Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,951 members • 23,091 posts

All posts for September 2023

self Injecting Materials

I am just starting to investigate self injections. What is the dose one receives from a doctor’s surgery and where would one purchase the syringes from and is...

I am just starting to investigate self injections. What is the dose one receives...

B12again

•7 months ago

7 Replies

Megalobloblastic Aneamia and PA

What are the symptoms when you reach megaloblastic anaemia with PA , im led to believe this is quite a late stage of the disease .

What are the symptoms when you reach megaloblastic anaemia with PA , im led to b...

wp69

•7 months ago

11 Replies

Neurologist concerns….

Hi all, I’m looking for help with a hospital neurologist who refuses to acknowledge physiological changes noted in reports, blood test results etc. and...

Hi all, I’m looking for help with a hospital neurologist who refuses to acknowl...

RoseFlowerDew

•7 months ago

11 Replies

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Folate/B-complex supplementation in B12d and hypothyroidism?

Hello, I have B12 deficiency and hypothyroidism. My folate levels came back high in the range after some 5 months of supplementation. Should I continue...

Hello, I have B12 deficiency and hypothyroidism. My folate levels came back hig...

am111

•7 months ago

4 Replies

6 Week SI Update

Good morning lovely people I hope you have a lovely weekend planned! I thought I would pop on here and update on how things have shifted since I started SI,...

Good morning lovely people I hope you have a lovely weekend planned! I thought ...

Aymelss

•7 months ago

6 Replies

GPs ignorance and zebras

I'm on this forum to try to help my partner with b12 deficiency he has suffered for years and been told by GPs that its all just anxiety. I myself am diagnosed...

I'm on this forum to try to help my partner with b12 deficiency he has suffered ...

Nic878

•7 months ago

14 Replies

Sun Energy

My body uses sun for many processes, some that are not known. In fact when I had more sun energy I was able to better adjust to my life long B12 deficiency...

My body uses sun for many processes, some that are not known. In fact when I had...

WIZARD6787

•7 months ago

8 Replies

B12 ampules

Anybody with the latest outlets to purchase ampules - would appreciate up to date infromation - thank you.

Anybody with the latest outlets to purchase ampules - would appreciate up to dat...

islandlass

•7 months ago

13 Replies

Trials and Tribulations.

I did a trial of 1.5 mg methylcobalamin 4 times a day and that was positive. I then increased physical activity and had 3 days of a downturn and recovered. I...

I did a trial of 1.5 mg methylcobalamin 4 times a day and that was positive. I t...

WIZARD6787

•7 months ago

11 Replies

Having Other Autoimmune Diseases.

John Hunter, a Scottish surgeon, advised his protege, ‘Don’t think the experiment, try it.’ This particular student attended many lectures which...

John Hunter, a Scottish surgeon, advised his protege, ‘Don’t think the experimen...

Narwhal10

•7 months ago

15 Replies

why s mch rising now asI am SI daily??

just another quick question! I'm on SI b12 daily and just received my blood test results back Can anyone explain why my MCH is rising? I know this is an...

just another quick question! I'm on SI b12 daily and just received my blood test...

brenanddave

•7 months ago

14 Replies

B12 deficiency and b12 deficiency anemia

So we went to GP this evening, the antibody tests are back as negative. The GP was sat there with my complaint letter in front of her and was abit funny with...

So we went to GP this evening, the antibody tests are back as negative. The GP w...

Nic878

•7 months ago

33 Replies

Long time no see, a brief update from me and a daughter with a diagnosis…

Hello all! I don’t know if anyone will remember me as it’s been a few years since I last posted. I’ll try to keep my update brief (and positive) as it’s not...

Hello all! I don’t know if anyone will remember me as it’s been a few years sinc...

Ms_J

•7 months ago

28 Replies

Anyone having B12 injections + hypothyroid?

Hi Has anyone here started taking B12 injections whilst on thyroid medication for hypothyroidism? And if you did, did the B12 affect the thyroid medication...

Hi Has anyone here started taking B12 injections whilst on thyroid medication f...

FancyPants54

•7 months ago

54 Replies

Needing some urgent advice before GP appointment please

We have managed to get an appointment with a different GP at tea time today, going to try and get them to follow nice guidelines as it's been a week since...

We have managed to get an appointment with a different GP at tea time today, goi...

Nic878

•7 months ago

7 Replies

Further info on blood panel

Hello! I posted a couple of weeks back with some questions about low B12 investigations and was about to have a very full and detailed blood panel. I've got...

Hello! I posted a couple of weeks back with some questions about low B12 investi...

Onefish

•7 months ago

18 Replies

Private B12 and Iron Infusions

May anyone recommend any in the North of England. North Yorkshire, West Yorkshire etc.

May anyone recommend any in the North of England. North Yorkshire, West Yorkshir...

HealthStarDust

•7 months ago

2 Replies

Introducing myself

Hi, I'm new to the forum and thought I'd share a brief summary of how I ended up here. It's hard to say exactly when my symptoms started but in 2019, when I...

Hi, I'm new to the forum and thought I'd share a brief summary of how I ended up...

Permexpi

•7 months ago

6 Replies

normocytic anaemia

hi I no it’s not the same but has anyone had normocytic anaemia and found the cause of it please tia xx

hi I no it’s not the same but has anyone had normocytic anaemia and found the c...

Nat107

•7 months ago

2 Replies

B12 serum versus B12 active

Dear members I would be grateful for any advice you can offer. My GP surgery blood tests on 21st June showed a serum B12 of 832ng/l (197-771). My levels ahve...

Dear members I would be grateful for any advice you can offer. My GP surgery b...

Eton

•7 months ago

11 Replies

Difficulty swallowing, loss of appetite and clogged eustachian tubes.

It is known that a symptom of difficulty swallowing is associated with B12 deficiency. How I experienced it was not accepted by the medics I hired. At times...

It is known that a symptom of difficulty swallowing is associated with B12 defic...

WIZARD6787

•7 months ago

9 Replies

Up to 80% of a.blood serum reading for B12 can be inactive !

l know that read this somewhere . but can’t remember where . .Is this true and if so has anyone got a link to the source ? Thank you .

l know that read this somewhere . but can’t remember where . .Is this true and i...

wedgewood

•7 months ago

15 Replies

What does B12 deficiency look like ?

I think it might help others, particularly those new to this forum, to see what some of the more visible B12 deficiency symptoms can look like. Please feel...

I think it might help others, particularly those new to this forum, to see what ...

Cherylclaire

Forum Support•7 months ago

86 Replies

frustrated with Gp.

Hi , my son has had recent bloods taken his b12 is deficient. 34.5- range 37.5-188 We have requested a Gp appointment but have now waited almost 3 weeks, I...

Hi , my son has had recent bloods taken his b12 is deficient. 34.5- range 37.5-...

Blister4

•7 months ago

38 Replies

New to all this, please help with test results

People on the Hypothyroid UK forum have suggested that I join this forum because of some test results that I received yesterday. Long story short, I've...

People on the Hypothyroid UK forum have suggested that I join this forum because...

TheSnufkin

•7 months ago

10 Replies

Expiry dates and oxalates

Hi all, thank you to all the regulars who provide such a wonderful information service. I have made some replies but mostly just follow. But last night I...

Hi all, thank you to all the regulars who provide such a wonderful information s...

Rosydawn

•7 months ago

9 Replies

Advice on Tests Please

Dear Forum Members, I wonder if you advise which tests are needed for PA. In recent years my ferritin has been below 30, folate deficient and B12 on the low...

Dear Forum Members, I wonder if you advise which tests are needed for PA. In re...

HealthStarDust

•7 months ago

8 Replies

A fun experience.

I had the thought that I might want to do weight training again. Not a no pain no gain fool. Do like the burn to a degree. I also understand some muscles will...

I had the thought that I might want to do weight training again. Not a no pain n...

WIZARD6787

•7 months ago

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Recent blog

https://www.bannerhealth.com/healthcareblog/teach-me/pernicious-anemia-when-you-can-not-absorb-enough-vitamin-b12

https://www.bannerhealth.com/healthcareblog/teach-me/pernicious-anemia-when-you-...

Nackapan

•7 months ago

2 Replies

iron supplements

hello just enquiring if you think I should take iron supplements, my serum iron was 10 (5.83/34.5) it has now gone up a bit to 13.6 same range,saturated 20%...

hello just enquiring if you think I should take iron supplements, my serum iron ...

Kowbie

•7 months ago

13 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2023

self Injecting Materials

Megalobloblastic Aneamia and PA

Neurologist concerns….

Folate/B-complex supplementation in B12d and hypothyroidism?

6 Week SI Update

GPs ignorance and zebras

Sun Energy

B12 ampules

Trials and Tribulations.

Having Other Autoimmune Diseases.

why s mch rising now asI am SI daily??

B12 deficiency and b12 deficiency anemia

Long time no see, a brief update from me and a daughter with a diagnosis…

Anyone having B12 injections + hypothyroid?

Needing some urgent advice before GP appointment please

Further info on blood panel

Private B12 and Iron Infusions

Introducing myself

normocytic anaemia

B12 serum versus B12 active

Difficulty swallowing, loss of appetite and clogged eustachian tubes.

Up to 80% of a.blood serum reading for B12 can be inactive !

What does B12 deficiency look like ?

frustrated with Gp.

New to all this, please help with test results

Expiry dates and oxalates

Advice on Tests Please

A fun experience.

Recent blog

iron supplements

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive