Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,197 members • 23,368 posts

All posts for May 2016

Here I go again

If you haven't already signed please go to https://you.38degrees.org.uk/petitions/petition-pernicious-anaemia-remove-restrictions-on-vitamin-b12-jabs and sign...

If you haven't already signed please go to https://you.38degrees.org.uk/petition...

jillc39

•8 years ago

3 Replies

Is my ferritin low enough to cause my symptoms????

I have posted here before but looking for some help .... my ferritin level was 17 in a range of 11 - 309 ..... I have horrible light headedness most of the...

I have posted here before but looking for some help .... my ferritin level was 1...

tootsiebella

•8 years ago

11 Replies

b12

hi, im new to this. My gp as tested my blood for b12 it as come back as 188 and said its normal...im suffering really bad with sweating,fast heart,shaking,pins...

hi, im new to this. My gp as tested my blood for b12 it as come back as 188 and ...

katbalou

•8 years ago

3 Replies

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Blood test results..

Bit of recent history: in March I got 10 injections over the course of 6 weeks (3x a week for 2 weeks then 1x a week for 4 weeks) and I got my bloods done...

Bit of recent history: in March I got 10 injections over the course of 6 weeks ...

KCxo

•8 years ago

7 Replies

Bad ears

For about a week, I've been suffering ear problems. It started with a dull ache which affected my hearing, it was like my ears were full of liquid then a...

For about a week, I've been suffering ear problems. It started with a dull ache ...

Bentleyboo

•8 years ago

3 Replies

Frustrated..

I'm so worried about my Dad, he's 78 has diabetes, has had triple heart bypass, takes 30 prescribed tablets from Dr's and has sickness, dhioreaweight loss,...

I'm so worried about my Dad, he's 78 has diabetes, has had triple heart bypass, ...

TAB100

•8 years ago

10 Replies

Tummy issues?

I'm on day 6 of water like diarreah I'm starting to think this a symptom rather than a "bug" no one else is ill (I have 5 kids) and I'm so weak! I feel like my...

I'm on day 6 of water like diarreah I'm starting to think this a symptom rather ...

Pixiefae

•8 years ago

4 Replies

More injections required- any tips?

I have been getting b12 injections every 8 weeks for about 3 years after a struggle with the GP. I have now changed jobs and moved areas the new GP won't...

I have been getting b12 injections every 8 weeks for about 3 years after a strug...

Gilly

•8 years ago

11 Replies

DIFFERENCES IN ALL OF US !

DIFFERENCE IS THOSE IN SURGERIES ANDS THOSE IN HOSPITALS - THEY NEED TO AMALGAMATE FROM WHAT HAS BEEN MY EXPERIENCE !

DIFFERENCE IS THOSE IN SURGERIES ANDS THOSE IN HOSPITALS - THEY NEED TO AMALGAMA...

friends38

•8 years ago

8 Replies

Learn to Help Yourself First !

3 YEARS OF FRUSTRATION BUT LEARNED TO DIAGNOSE MYSELF ! I now know for certain that many doctors in local surgeries are NOT aware of many medical problems with...

3 YEARS OF FRUSTRATION BUT LEARNED TO DIAGNOSE MYSELF ! I now know for certain t...

friends38

•8 years ago

10 Replies

More injections,spots and memory problems!

Hi again! Quick update.....had my six jabs,usually feel worse then a bit better after them so bit of a roller coaster right now. Seems I have a decent...

Hi again! Quick update.....had my six jabs,usually feel worse then a bit better ...

Janee635

•8 years ago

9 Replies

Questions about Self-Injecting - feeling unwell

I have a few questions about self-injecting and really hoping you can help. Trying to find this out as feeling pretty unwell. 1) I heard to use...

I have a few questions about self-injecting and really hoping you can help. Tryi...

briskate

•8 years ago

5 Replies

Iron infusions and anaemia.

I have hypothyroidism, parietal cell auto antibodies and microcytic blood cells. Some experts are saying that means I have pernicious anaemia and others are...

I have hypothyroidism, parietal cell auto antibodies and microcytic blood cells....

Goditha1970

•8 years ago

25 Replies

PA and menopause.

I had a gastric surgery 5 years ago and as such was told I needed b12 for life - my new GP however keeps refusing injections and told me I was fine. Recently...

I had a gastric surgery 5 years ago and as such was told I needed b12 for life -...

Pixiefae

•8 years ago

10 Replies

Blood tests: How far out of 'normal range' is 'normal'?

Hello, I'm 28 years old and have been feeling really ill for about 7 or 8 years. My symptoms include: Feeling exhausted all the time headaches,...

Hello, I'm 28 years old and have been feeling really ill for about 7 or 8 years...

Sick-and-Tired

•8 years ago

19 Replies

pa and the menopause

hi i'm new here but looking for some opinions!i have been having b12 injections for about 14 yrs now.havnt had a period for nearly 12 months,im 47 so guessing...

hi i'm new here but looking for some opinions!i have been having b12 injections ...

jackie212

•8 years ago

4 Replies

B12 Really high a year after injections were stopped Help please

Hi please could someone advise if possible please ? I haven't been diagnosed with PA but was receiving B12 injections for pheripheral Neuropathy and they...

Hi please could someone advise if possible please ? I haven't been diagnosed wit...

lynnwin

•8 years ago

22 Replies

P.A. advice please

I am hoping for reassurance. Several members of my family have P.A. My husband and three of my daughters and two grand-daughters. There is lots of other stuff...

I am hoping for reassurance. Several members of my family have P.A. My husband a...

linda1946

•8 years ago

3 Replies

How long have I had PA?...

I've just this week head my first B12 injection yesterday. But I can't help wondering if the symptoms I've been suffering for forty five years may be related....

I've just this week head my first B12 injection yesterday. But I can't help wond...

IzzyMadd

•8 years ago

55 Replies

PA or something else??

Hi there I'm 26 years old, used to be healthy and active, now have been living with chronic pain for at least 9 months that has completely zapped my life...

Hi there I'm 26 years old, used to be healthy and active, now have been living w...

Checcistar

•8 years ago

14 Replies

My B12 is 209...........

My B12 result is 209 (the range says 180.00-900). Am I likely to be able to get B12 injections from an NHS GP with this result if I ask or am I likely to have...

My B12 result is 209 (the range says 180.00-900). Am I likely to be able to get ...

briskate

•8 years ago

22 Replies

Help please with interpreting my blood results

Hi Does these results indicate PA? Biochemistry CRP Result H 9.60 Normal range- less than 5 Units mg/L Ferritin 78.9 20-150 ug/L Thyroid Function TSH 2.94...

Hi Does these results indicate PA? Biochemistry CRP Result H 9.60 Normal range...

Houndy

•8 years ago

2 Replies

B12 of 152 duty gp can't be bothered

I been told by the med receptionist my b12 measured 152 I have so many symptoms I feel like I don't really matter one of gp in practise can't be bothered told...

I been told by the med receptionist my b12 measured 152 I have so many symptoms ...

margie70

•8 years ago

10 Replies

Got it early

Well I bit the bullet and phoned GP .. told him I was flying to America to get married and said could I have my jab early ... no arguments I had it...

Well I bit the bullet and phoned GP .. told him I was flying to America to get ...

catherinejordan

•8 years ago

5 Replies

What are the symptoms of PA?

Hi everyone, This sounds strange, considering I have been diagnosed with pernicious anaemia for three years - but I have multiple auto immune diseases, and I...

Hi everyone, This sounds strange, considering I have been diagnosed with pernici...

anniesensi

•8 years ago

40 Replies

Eeek...Where do I go from here?.. totally unexpected B12 test result...

Well this is my latest news and problem... I have been suffering from symptoms of B12 deficiency for many years.. I have a family history of Penicious Anaemia...

Well this is my latest news and problem... I have been suffering from symptoms ...

Cybrook

•8 years ago

24 Replies

Feeling Lost. Why is there no medical help?

Hi. You all seem so knowledgeable and helpful. I am hoping you can help me feel a bit more hopeful about things. I have been feeling unwell for more than a...

Hi. You all seem so knowledgeable and helpful. I am hoping you can help me feel ...

Nyomi

•8 years ago

28 Replies

B12 supplementation and adrenaline rush

I'm currently using B12 patches whilst i wait for my blood results and have noticed that I get a massive adrenaline rush every once in awhile - almost like I'm...

I'm currently using B12 patches whilst i wait for my blood results and have noti...

steviep43

•8 years ago

3 Replies

B12 results

Hey so I've just come back from the doctors with an updated b12 level count, it's at 546 now, 7 weeks ago it was 179, i still have symptoms of low b12 and was...

Hey so I've just come back from the doctors with an updated b12 level count, it'...

Nathan12345

•8 years ago

8 Replies

Terrible pain in joints

I have been taking Jarrow B12 5000 for about 6 weeks but now I have terrible pain in my joints. I have history of this but it is getting worse could there be...

I have been taking Jarrow B12 5000 for about 6 weeks but now I have terrible pa...

Jay-46

•8 years ago

10 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2016

Here I go again

Is my ferritin low enough to cause my symptoms????

b12

Blood test results..

Bad ears

Frustrated..

Tummy issues?

More injections required- any tips?

DIFFERENCES IN ALL OF US !

Learn to Help Yourself First !

More injections,spots and memory problems!

Questions about Self-Injecting - feeling unwell

Iron infusions and anaemia.

PA and menopause.

Blood tests: How far out of 'normal range' is 'normal'?

pa and the menopause

B12 Really high a year after injections were stopped Help please

P.A. advice please

How long have I had PA?...

PA or something else??

My B12 is 209...........

Help please with interpreting my blood results

B12 of 152 duty gp can't be bothered

Got it early

What are the symptoms of PA?

Eeek...Where do I go from here?.. totally unexpected B12 test result...

Feeling Lost. Why is there no medical help?

B12 supplementation and adrenaline rush

B12 results

Terrible pain in joints

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