Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,947 members • 23,085 posts

All posts for November 2022

Fed up of my family thinking I am a hypochondriac.

Do any of you have the same problem? They just don't seem to understand that what I have is a life threatening illness. It so annoying. When I describe my...

Do any of you have the same problem? They just don't seem to understand that wha...

charks

•1 year ago

41 Replies

GP stopped B12 injections

I wonder if anyone can advise, I had a blood test in June, the following day I had my regular 10-weekly B12 injection, my blood test result then come back and...

I wonder if anyone can advise, I had a blood test in June, the following day I h...

Squashliv147

•1 year ago

6 Replies

Changes to menstruation during B12 loading therapy?

Hi, I just had my second consult with private consultant (recommended by PA Society and some good folk here) who seems up to speed with current B12 diagnosis...

Hi, I just had my second consult with private consultant (recommended by PA Soci...

Beccy_123

•1 year ago

7 Replies

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worsening neurological symptoms B12 only 3 monthly

I am very concerned re my husbands B12 treatment. After low private blood tests because of neuropathy and word finding issues Gp tested for PA and late onset...

I am very concerned re my husbands B12 treatment. After low private blood tests ...

Helsan

•1 year ago

21 Replies

new here!

hi everyone! New here. Starting injecting daily as my symptoms are pretty bad. Doing 1,000mcg for 90 days then will taper down. I got my b12 from pernicious...

hi everyone! New here. Starting injecting daily as my symptoms are pretty bad. D...

Bloggin

•1 year ago

4 Replies

Help with great nieces blood work please.

I have to start this over. I messed this whole thing up. My niece has low white blood cell count, and some other low readings. I gave her the list of symptoms...

I have to start this over. I messed this whole thing up. My niece has low white ...

EllaNore

•1 year ago

17 Replies

b12deficiancy

b12 deficiency tests the 3 been mentioned before though they escape me right now are not being offered on nhs what do I do ?thanks

b12 deficiency tests the 3 been mentioned before though they escape me right now...

Darwin196

•1 year ago

1 Reply

Testing coming up

I read this helpful info on a forum post here from the admin: “Taking supplements that contain B12 will affect any tests ordered by your doctor to assess your...

I read this helpful info on a forum post here from the admin: “Taking supplemen...

kushami36

•1 year ago

12 Replies

High Neutrophils

I was diagnosed with PA 3 years ago. It runs in my family. I took loading does of methylcobalamin then went to once a month. No doctor ever told me to take...

I was diagnosed with PA 3 years ago. It runs in my family. I took loading doe...

Auburn9144

•1 year ago

10 Replies

low B12 and issues with loading dose- do I go back to GP?

Hi everyone, I am new here so just learning how to navigate the site but seen some really useful posts already! I went to GP with lots of symptoms but the...

Hi everyone, I am new here so just learning how to navigate the site but seen so...

Crazycatlady82

•1 year ago

3 Replies

B12 shortage and anti-body test?

Hi, I would really appreciate some advice. I rang my GP surgery today to book my routine 12 weekly appointment for my B12 injection only to be told there’s...

Hi, I would really appreciate some advice. I rang my GP surgery today to book...

JodieLouise

•1 year ago

10 Replies

bb12 loading dose

hhas anyone felt like they have been hit by a bus after the first shot of loading dose. I feel so I'll and my whole.bidy feels like lead. Feel like I need to...

hhas anyone felt like they have been hit by a bus after the first shot of loadin...

mabs79

•1 year ago

11 Replies

Help please

Hi I am writing for some help with helping my daughter. Back in July she had blood tests done as she suffers with lots of symptoms and also has had am...

Hi I am writing for some help with helping my daughter. Back in July she had blo...

BumbleBumps

•1 year ago

41 Replies

Diffuse mild atrophic gastitis.

Following an endoscopy was told I have this condition.Is this the same as intestinal metaplasia or have I not progressed that far yet.

Following an endoscopy was told I have this condition.Is this the same as intest...

Helliborous

•1 year ago

2 Replies

Iron Infusion

Hey everyone,I have spoken to an out of hours doctor today. Who has sent a request to the GP to refer me to have an iron infusion. Can I ask what to expect?...

Hey everyone,I have spoken to an out of hours doctor today. Who has sent a reque...

Pheebs93

•1 year ago

2 Replies

Feeling worse after B12 Injections

Hi all, I am a 21 y/o male who eats meat and was diagnosed with a B12 deficiency (not PA) about 2 months ago. I went into the walk-in about 3 months ago with...

Hi all, I am a 21 y/o male who eats meat and was diagnosed with a B12 deficienc...

juanpablo111

•1 year ago

26 Replies

HELP Low B12 low ferretin, low folate and low iron

I have had issues with my iron levels for quite a few years. I have tried several supplements and am on iron liquid ferrous fumurate at the moment but still...

I have had issues with my iron levels for quite a few years. I have tried sever...

mabs79

•1 year ago

51 Replies

Been to the GP.

Hello everyone,I went to the GP after still feeling really ill. Dizziness, heart palpitations and fatigue along with low mood and anxiety. I had a blood test...

Hello everyone,I went to the GP after still feeling really ill. Dizziness, heart...

Pheebs93

•1 year ago

3 Replies

only allowed 6 monthly B12 injection

Sorry this is a bit long winded but I would like some help at my wits end over my thyroid and B12 .I used to have B 12 injection every 8 weeks but after a NHS...

Sorry this is a bit long winded but I would like some help at my wits end over m...

Sandracoull2

•1 year ago

13 Replies

Oral B12 as effective as injection even in PA patients - does anyone have experience to support this?

I saw a haematologist because of my reaction to the first two B12 injections (previous post). Haematologist wanted to put me on oral B12 because “ … the more...

I saw a haematologist because of my reaction to the first two B12 injections (pr...

Wwwdot

•1 year ago

87 Replies

Got an injection, questions on supplementing

Very recent and first time B12 deficient. For those wonderful people that read and helped me on my main post, I finally got an injection! 40 male, meat eater...

Very recent and first time B12 deficient. For those wonderful people that read ...

Tarkettjim

•1 year ago

5 Replies

Coolness in feet, legs and one side of neck - Could it be nerve healing?

Hi and thanks for reading my post! I'm approaching 1 year of B12 injections and in the last week or two I've been having some occasional coolness in my feet,...

Hi and thanks for reading my post! I'm approaching 1 year of B12 injections an...

Cobalt1312

•1 year ago

4 Replies

Turn off "Redirect Notice"

Is there any way to turn off that notice that tells you "Looks like you clicked 'www.xxxxx.com' If you do not want to visit that page, you can close this...

Is there any way to turn off that notice that tells you "Looks like you clicked ...

SouthSounder

•1 year ago

4 Replies

supplementing with folinic acid

Hi everyone! How much folinic acid should one be supplementing when self injecting b12 daily? Thanks so much!

Hi everyone! How much folinic acid should one be supplementing when self injec...

Skingal74

•1 year ago

10 Replies

British story vaguely about B12 and dementia

I ran across this recent news story while looking for something else, and since it's in (I think) a British publication, some people here might be interested....

I ran across this recent news story while looking for something else, and since ...

WiscGuy

•1 year ago

13 Replies

Ordering B12 depot

Hi all, I needed to replenish my B12 stocks for self-injecting. Fortunately, I've enough for the next couple of months. I've previously used Versandpo.de,...

Hi all, I needed to replenish my B12 stocks for self-injecting. Fortunately, I...

KBird01

•1 year ago

17 Replies

Thank you

Thanks to everyone for the advice & encouragement ! Don't know what I'd do without this group

Thanks to everyone for the advice & encouragement ! Don't know what I'd do witho...

Monbretia

•1 year ago

1 Reply

low homocysteine

Hello Has anyone ever had a homocysteine results below the reference range? My results were <5, with the normal range as 5-15. I really wasn’t expecting that...

Hello Has anyone ever had a homocysteine results below the reference range? My ...

Sparklyjenson

•1 year ago

12 Replies

b12 availability?

I have been advised to have B9/folate. How would I know B12 levels are ‘available’?

I have been advised to have B9/folate. How would I know B12 levels are ‘availabl...

PaulaG3

•1 year ago

8 Replies

GP refusing to offer IFAB Test

I recently requested and Intrinsic Factor Antibody test with my GP and was told there's no need to do this test if my Parietal Cell antibody test was...

I recently requested and Intrinsic Factor Antibody test with my GP and was told ...

cloudspotting

•1 year ago

15 Replies

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2022

Fed up of my family thinking I am a hypochondriac.

GP stopped B12 injections

Changes to menstruation during B12 loading therapy?

worsening neurological symptoms B12 only 3 monthly

new here!

Help with great nieces blood work please.

b12deficiancy

Testing coming up

High Neutrophils

low B12 and issues with loading dose- do I go back to GP?

B12 shortage and anti-body test?

bb12 loading dose

Help please

Diffuse mild atrophic gastitis.

Iron Infusion

Feeling worse after B12 Injections

HELP Low B12 low ferretin, low folate and low iron

Been to the GP.

only allowed 6 monthly B12 injection

Oral B12 as effective as injection even in PA patients - does anyone have experience to support this?

Got an injection, questions on supplementing

Coolness in feet, legs and one side of neck - Could it be nerve healing?

Turn off "Redirect Notice"

supplementing with folinic acid

British story vaguely about B12 and dementia

Ordering B12 depot

Thank you

low homocysteine

b12 availability?

GP refusing to offer IFAB Test

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive