 years has hovered around 100. I had one good result of 93 and that was 3 months after getting loading shots...

I have macrocytic anemia. My MCV for the past 7 years has hovered around 100. ...

OriginalSpinach

•9 months ago

10 Replies

Comprehensive Report Card?

Hello, can anyone help me with the following? My son was at a therapist this afternoon. He was given a prick in his finger there, and it came out with this,...

Hello, can anyone help me with the following? My son was at a therapist this aft...

Holland72

•9 months ago

26 Replies

Needles

If I use a 21G 1 1/2 inch needle to draw up and a 30G 1/2 inch needle to inject, is this a good combo? Thanks everyone. X

If I use a 21G 1 1/2 inch needle to draw up and a 30G 1/2 inch needle to inject,...

Hidden

•9 months ago

1 Reply

A massive thank you!

Hi again, I just wanted to say a massive thank you to everyone who has taken the time to answer my questions and provide me with so much valuable information,...

Hi again, I just wanted to say a massive thank you to everyone who has taken the...

Hidden

•9 months ago

52 Replies

Panpharma

Hi , are the ampules from Panpharma 10 x 1ml still available from Vitamin B12 Depot Germany , they were made by a company called Rot...... something years ago...

Hi , are the ampules from Panpharma 10 x 1ml still available from Vitamin B12 De...

wp69

•9 months ago

12 Replies

Teenager with B12 Deficiency - Help

Hi In 2021 my 15 yr old daughter had symptoms of B12 deficiency (sleeping too much, poor appetite, exhausted in sport, depressed, moody) so I had her blood...

Hi In 2021 my 15 yr old daughter had symptoms of B12 deficiency (sleeping too m...

srf831

•9 months ago

9 Replies

Iron deficiency anaemia

I have PA atrophic gastritis,Addisons disease and an under active thyroid ..been so tired have put on a few pounds and on occasions my sinus tachycardia seems...

I have PA atrophic gastritis,Addisons disease and an under active thyroid ..been...

davina70

•9 months ago

16 Replies

Pulse article 11th July re draft guidelines for B12 - gp's comments. Words fail me.

Pulse article 11th July re draft guidelines for B12 Only gp's are allowed to comment!!! Only 3 commented Dave Haddock "NICE possibly...

Pulse article 11th July re draft guidelines for B12 Only gp's are allowed to ...

newlandvale

•9 months ago

55 Replies

Doing your own research

We're all aware of the general ignorance of many health professionals on the topics of B12 and nutrition and their effect on health. This highlights the...

We're all aware of the general ignorance of many health professionals on the top...

Technoid

•9 months ago

5 Replies

Vitamin B12 Injections

Hi, I hope you're all hanging on in there and having a better day than me,,, I have just started a loading dose of 6 Vit B12 injection because I've been...

Hi, I hope you're all hanging on in there and having a better day than me,,, I...

bubbatetley

•9 months ago

31 Replies

NICE Guidelines under review

Hi All It's been a while since I was on this lovely forum and I hope everyone is doing OK. I was discussing B12 with a GP contact the other day who...

Hi All It's been a while since I was on this lovely forum and I hope everyone i...

Pickle500

•9 months ago

48 Replies

Associates and Outpatients

This is a heads up post following a conversation I had with a junior doctor yesterday regarding associate doctors being used in non urgent specialties....

This is a heads up post following a conversation I had with a junior doctor yest...

RoseFlowerDew

•9 months ago

7 Replies

B12 injections

I am new here and need a bit of advice. I ordered the B12 hydrocobalmin today but am struggling to work out what needles I need for subcutaneous injections and...

I am new here and need a bit of advice. I ordered the B12 hydrocobalmin today bu...

Inishfree

•9 months ago

16 Replies

The Level of Serum Pepsinogen in Diagnosing and Evaluating the Severity of Subacute Combined Degeneration Due to Vitamin B12 Deficiency

It's well known that B12 deficiency results in gastrointestinal symptoms, but this is a new twist for me:...

It's well known that B12 deficiency results in gastrointestinal symptoms, but th...

WiscGuy

•9 months ago

5 Replies

Disappointed

I have just returned from a GP appointment to discuss my B12 deficiency and acute gastritis. I waited 7 weeks for this appointment but it’s been of absolutely...

I have just returned from a GP appointment to discuss my B12 deficiency and acut...

Kizzygirl

•9 months ago

33 Replies

Terrified

I’m in a complete mess. In 2011 I was diagnosed with vitamin B12 deficiency, my level was 154 and I also had vitamin D deficiency and iron deficiency at the...

I’m in a complete mess. In 2011 I was diagnosed with vitamin B12 deficiency, my ...

Hayley31

•9 months ago

17 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2023

Obtaining B12 for self-Injection

B12D bloods show positive TPOAb

If your doctor worries that too much B12 is toxic, show them this study on ALS & B12

what type of folate to take with b12 injections

PAS Research- a question

Anyone experience morning hunger but nausea when trying to eat?

Confused by B12 deficiency symptoms

Be Careful

PA B12 deficiency

B12 serum test level of 165(lab normal values 160-899)

Advice about diarrhoea symptoms please

blood results and one mthfr variant - help please 🙏

I hate Covid!

Pelvic Radiation treatment

B12 deficiency, macrocytosis, and potassium drop

Comprehensive Report Card?

Needles

A massive thank you!

Panpharma

Teenager with B12 Deficiency - Help

Iron deficiency anaemia

Pulse article 11th July re draft guidelines for B12 - gp's comments. Words fail me.

Doing your own research

Vitamin B12 Injections

NICE Guidelines under review

Associates and Outpatients

B12 injections

The Level of Serum Pepsinogen in Diagnosing and Evaluating the Severity of Subacute Combined Degeneration Due to Vitamin B12 Deficiency

Disappointed

Terrified

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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