Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for August 2019

No More Anemia. Thrilled

Hey guys, After being deficient for 10 years, I've been on here for the past 4 months struggling with a whole host of b12d issues (left leg muscle wasting,...

Hey guys, After being deficient for 10 years, I've been on here for the past 4 m...

lownskater52

•5 years ago

8 Replies

Help - no joy with ordering

Sorry folk - me again. I have tried and so has my daughter to order from these 2 sites - versandapo.de and mycare.de, I live on an island, my address was a...

Sorry folk - me again. I have tried and so has my daughter to order from these ...

islandlass

•5 years ago

16 Replies

B12 Vials To America

Hi Everyone, I am going to Florida next month I now SI and would like to know if I can take my b12 vials and needles with me in my checked in luggage, tried to...

Hi Everyone, I am going to Florida next month I now SI and would like to know if...

palometa1

•5 years ago

10 Replies

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Diet changes due to low b12

Hey Everyone, I was wondering if anyone has had to limit or exclude certain foods from their diets after being diagnosed with vitamin b12 deficiency? I've had...

Hey Everyone, I was wondering if anyone has had to limit or exclude certain foo...

Emmalee045

•5 years ago

22 Replies

Started b12 injections. Is it normal to feel flushed afterwards?

Hi, Just started injecting b12 two days ago. I'm injecting every other day. Is it normal to feel flushed after injection and the on and off the next day and...

Hi, Just started injecting b12 two days ago. I'm injecting every other day. Is i...

blueivy_4

•5 years ago

11 Replies

Don't know what to do anymore

So I have PA and have done for the past 20+ years due to having a large portion of bowel removed which included the part which absorbs b12. A month ago I...

So I have PA and have done for the past 20+ years due to having a large portion ...

ItsJustMee

•5 years ago

14 Replies

Feeling tired, bloated and uncomfortable.

Hi I’m a newly qualified midwife who after starting a job in April started feeling anxious, depressed, exhausted had difficulty walking and getting up and...

Hi I’m a newly qualified midwife who after starting a job in April started feel...

pepperpot99

•5 years ago

25 Replies

Where can I get methycobalamin injectable to buy in bulk . I live in USA.

I've been buying from a pharmacy with prescription and I pay 140 dollars for only 4 doses. I know they have to ship it with ice to keep in the right...

I've been buying from a pharmacy with prescription and I pay 140 dollars for onl...

FabiMckay

•5 years ago

22 Replies

Help for next appointment

Well I’ve had my loading dose of 6 injections and on folic acid 5mg... I’m feeling absolutely horrendous!! The usual symptoms, nausea, body pain, dry mouth,...

Well I’ve had my loading dose of 6 injections and on folic acid 5mg... I’m feeli...

SMXX

•5 years ago

21 Replies

Is B12 blood test normal once injections have been given?

Hi all, I have non-dietary B12 deficiency with a negative test for IF antibodies. I've been referred to a gastroenterologist to investigate GI problems so no...

Hi all, I have non-dietary B12 deficiency with a negative test for IF antibodies...

Tangerine1990

•5 years ago

3 Replies

How often do you inject Methylcobalamin ?

Methylcobalamin frequency

Freezeframe

•5 years ago

2 Replies

B12 refused until blood test results come back!!!

Hi, should have been having my 8 weekly injection tomorrow, have been told that there is a new protocol, they are insisting that a serum b12 test should be...

Hi, should have been having my 8 weekly injection tomorrow, have been told that...

JoB69

•5 years ago

23 Replies

Can’t concentrate and understand

17 month on a treatment, still unable to concentrate ,can’t understand what one says brain doesn’t work apart from forgetting,tremors and other neurological...

17 month on a treatment, still unable to concentrate ,can’t understand what one ...

Gunj_redjem

•5 years ago

17 Replies

Problems with HealthUnlocked app?

Good morning! I usually view HealthUnlocked on the app for iPhones. Over the last 24 hours I’ve tried to reply to a few posts using the app but each time I’m...

Good morning! I usually view HealthUnlocked on the app for iPhones. Over the la...

JanD236

•5 years ago

2 Replies

Problem ordering b12

Can anyone tell me what to do? Went on site for Versandapo.de followed instructions, got to the cart and found no facility to pay by credit card although it...

Can anyone tell me what to do? Went on site for Versandapo.de followed instructi...

islandlass

•5 years ago

6 Replies

Sell by dates on ampoules

Following the posts discussing the possibility of the supply of ampoules I see that concern is being expressed regarding sell by dates. What happens to the...

Following the posts discussing the possibility of the supply of ampoules I see t...

sueeaton

•5 years ago

5 Replies

Low Ferritin

Hello, I was diagnosed with iron-deficiency anemia and I am Vitamin B12 deficient. I received a blood test in June, and it showed that my ferritin level was a...

Hello, I was diagnosed with iron-deficiency anemia and I am Vitamin B12 deficie...

stovall1992

•5 years ago

44 Replies

GPCAB

What does this stand for please?

Nackapan

•5 years ago

5 Replies

Low stomach acid help

Hi everyone! I have posted before about my digestive issues and I have taken the wonderful advice on here from so many helpful people about taking a good...

Hi everyone! I have posted before about my digestive issues and I have taken the...

liaratsoni

•5 years ago

11 Replies

Hoarse Voice

Does anyone suffer with a hoarse voice and sometime it is lacking in power?

Damseltree

•5 years ago

14 Replies

How much should levels decrease by in 6 months?

Hi all, Earlier this year I was diagnosed as having low b12 (114) so i had the course of 6 boosters. I recently had another blood test and the b12 count came...

Hi all, Earlier this year I was diagnosed as having low b12 (114) so i had the c...

Hidden

•5 years ago

8 Replies

Elevated B12 but no evident reason

Hi. I am 27, male. In January this year I visited the neurologist for headaches (eventually turned out it was neck muscle tension and they disappeared) and I...

Hi. I am 27, male. In January this year I visited the neurologist for headaches ...

andreitom

•5 years ago

20 Replies

Morocco

Does anyone know if I can buy hydroxocobalamin in Morocco?

Lurcher-lady

•5 years ago

3 Replies

Cusack Protocol

I've been self-injecting 1mg hydroxocobalamin frequently for the past year, which has gradually reduced my tingling and fatigue by about 90%. I started with...

I've been self-injecting 1mg hydroxocobalamin frequently for the past year, whic...

genesurf

•5 years ago

3 Replies

Recent blood results from medichecks, please help

They only felt my folate was low.

Suin

•5 years ago

4 Replies

Back pain/spasms

Anyone had back pain/spasms due to b12 deficiency or side effect of injections?

sammisboys

•5 years ago

6 Replies

No hope☹️

I’m almost disabled because of this deficiency have lost all the hope of recovering.. though having frequent SI I’m not working as I keep v unwell,especially...

I’m almost disabled because of this deficiency have lost all the hope of recover...

Gunj_redjem

•5 years ago

18 Replies

B12/hypothyroidism

Hi all was wondering if I could get some advice. Previously posted about low b12 when tested on the 28th June (was 187ng/L (197-771 range) after being...

Hi all was wondering if I could get some advice. Previously posted about low b12...

Gmanfooty

•5 years ago

10 Replies

Dry Mouth

After a few months of B12 treatment I find myself waking up with my tongue stuck to my upper palate, completely dry. I use a rinse for dry mouth before sleep...

After a few months of B12 treatment I find myself waking up with my tongue stuck...

tvellepern

•5 years ago

4 Replies

Advice on sublinguals

Just wondering how ofter i would need to take 1000mcg sublinguals compared to having injections, i am very sensitive to b12 injections and still feel i have a...

Just wondering how ofter i would need to take 1000mcg sublinguals compared to ha...

sbadd

•5 years ago

22 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

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Providing advice on safe sources for self injection

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All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2019

No More Anemia. Thrilled

Help - no joy with ordering

B12 Vials To America

Diet changes due to low b12

Started b12 injections. Is it normal to feel flushed afterwards?

Don't know what to do anymore

Feeling tired, bloated and uncomfortable.

Where can I get methycobalamin injectable to buy in bulk . I live in USA.

Help for next appointment

Is B12 blood test normal once injections have been given?

How often do you inject Methylcobalamin ?

B12 refused until blood test results come back!!!

Can’t concentrate and understand

Problems with HealthUnlocked app?

Problem ordering b12

Sell by dates on ampoules

Low Ferritin

GPCAB

Low stomach acid help

Hoarse Voice

How much should levels decrease by in 6 months?

Elevated B12 but no evident reason

Morocco

Cusack Protocol

Recent blood results from medichecks, please help

Back pain/spasms

No hope☹️

B12/hypothyroidism

Dry Mouth

Advice on sublinguals

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive