Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,915 members • 23,044 posts

All posts for January 2013

Has anyone tried and tested the B12 patches? I would like some feedback before trying.....

I know there are so many forms of B12 that can be absorbed, but am particularly interested in the patches. Feed back please..........

I know there are so many forms of B12 that can be absorbed, but am particularly ...

•11 years ago

Newbie

Hi. After several years of struggling I finally had enough and asked my doctor for the last two blood tests before taking them to a private doctor. Within...

Hi. After several years of struggling I finally had enough and asked my doctor ...

•11 years ago

SHARING GOOD NEWS - III

THE LINK BELOW STATES PEDIATRICS BUT CONTENTS APPLY TO ADULT PATIENTS: http://pediatrics.med.nyu.edu/conditions-we-treat/conditions/vitamin-b12-deficiency...

THE LINK BELOW STATES PEDIATRICS BUT CONTENTS APPLY TO ADULT PATIENTS: http:/...

•11 years ago

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Reaction to b12

Anyone understand severe reaction to B12 injections and sublingual B12? Hi, I've felt ill for years and extremely ill for the past year. Eventually in June...

Anyone understand severe reaction to B12 injections and sublingual B12? Hi, I'v...

•11 years ago

ARE TOO HIGH LEVELS OF FOLATE INDICATION OF POSSIBLE PRE-CANCER?

In my learning journey on how to improve my health and quality of life I question things. We are all born either of two ways: either "satisfied" or "curious"....

In my learning journey on how to improve my health and quality of life I questio...

•11 years ago

Just had my levels of B12 given to me.

When for my 2nd injection today of B12 & asked the nurse if I needed to make an appointment to see my General Practitioner, who didn't seem to know. I am...

When for my 2nd injection today of B12 & asked the nurse if I needed to make an ...

•11 years ago

A Queston for anyone who has had the Active B12 test done at St Thomas hospital.

When you have got the results back from St Thomas has your GP taken any notice of them ie changed your treatment etc Do GP's accept that the test is valid?

When you have got the results back from St Thomas has your GP taken any notice o...

•11 years ago

SHARING MORE GOOD NEWS: HAVE YOU CONSIDERED THE CHEAP B3?

One of the cheaper yet so overlooked vitamins, I am living proof that B3 is effective to eliminate brain fog in the mornings, and arthritic pain. It is a month...

One of the cheaper yet so overlooked vitamins, I am living proof that B3 is effe...

•11 years ago

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I dont get regular blood tests to check my pernicous anemia b12 levels last one was 4 years ago

I have also got tinnitus, fatigue and also some weird electrical zap feelings in my head i have had pernicious anaemia for 12 years and in all that time have...

I have also got tinnitus, fatigue and also some weird electrical zap feelings in...

•11 years ago

Intrinsic factor

I have PA and I was wondering as I have no intrinsic factor and I have an absorbtion problem does that mean I can't absorb anything or just B12. Tina

I have PA and I was wondering as I have no intrinsic factor and I have an absorb...

•11 years ago

NEW LINK TO PA/IDA LAB TESTS DESCRIPTIONS

Cheers everyone: Below is link to excellent source for all lab tests for PA/IDA, with exception of the new holocobalamin available in the UK. All tests are...

Cheers everyone: Below is link to excellent source for all lab tests for PA/I...

•11 years ago

Be the first to reply

SHARING GOOD NEWS:

Greetings everyone: I hope my feedback is of help to all. The knowledge I acquired with just one week of searching this site plus your answers with so much...

Greetings everyone: I hope my feedback is of help to all. The knowledge I acq...

•11 years ago

Vit b 12 deficient even though GP says no?

Hi There, I’m really hoping you might be able to help me as I feel that everywhere I turn I hit a dead end! I’m 32, female and have a family history of vit...

Hi There, I’m really hoping you might be able to help me as I feel that every...

•11 years ago

Ok so I was diagnosed eventually with PA after my son was born. I also have an underactive thyroid and asthma/sinus allergies.

After the initial B12 jabs I started to feel human again, but found that they wore off after 4 weeks? I have told my doctor this and he has allowed me to have...

After the initial B12 jabs I started to feel human again, but found that they wo...

•11 years ago

Does Pernicious Anaemia always result from having antibodies

Hi I have PA and strongly suspect that my sister also has it. Her vit b12 blood test came back within range, lab ref range in our area between 400-900 (if...

Hi I have PA and strongly suspect that my sister also has it. Her vit b12 bloo...

•11 years ago

Stuck in B12 Limbo

I'm 27 going on 87 at the moment, most people laugh about me being so tired all the times or when I yelp in pain due to the pins and needles but It's all to...

I'm 27 going on 87 at the moment, most people laugh about me being so tired all ...

•11 years ago

Anyone lost their sense of touch?

I know 'altered sense of touch' is one of the symptoms of B12 deficiency, but can't find any posts about this. I have gradually lost surface sensation all over...

I know 'altered sense of touch' is one of the symptoms of B12 deficiency, but ca...

•11 years ago

B 12 AND ANTIGENS CARRIED BY RH POSITIVE BLOOD TYPES

I am looking for the name of the test used to detect level of working B12 as opposed to B12 in the pool? I am B RH Positive type with below minimum...

I am looking for the name of the test used to detect level of working B12 as opp...

•11 years ago

is it safe to take vitamin b complex if i have pernicious anaemia

•11 years ago

Question about B12 and Folate levels

Hi I asked on Oct if anyone knew where I could get a home test. I found Myrios and had results today. I am now confused as I gave up supplements but the...

Hi I asked on Oct if anyone knew where I could get a home test. I found Myrios a...

•11 years ago

is their any special treatment for [paretial cell antibode]

•11 years ago

Radioactive treatment or not?????

Hi There. Im after a bit of advice from anyone who may have had, or got this prob. Ive pernicious anemia, plus good old thyroid probs to boot. My endo has only...

Hi There. Im after a bit of advice from anyone who may have had, or got this pro...

•11 years ago

What do you do if your B12 levels went from really high to "normal" but you are still feeling horrible?

I have tried to ignore my health issues for a while now as i got to the point where i was so upset of feeling like i was being pushed from pillar to post with...

I have tried to ignore my health issues for a while now as i got to the point wh...

•11 years ago

B12 170

My partner recently had a blood test which showed his B12 was 170 just under the NHS range. He was told to come back in 3 months time to have another blood...

My partner recently had a blood test which showed his B12 was 170 just under the...

•11 years ago

i was told the other day when i got my b12 shot that there a shortage of b12 and may not get the shot .has any one heared this to

•11 years ago

Been not right for a long time & finally getting some answers after blood tests.

I have no thoracic nerve on right arm, been taking Lansoprazole for heartburn for years, worst toilet habits at time, waking up and being tired, family been...

I have no thoracic nerve on right arm, been taking Lansoprazole for heartburn fo...

•11 years ago

Search posts

Pinned Posts

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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How Often do you feel you actually need your B12 injection?

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All things Pernicious Anaemia Society(75)

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