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Pernicious Anaemia Society

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All posts for December 2022

B12 question

Why is it that my b12 went from 219 in 2019 to 77 today ? I don’t understand how it went so low as I though b12 stays in your body for at least 5 years ?...

Why is it that my b12 went from 219 in 2019 to 77 today ? I don’t understand how...

Reembow

•1 year ago

84 Replies

enlarged tongue

Does anyone bit their tongue as they fall asleep? I think my tongue is enlarged. Any advice please? My dentist says he doesn't know the answer.

Does anyone bit their tongue as they fall asleep? I think my tongue is enlarged....

lesbud1

•1 year ago

19 Replies

B12 from Germany?

Hello - It's a while since I posted here. I'm trying to buy B12 from Germany; used my previous supplier via Amazon. All went through fine but then received...

Hello - It's a while since I posted here. I'm trying to buy B12 from Germany...

Hidden

•1 year ago

10 Replies

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Strange but true...

Hi Folks.. Thank to all who have given advice and views to what seems to be a huge knowledge gap! Okay, the consensus i have had so far is not to dose up...

Hi Folks.. Thank to all who have given advice and views to what seems to be a ...

Treesong2023

•1 year ago

14 Replies

Alcohol and B12 Injections

Hi guys Apologies for yet another post. But it’s my first B12 Christmas! When I saw the consultants there were no questions asked about alcohol consumption...

Hi guys Apologies for yet another post. But it’s my first B12 Christmas! When...

Wwwdot

•1 year ago

14 Replies

Results

Can anyone make sense of these results for me please? I was ferritin level 6ugL (23-300) in September. It has rose which I'm happy about but I'm still...

Can anyone make sense of these results for me please? I was ferritin level 6ugL ...

Pheebs93

•1 year ago

6 Replies

Protein and B12

The information in this article on protein deficiency seemed interesting to me. It seems like some of the symptoms I was attributing to B12 deficiency symptoms...

The information in this article on protein deficiency seemed interesting to me. ...

WiscGuy

•1 year ago

8 Replies

Protein deficiency and B12?

I was diagnosed with B12 deficiency with neural symptoms in the spring of 2021. After bouncing around in treatment that I later learned was appropriate for...

I was diagnosed with B12 deficiency with neural symptoms in the spring of 2021. ...

WiscGuy

•1 year ago

8 Replies

methylcobalamin

Methylcobalamin B12 is classed as a nutritional supplement. As this form of B12 is not a licensed Prescription Only Medicine (POM), this supplement can...

Methylcobalamin B12 is classed as a nutritional supplement. As this form of B12 ...

tomdickharry

•1 year ago

25 Replies

Which Symptoms Improve First?

Hi all I hope we all had a lovely Christmas! I am now self injecting every other day. 11th dose later today. My questions are: 1. Once reversing out...

Hi all I hope we all had a lovely Christmas! I am now self injecting every oth...

Wwwdot

•1 year ago

8 Replies

Monofer is making me feel crap

Hi, I had an iron infusion 10 days ago as I had Feratin at 10 and low iron transfusions. I am sure in long run it will help me but Monofer is making my life...

Hi, I had an iron infusion 10 days ago as I had Feratin at 10 and low iron tran...

abhishekjoshi9

•1 year ago

5 Replies

Apohealth

Apohealth has panpharma depot in stock but is only allowing me to order one box of ten at a time. Once ordered I refresh the site and it shows ‘sold out’. I...

Apohealth has panpharma depot in stock but is only allowing me to order one box ...

SallyRees

•1 year ago

24 Replies

Merry Christmas

wishing all the people on the page a very happy Christmas and New Year. Thank you for being such a helpful supportive group.

wishing all the people on the page a very happy Christmas and New Year. Thank yo...

Parlay

•1 year ago

2 Replies

Daughter's blood results

Merry Christmas everyone 🎄⛄Following on from my post about my daughter's Vitamin D and Folate deficiency diagnosis, attached are my daughter's blood test...

Merry Christmas everyone 🎄⛄Following on from my post about my daughter's Vitami...

Ritchie1268

•1 year ago

6 Replies

Happy Christmas 🎄

Hope everyone can have the best possible time. Here's hoping for a healthier New year .

Hope everyone can have the best possible time. Here's hoping for a healthier New...

Nackapan

•1 year ago

11 Replies

Ultrasound-guided Perineural Vitamin B12 Injection for Peripheral Neuropathy

While googling yesterday I found this articlehttps://www.sciencedirect.com/science/article/pii/S0929644115000053 Has anyone else heard of this potential...

While googling yesterday I found this articlehttps://www.sciencedirect.com/scien...

MoKayD

•1 year ago

3 Replies

Intrinsic Factorn Antibodies test

Hi, My B12, folate, ferritin and vit d were all really low a few months ago, i've had ferritin infusions, folate and D tablets and am injecting B12 a couple...

Hi, My B12, folate, ferritin and vit d were all really low a few months ago, i'...

fuzzletoff

•1 year ago

3 Replies

Vit Deficiencies - To dose....or not to dose pre new set of tests.

Hello lovely people in here. As my Neurophysiologist strongly suspects I have a Vitamin deficiency / or deficiencies - and it's likely it B12 and the other...

Hello lovely people in here. As my Neurophysiologist strongly suspects I have ...

Treesong2023

•1 year ago

15 Replies

Haematologist or Neurologist..?

Looking over this site in past hours, with all it deep depths of info and experiences... Am I right to think that if I do have a B12 / B9 / Iron deficiency...

Looking over this site in past hours, with all it deep depths of info and exper...

Treesong2023

•1 year ago

23 Replies

information on test results

Haemoglobin. 153 g/L. 120-150 g/L. Total...

Haemoglobin. 153 g/L. 120-150 g/L. ...

Spoticus

•1 year ago

2 Replies

Cyanocobalamin and Antibiotics

Many thanks for the replies on cyanocobalamin. And about the effects of penicillin on B12. One point raised was so true:it takes longer to get better and heal...

Many thanks for the replies on cyanocobalamin. And about the effects of penicill...

Orchard33

•1 year ago

1 Reply

Merry Christmas

Just want to wish everyone a very Happy and Healthy Christmas and a very big thank you for all the help and advice over 2022, lets hope 2023 is a good year...

Just want to wish everyone a very Happy and Healthy Christmas and a very big tha...

pitney

•1 year ago

3 Replies

Tingle Tingle Burn Burn

Hello Folks, . I have had tingling and hot hands and feet for over 18 months. Been v worried about it for ALL that time too. I had a nerve conduction test on...

Hello Folks, . I have had tingling and hot hands and feet for over 18 months. ...

Treesong2023

•1 year ago

12 Replies

Antibiotics and b13

Does anyone have knowledge or experience of effects of amoxycillin on B12 levels? I've just taken a 7 day course, 3x500mg per day, for dental reasons, and feel...

Does anyone have knowledge or experience of effects of amoxycillin on B12 levels...

Orchard33

•1 year ago

9 Replies

can Hevert B12 be injected sun-cutaneously?

As noted in one of today’s threads, a few people mentioned muscle pain, probably from increased intake. (2ml. vs. 1ml) I ordered Hevert from Amazon.de last...

As noted in one of today’s threads, a few people mentioned muscle pain, probably...

EiCa

•1 year ago

6 Replies

Vitamin D, Folate but not B12?

Not been about much lately due to getting busy with the new service I set up, so I hope everyone is well. A few will remember the hassle I had around 18...

Not been about much lately due to getting busy with the new service I set up, so...

Ritchie1268

•1 year ago

9 Replies

Results

Hi can I have advice on these result.please. my gp said that my b12 low and started me on 3 weekly injection for 2 weeks and then retest. They not done any...

Hi can I have advice on these result.please. my gp said that my b12 low and star...

Tinal25

•1 year ago

18 Replies

merry Christmas

Merry Christmas from England everyone. I wish you all the happiness for 2023 with B12 shots in abundance for us all x

Merry Christmas from England everyone. I wish you all the happiness for 2023 w...

Hedgehogs15

•1 year ago

10 Replies

Sensitivity to colbalamin?

Hi. I was diagnosed with PA this year and have been taking daily or EOD B12. Back in March I got dermatitis on the knuckles of both hands. It went away but has...

Hi. I was diagnosed with PA this year and have been taking daily or EOD B12. Bac...

Yervaud

•1 year ago

7 Replies

Merry Christmas! 🎄🧡

Hope I’m not in trouble for an off topic post but I just wanted to wish everyone a very merry Christmas and the happiest and healthiest new year! Lots of...

Hope I’m not in trouble for an off topic post but I just wanted to wish everyone...

SallyRees

•1 year ago

15 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for December 2022

B12 question

enlarged tongue

B12 from Germany?

Strange but true...

Alcohol and B12 Injections

Results

Protein and B12

Protein deficiency and B12?

methylcobalamin

Which Symptoms Improve First?

Monofer is making me feel crap

Apohealth

Merry Christmas

Daughter's blood results

Happy Christmas 🎄

Ultrasound-guided Perineural Vitamin B12 Injection for Peripheral Neuropathy

Intrinsic Factorn Antibodies test

Vit Deficiencies - To dose....or not to dose pre new set of tests.

Haematologist or Neurologist..?

information on test results

Cyanocobalamin and Antibiotics

Merry Christmas

Tingle Tingle Burn Burn

Antibiotics and b13

can Hevert B12 be injected sun-cutaneously?

Vitamin D, Folate but not B12?

Results

merry Christmas

Sensitivity to colbalamin?

Merry Christmas! 🎄🧡

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive