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Pernicious Anaemia Society

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All posts for June 2014

I have positive GCAs therefore presumably low gastric acid? Would it be helpful to take an acid substitute with meals eg cider vinegar.

Would vinegar assist with absorption of iron and other nutrients?

megan17

•10 years ago

2 Replies

Methylcobalamin

Hi everyone. I'm going to France and Spain at the end of this week and want to buy some cobalamin over the counter. If I find some methylcobalamin, would I be...

Hi everyone. I'm going to France and Spain at the end of this week and want to b...

ednotdave

•10 years ago

6 Replies

Hi every one, I had a lot of pain in both legs and feeling very tried all of the time, can't work at the mon. any help please.

Jane123

•10 years ago

3 Replies

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Have low normal b 12. Pos in f antibody test dx with ibs D 15 years ago fibromyalgia 10 yrs ago. High bp and tachycardia. Are they all PA

Maureen1122

•10 years ago

1 Reply

Calling G.Ps!!!

Could any G.P. explain the difficulty in prescribing enough B12 injections to alleviate symptoms of Pernicious Anaemia? My normally very kind and understanding...

Could any G.P. explain the difficulty in prescribing enough B12 injections to al...

wedgewood

•10 years ago

6 Replies

Diagnosis

Hi, everyone. Apologies for what is probably a usual post. I was diagnosed about three weeks ago and have had 6 loiafing doses. I'm confused as all I've been...

Hi, everyone. Apologies for what is probably a usual post. I was diagnosed about...

cheryl662291

•10 years ago

12 Replies

How important are loading doses?

Hi all, was diagnosed in Dec 2012 with B12 def and put straight on 3 monthly shots. How important is it to have loading doses? asked the Dr and he said as I...

Hi all, was diagnosed in Dec 2012 with B12 def and put straight on 3 monthly sho...

rach13

•10 years ago

5 Replies

Blood test results

Hi everyone. I was diagnosed with B12 deficiency & macrocytosis and had loading doses of Hydroxocobalamin. I now have 2 monthly injections but find it's not...

Hi everyone. I was diagnosed with B12 deficiency & macrocytosis and had loading ...

ednotdave

•10 years ago

6 Replies

Twitching

I started B12 injections in November - loading dose and then every 12 weeks. At about week 8 I start getting twitches usually in my face and eye which then go...

I started B12 injections in November - loading dose and then every 12 weeks. At ...

stillwaiting

•10 years ago

2 Replies

I have many of the symptoms of PA but have been told by my GP that blood test results are 'normal'. Not sure where to turn next!

Hi, If anyone could offer any advice I would be very grateful. I've been suffering from lethargy, exhaustion, poor memory, zero attention span, pins and...

Hi, If anyone could offer any advice I would be very grateful. I've been suffe...

Spratters

•10 years ago

2 Replies

Am b12 deficient and folic acid deficient. Had more bloods today presume for intrinsic factor. Getting confused reading everything,

Been prescribed folic acid 5mg tabs to take whilst awaiting results however on the instructions it says don't take if you have an undiagnosed b12 deficiency!!!!

Been prescribed folic acid 5mg tabs to take whilst awaiting results however on t...

Wesjoshjar

•10 years ago

2 Replies

Am I just just b12 deficient or PA? So confused what to do next :(

Can anyone help me please, I am so confused as what to do next.... Over the years I have had periods of numbness, pins and needles in my hands and feet,...

Can anyone help me please, I am so confused as what to do next.... Over the year...

laurabeebee

•10 years ago

8 Replies

Is it just me....or is an eyelid twitch just another symptom of B12 deficiency??

I've hashimotos, vitD def, folate def, I'm self administering B12 on a self med/ as I need basis and feeling better for it

I've hashimotos, vitD def, folate def, I'm self administering B12 on a self med...

olliedog1

•10 years ago

6 Replies

Paleo diet - any good?

Hi, Has anyone here tried the Paleo diet, and in particular the autoimmune version -NO to: •Eggs •Tomatoes & eggplants •Peppers including bell peppers and hot...

Hi, Has anyone here tried the Paleo diet, and in particular the autoimmune versi...

Mrs_Somerset

•10 years ago

8 Replies

How many of you have taken Trimethoprim (the anti-biotic) ?

I am working my way through some more info on what might be affecting my B12 etc and came accross this info, that I had not heard before: taking the...

I am working my way through some more info on what might be affecting my B12 etc...

Mrs_Somerset

•10 years ago

7 Replies

Interesting article regarding the uptake of B12

This article was published in 2009, but I have not seen a follow up paper regarding hte work highlighted at the end, particularly the snp's, but interesting...

This article was published in 2009, but I have not seen a follow up paper regard...

Mrs_Somerset

•10 years ago

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Hello...is a B12 deficiency possible if serum B12 is 618? I have tingling hands and feet tight calves hamstrings for 7 mos told its anxiety

Tingling began in feet and then to hands. Then my calve muscles are tight, deep tingling sensations, and they ache, very uncomfortable. My hamstrings are...

Tingling began in feet and then to hands. Then my calve muscles are tight, deep...

Sadiejane

•10 years ago

4 Replies

Do I have B12 deficiency? Here are my present lab results :

Methylmalonic acid-Urine 0.90 mg/L Creatinine. 0.38 g-l Methylmalonic acid/creatinine *2.37 mg/g. <2.0...

Methylmalonic acid-Urine 0.90 mg/L Creatinine. 0.38 g-...

mariolin

•10 years ago

6 Replies

B12 was low and only after only two shots its now way too high?

I have been diagnosed with a rare disorder called Mastocytosis, it's a mast cell disorder. I have issues with gluten and wheat. I started losing a lot of...

I have been diagnosed with a rare disorder called Mastocytosis, it's a mast cell...

christyander

•10 years ago

2 Replies

where can you buy B12 for intramuscular injections in the UK?

I am fed up of arguing with my GP, and I know many people do it themselves - I have been self injecting hte doses the doc gave me, but now that has stopped and...

I am fed up of arguing with my GP, and I know many people do it themselves - I h...

Mrs_Somerset

•10 years ago

12 Replies

Hi, My legs at the top and side of my knees are very painful, hurts worse went sitting down, getting out of car, any advice. Thanks Jane

Pernicious Anaemia

Jane123

•10 years ago

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2014

I have positive GCAs therefore presumably low gastric acid? Would it be helpful to take an acid substitute with meals eg cider vinegar.

Methylcobalamin

Hi every one, I had a lot of pain in both legs and feeling very tried all of the time, can't work at the mon. any help please.

Have low normal b 12. Pos in f antibody test dx with ibs D 15 years ago fibromyalgia 10 yrs ago. High bp and tachycardia. Are they all PA

Calling G.Ps!!!

Diagnosis

How important are loading doses?

Blood test results

Twitching

I have many of the symptoms of PA but have been told by my GP that blood test results are 'normal'. Not sure where to turn next!

Am b12 deficient and folic acid deficient. Had more bloods today presume for intrinsic factor. Getting confused reading everything,

Am I just just b12 deficient or PA? So confused what to do next :(

Is it just me....or is an eyelid twitch just another symptom of B12 deficiency??

Paleo diet - any good?

How many of you have taken Trimethoprim (the anti-biotic) ?

Interesting article regarding the uptake of B12

Hello...is a B12 deficiency possible if serum B12 is 618? I have tingling hands and feet tight calves hamstrings for 7 mos told its anxiety

Do I have B12 deficiency? Here are my present lab results :

B12 was low and only after only two shots its now way too high?

where can you buy B12 for intramuscular injections in the UK?

Hi, My legs at the top and side of my knees are very painful, hurts worse went sitting down, getting out of car, any advice. Thanks Jane

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Latest poll

How Often do you feel you actually need your B12 injection?

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