Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

33,417 members•24,592 posts

All posts for February 2025

The oral microbiome and whole body health

The following discussion on Apple Podcasts may interest you. https://podcasts.apple.com/gb/podcast/the-whole-health-podcast/id1773284803?i=1000696511317 It’s...

The following discussion on Apple Podcasts may interest you. https://podcasts.a...

MorningMist

•2 months ago

3 Replies

Just joined

I am a bit clueless doing this but I have been worried about B12 and needed, I guess some supportI was first diagnosed with very low B12 about 15 years ago....

I am a bit clueless doing this but I have been worried about B12 and needed, I g...

Hidden

•2 months ago

45 Replies

Blood Test Results

Hiya Everyone! It's been a very long time since I've posted, but please know I read you daily. As a refresher, I have autoimmune metaplastic atrophic...

Hiya Everyone! It's been a very long time since I've posted, but please know I ...

LynetteinUSA

•2 months ago

6 Replies

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Guidance please. GP not helping.

From what I can gather given the below blood tests it appears that I am definitely B12 deficient and I have been advised that I should start B12 injections...

From what I can gather given the below blood tests it appears that I am definite...

bflare

•2 months ago

4 Replies

Lozenge for Hoarseness

Greetings all! I hope this post finds you well, I am so grateful for this community. I wanted to share something I have found more recently that helps me a...

Greetings all! I hope this post finds you well, I am so grateful for this commun...

Cobalt1312

•2 months ago

12 Replies

questions about next steps please

I am hypothyroid but clearly having issues with keeping b12, folate and ferritin up if I don’t supplement with high doses. I have been having symptoms of...

I am hypothyroid but clearly having issues with keeping b12, folate and ferritin...

haggisplant

•2 months ago

6 Replies

Interesting article ......

Not sure whether this has been posted already. If so, I apologise. If not, I think it's an interesting read, and a step in the right...

Not sure whether this has been posted already. If so, I apologise. If not, I thi...

BeachArt

•2 months ago

5 Replies

Advice please

My great aunt had pernicious anaemia which we've only just discovered from her death certificate. I have consistently low vitamin D, B12 and folate (my GI...

My great aunt had pernicious anaemia which we've only just discovered from her d...

Oliver27

•2 months ago

17 Replies

Daughter’s B12 results

Hello, I’m hoping someone can help and give me some advice. My 16 year old daughter is having a very difficult time at the moment and has been increasingly...

Hello, I’m hoping someone can help and give me some advice. My 16 year old daug...

GussyG

•2 months ago

45 Replies

How to get GP to order B-12 injections?

I believe I would benefit from B-12 Injections. How do I express this to my family Dr.?

I believe I would benefit from B-12 Injections. How do I express this to my f...

Savvyme1

•2 months ago

12 Replies

B12 injection impact on test results

Hello …. FYI After struggling with my own test results for cholesterol etc I was reminded of this data sheet for B12 injections which I came across as a...

Hello …. FYI After struggling with my own test results for cholesterol etc I w...

Rosydawn

•2 months ago

11 Replies

Electric shock sensations

Hi, Just wondered if other PA sufferers still get electric shock sensations even though your having the injection? I went for years having these sensations...

Hi, Just wondered if other PA sufferers still get electric shock sensations eve...

Tictak

•2 months ago

23 Replies

Homocysteine finally in optimal range

This isn’t really of interest to others but I’m just so excited. 😊 My latest homocysteine results were just uploaded and after 8 years of having severely...

This isn’t really of interest to others but I’m just so excited. 😊 My latest h...

Perniciousgirl

•2 months ago

28 Replies

medichecks results

can anyone tell me what 34.3 pmol/L means. This is my B12 reading from a recent test but everything online is in pg/ml so I’m not sure how low this is. I’m...

can anyone tell me what 34.3 pmol/L means. This is my B12 reading from a recent...

Lola246

•2 months ago

26 Replies

Just out of interest. Has anyone else got Creeping Fat around their intestines ? ? ? 😱

People that know me on the forum will know it's been a long wait to be screened by a gastologist. After a Gastroscopy and Colonoscopy plus an MRI Crohns...

People that know me on the forum will know it's been a long wait to be screened ...

Jillymo

•2 months ago

19 Replies

NICE GUIDELINES

I have just read this and am interested to hear more.... "The BP directs that when vitamin B12 injection is prescribed or demanded,...

I have just read this and am interested to hear more.... "The BP directs that w...

tomdickharry

•2 months ago

5 Replies

FND diagnosis

my 15 year old is being diagnosed with Functional neurological disorder FND for short, she has been collapsing with non epileptic seizures. Does anyone know...

my 15 year old is being diagnosed with Functional neurological disorder FND for ...

Lowbattry03

•2 months ago

19 Replies

An Interesting Article

Thought I'd share this article about the need for above normal levels of B12 in the elderly....

Thought I'd share this article about the need for above normal levels of B12 in ...

MoKayD

•2 months ago

13 Replies

A new form of injectable B12

This is interesting, from September 2023, but no sign of it coming into production...

This is interesting, from September 2023, but no sign of it coming into producti...

Myoldcat

•2 months ago

2 Replies

New research - B12 levels and cognitive decline

This isn't the actual research paper, but an article about it. A link to the full study may already have been posted here. An American study shows that even...

This isn't the actual research paper, but an article about it. A link to the ful...

Myoldcat

•2 months ago

1 Reply

Research article

Vitamin B12 Levels Association with Functional and Structural Biomarkers of Central Nervous System Injury in Older Adults...

Vitamin B12 Levels Association with Functional and Structural Biomarkers of Cent...

PlatypusProfit8077

•2 months ago

10 Replies

Hypophosphatemia from b12 injections

Has anyone else experienced Hypophosphatemia from b12 injections ? Did lowering dose or frequency help or rather more intake ?

Has anyone else experienced Hypophosphatemia from b12 injections ? Did lowering...

Perniciousgirl

•2 months ago

16 Replies

Medichecks survey

I had an email from Medichecks today with a survey asking about times when I felt that the medical profession had not listened to or treated me properly. So, I...

I had an email from Medichecks today with a survey asking about times when I fel...

topazrat

•2 months ago

6 Replies

Palpitations

Hi..does any body who self injects b12 had a onset of palpations afterwords

Mozza127

•2 months ago

3 Replies

Hashimoto and PA

Hi, All. I was dx with hashimoto 25 years ago. Started on 25 mcg levothyroxin and 20 plus years later my dose was 150. I started SI 2 years ago. I've made tons...

Hi, All. I was dx with hashimoto 25 years ago. Started on 25 mcg levothyroxin an...

Iheartb12

•2 months ago

2 Replies

Cyanocobalamin vs hydroxocobalamin

A common question among people with vitamin B12 deficiency is whether there is a difference between cyanocobalamin and hydroxocobalamin in the treatment of B12...

A common question among people with vitamin B12 deficiency is whether there is a...

WiscGuy

•2 months ago

6 Replies

Neurology appointment update

Went to see my neurologist today due tp my continuing neuro symptoms and she is confused as to why my gp has stopped my injections and the symptoms have...

Went to see my neurologist today due tp my continuing neuro symptoms and she is ...

Hgsn

•2 months ago

4 Replies

Italians are on the brain

https://www.mdpi.com/1422-0067/25/1/590 This article is a bit beyond my weary synapses, but it gives a good overview of the recent (2023) knowledge on what...

https://www.mdpi.com/1422-0067/25/1/590 This article is a bit beyond my weary sy...

Oneash

•2 months ago

6 Replies

Help needed please

I'm in the middle of getting my B12 NHS prescription sorted .During which time the G.p has 'allowed ' my B12 injections. Although repeat prescription...

I'm in the middle of getting my B12 NHS prescription sorted .During which time t...

Nackapan

•2 months ago

8 Replies

My B12 PA - Intrinsic factor missing story, so far...

My B12 Pernicious Anaemia (PA) / Intrinsic Factor deficiency would apear to be generational / DNA related, my grandmother suffered from it and way back then...

My B12 Pernicious Anaemia (PA) / Intrinsic Factor deficiency would apear to be g...

WotNotAgainM8

•2 months ago

4 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2025

The oral microbiome and whole body health

Just joined

Blood Test Results

Guidance please. GP not helping.

Lozenge for Hoarseness

questions about next steps please

Interesting article ......

Advice please

Daughter’s B12 results

How to get GP to order B-12 injections?

B12 injection impact on test results

Electric shock sensations

Homocysteine finally in optimal range

medichecks results

Just out of interest. Has anyone else got Creeping Fat around their intestines ? ? ? 😱

NICE GUIDELINES

FND diagnosis

An Interesting Article

A new form of injectable B12

New research - B12 levels and cognitive decline

Research article

Hypophosphatemia from b12 injections

Medichecks survey

Palpitations

Hashimoto and PA

Cyanocobalamin vs hydroxocobalamin

Neurology appointment update

Italians are on the brain

Help needed please

My B12 PA - Intrinsic factor missing story, so far...

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