Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,947 members • 23,085 posts

All posts for May 2015

Reaching end of fuse...

b12 level 140 Iron deficient as well Was severely Vitamin D deficient a year ago and am only scrapping into normal range even after taking twice RDA...

b12 level 140 Iron deficient as well Was severely Vitamin D deficient a year ago...

•9 years ago

Help With Blue Horizon Results

I hope someone will comment on my latest results, shown as an attachment. My previous results below lead me to have these further tests on the advice of some...

I hope someone will comment on my latest results, shown as an attachment. My pre...

•9 years ago

Can anyone interpret my blood test results please?

Finally got my GP to email my blood results - after being told it would cost me 50p a sheet to have them printed out! Although some results are "within the...

Finally got my GP to email my blood results - after being told it would cost me ...

•9 years ago

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Sublingual spray

Hi does anyone know if it's ok to take the methylcobalamin spray in between one monthly injections of hydrocobalamin? And if so has anyone found that it helps?...

Hi does anyone know if it's ok to take the methylcobalamin spray in between one ...

•9 years ago

What to ask hematologist?

Hi everyone! I am finally getting in with a hematologist next week. I feel like this is my chance to really talk with someone who might know why my B12 is low....

Hi everyone! I am finally getting in with a hematologist next week. I feel like ...

•9 years ago

getting active b12 test done

I am seriously thinking about sending away to get an active b12 test done, at St Thomes's Hospital. I had my last jag 8 weeks ago, am due my next on 3rd june...

I am seriously thinking about sending away to get an active b12 test done, at St...

•9 years ago

haematologist needed

Hi everyone, I put a post up the other day asking if anyone had the name of a Scottish Haematologist who actually knows what they are doing!! It has to be...

Hi everyone, I put a post up the other day asking if anyone had the name of a Sc...

•9 years ago

B12 now high but symptoms persist

Hi, I would appreciate some advice from people experienced in PA please. after initial loading and one year of 12 weekly jabs of hydroxocobalamin, I stopped...

Hi, I would appreciate some advice from people experienced in PA please. after i...

•9 years ago

anaemia iron deficiency

i have this iron deficiency and do eat cannot get out head i have this but is really horrible started on tabs and eat as normal all my bones are killing me...

i have this iron deficiency and do eat cannot get out head i have this but is ...

•9 years ago

High b12 with injections

Have posted before, but need to know a couple of things. My daughter had her b12 tested (again) on the day she had her injection, (before jab). She was unwell...

Have posted before, but need to know a couple of things. My daughter had her b12...

•9 years ago

Does this mean it isn't b12?

Hiya, After my last visit to the haematologist I did email him and ask him to test my MMA and homocysteine levels. I didn't get a response until today and...

Hiya, After my last visit to the haematologist I did email him and ask him to t...

•9 years ago

Questions about pernicious anemia

Does anyone know if PA symptoms will ever go away with treatment? I self inject cycancobalamin every two weeks and while I do have more energy I still have...

Does anyone know if PA symptoms will ever go away with treatment? I self inject...

•9 years ago

Injections every ten weeks

Thank you all. My Dr finally listened, I took all the info off this site and told him I can't cope with injections every three months, after years of pleading...

Thank you all. My Dr finally listened, I took all the info off this site and tol...

•9 years ago

a haematologist who knows about PA?

Hi guys, my GP is as helpful as he thinks he is allowed to be in that he lets me have a jag every 8 weeks. He sent me to a haema who was downright awful, cant...

Hi guys, my GP is as helpful as he thinks he is allowed to be in that he lets me...

•9 years ago

Anyone tried Tiromel?

I have just received ten boxes of the T3 brand Tiromel through the post. Previously I have taken Cytomel and found it to be excellent but I cannot get it any...

I have just received ten boxes of the T3 brand Tiromel through the post. Previo...

•9 years ago

Intrinsic factor abs(levels explained)

Finally a straight answer...? https://www.beckmancoulter.com/wsrportal/bibliography?docname=9075e_IntrinFac_Ab.pdf

Finally a straight answer...? https://www.beckmancoulter.com/wsrportal/bibliogr...

•9 years ago

B12 levels

Hi again, 10 weeks ago after 5 injections my B12 levels were report to have gone from 113 to 'over 2000' it took a few weeks to begin to feel better but over...

Hi again, 10 weeks ago after 5 injections my B12 levels were report to have gone...

•9 years ago

can I have my inj every eight weeks instead of every twelve?? My Dr says not.

Please help my Dr says I can only have my injections every twelve weeks as it's dangerous to have them any closer together, but by week ten I am on my knees...

Please help my Dr says I can only have my injections every twelve weeks as it's ...

•9 years ago

Neurologist specialising in PA?

Hi all, Does anyone happen to know of a decent neurologist who specialises in Pernicious Anaemia or at least understands it well? Or a neurologist who does...

Hi all, Does anyone happen to know of a decent neurologist who specialises in P...

•9 years ago

B12 and contraception

Does the contraceptive pill affect b12 at all. Does it cause any problems with absorbing it properly or affect symptoms etc.

Does the contraceptive pill affect b12 at all. Does it cause any problems with a...

•9 years ago

Self injecting advice needed

I received bottle methylcobalamin from B12 charity. it is 1mg so 1ml per injection. I want to try SC injections as I have nobody to show me and worried about...

I received bottle methylcobalamin from B12 charity. it is 1mg so 1ml per injecti...

•9 years ago

results

hi im new here and dont know if my test results are normal or not ,come back at 433 ,but having symptoms ,my dr says normal results. i have low ferritin was 9...

hi im new here and dont know if my test results are normal or not ,come back at ...

•9 years ago

B12 testing

Oh well this might be really stupid question, but I will ask it anyways :P I have order from doctor to get my b12 levels tested again. I had first test on...

Oh well this might be really stupid question, but I will ask it anyways :P I h...

•9 years ago

Be the first to reply

23andme results back.

I've ran them through geneticgenie (and made a donation to the site 😇). I can see all my methylation mutations - 3 homozygous and 11 heterozygous and there is...

I've ran them through geneticgenie (and made a donation to the site 😇). I can s...

•9 years ago

Could this be a thyroid or vitamin deficiency?

I have all symptoms of b12 deficiemcy. I also have voting deficiency. Results were 25. But my serum test for b12 read normal. I have no energy I'm exhausted...

I have all symptoms of b12 deficiemcy. I also have voting deficiency. Results we...

•9 years ago

making sense of blood results..

I got my last three years of bloods from the nurse today when I went for my b12 injection.(It was suggested to me on here that I should to keep...

I got my last three years of bloods from the nurse today when I went ...

•9 years ago

Anxiety Attacks

Hi my son was diagnosed B12 deficient last year, he suffered extreme neurological symptoms, he wasn't prescribed folic acid along with his injections, Last...

Hi my son was diagnosed B12 deficient last year, he suffered extreme neurologica...

•9 years ago

What do my test results mean?

I posted before about my B12 levels and my genetic profile and I have a few questions which I would be very grateful for your help on. Here goes: My...

I posted before about my B12 levels and my genetic profile and I have a few ques...

•9 years ago

I'm B12 Deficient.. PA

Hi PAS, I'm B12, Deficient; and have had my third loading injection, 3, more to follow this coming week. My blood test was B12 - 136 - (180 - 900) Folate...

Hi PAS, I'm B12, Deficient; and have had my third loading injection, 3, more t...

•9 years ago

Were you at b12deficiency.info conference?

Hi, I know a couple of people posted they were going to the conference on May 16th. Was it interesting? http://www.b12deficiency.info/conference

Hi, I know a couple of people posted they were going to the conference on May 1...

•9 years ago

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