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Pernicious Anaemia Society

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All posts for August 2020

Am I still not absorbing iron?

My b12 was 88ng/L and iron 4ug/L.... after 3 years of symptoms, I have had my 5 b12 loading jabs a month ago and taking ferrous fumarate every other day as any...

My b12 was 88ng/L and iron 4ug/L.... after 3 years of symptoms, I have had my 5 ...

Claire27272

•4 years ago

21 Replies

Diagnosis Detectives

Hi, Thought some of you might be interested in this new BBC programme. https://www.bbc.co.uk/mediacentre/proginfo/2020/35/the-diagnosis-detectives I think many...

Hi, Thought some of you might be interested in this new BBC programme. https://w...

Sleepybunny

•4 years ago

6 Replies

ALL DIZZY B12d friends

BEWARE All B12d DIZZY nerve damaged people. 11.08.20 at 05.00 I got up for a pee. Returned to bed turned around to sit on bed to get back into bed, lost...

BEWARE All B12d DIZZY nerve damaged people. 11.08.20 at 05.00 I got up for a pee...

jacwright

•4 years ago

4 Replies

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Mixed reviews

My daughter recieved her b12 Injection through lockdown . However after a telephone consult with Gastro. It was decided to have them 8 weekly instead of 12...

My daughter recieved her b12 Injection through lockdown . However after a teleph...

Nackapan

•4 years ago

4 Replies

Has Anyone with a vitamin b12 deficiency Been mis diagnosed with heart problems I have not had and vit b12 injections since lock down.

Very dizzy and breathless was taken to A and E given two Seperate ECGs both ok. Then told by another doc, not cardiac the I have heart problems. Not interested...

Very dizzy and breathless was taken to A and E given two Seperate ECGs both ok. ...

Belsfield

•4 years ago

7 Replies

B12d advise required

Bloods suggest b12d (101). I have good diet high is leafy greens. Doctor suggests it is possibly caused by my microscopic colitis. I have extreme fatigue,...

Bloods suggest b12d (101). I have good diet high is leafy greens. Doctor sugges...

Frenchfield

•4 years ago

11 Replies

Metformin or Proton Pump Inhibitors?

My father has had type II diabetes for many many years and taking Metformin for almost as long. He has also been taking proton pump inhibitors for about 4...

My father has had type II diabetes for many many years and taking Metformin for ...

GGourmet

•4 years ago

10 Replies

Pernicious Anemia with worsening neuropathy. I'm new here.

I was diagnosed by my physician in late February 2020 of pernicious anemia after a follow-up visit to my physician from an emergency room visit approximately 1...

I was diagnosed by my physician in late February 2020 of pernicious anemia after...

jimmel196

•4 years ago

16 Replies

Cause of fatigue

Can any of you wise owls explain this? I am not anaemic and have normal RBC s but am B12 Def. How does this cause my fatigue. I understand that the fatigue was...

Can any of you wise owls explain this? I am not anaemic and have normal RBC s bu...

Ziggyzugg

•4 years ago

34 Replies

B12 neuro folic acid

Neuro bad symtoms there’s so much different advice around I’m so confused most are saying b12 injections are useless without folic acid or folate ? Others...

Neuro bad symtoms there’s so much different advice around I’m so confused most ...

Milley2

•4 years ago

38 Replies

Diagnostic tests

Hi everyone, I was wondering which tests people had to reach their diagnosis? I have many of the symptoms and a raised MCH. However, my intrinsic factor test...

Hi everyone, I was wondering which tests people had to reach their diagnosis? I ...

Auntbessy

•4 years ago

12 Replies

Frightened of B12 injection side effects

Hi. I have been recommended by a Functional Medicine doctor to start B12 injections. I am emetophobic (fear of vomiting) and have read up in a few medical...

Hi. I have been recommended by a Functional Medicine doctor to start B12 injecti...

SKalila

•4 years ago

22 Replies

Self injection into arm - B12 [hydroxocobalamin]

Hi, I have previously self injected into my thigh, but I was wondering if there are any dangerous side effects of using my upper arm muscle like the dr does?...

Hi, I have previously self injected into my thigh, but I was wondering if there ...

Cynders22

•4 years ago

4 Replies

B12 levels

B12 levels Would anyone be able to tell me what a normal b12 level is? Thank you

B12 levels Would anyone be able to tell me what a normal b12 level is? Thank you...

Alice2

•4 years ago

4 Replies

Anyone else using red and near infrared light to help with their neuropathy and fatigue?

I have been using it for about a month and it seems to be helpful. Maybe not very potent, but I’ll take what I can get. I thought others might like to know...

I have been using it for about a month and it seems to be helpful. Maybe not ve...

aksundell

•4 years ago

18 Replies

Refused B12 injections

I have been having B12 injections for over 10 years every 12 weeks. Around week 10 I get very tired, eyes are sore and tingling in hands and numbness in foot....

I have been having B12 injections for over 10 years every 12 weeks. Around week ...

Running-free

•4 years ago

6 Replies

Which is best to use? Single dose B12 ampules or multi dose bottles?

I'm self injecting but wonder why various people don't recommend multi dosing bottles but rather single dose ampules. Thanks for sharing your insights.

I'm self injecting but wonder why various people don't recommend multi dosing bo...

Liyaelize

•4 years ago

5 Replies

Doctors want to stop injections altogether

Hello all, Following my recent post re. contacting my doctor’s surgery about coming back in for injections (for free as usual) rather than self-injecting at...

Hello all, Following my recent post re. contacting my doctor’s surgery about com...

amydemi

•4 years ago

8 Replies

Best needle size

Hi all, I SI B12 as and when I need it, I use a 1" needle, but I have been wondering, my BMI is 29.5, do any of you think I would be better using a 1.5" needle...

Hi all, I SI B12 as and when I need it, I use a 1" needle, but I have been wonde...

miravet

•4 years ago

2 Replies

The Jabs are Back For Me

Docs rang yesterday to arrange flu jabs and I asked the question about reinstating b12 jabs No reply yesterday but today the answer is yes. I have learnt...

Docs rang yesterday to arrange flu jabs and I asked the question about reinstati...

may61

•4 years ago

2 Replies

No change after loading doses

Still having extremely weird symptoms, widespread persistent numbness, muscle spasms and tightening, palpitations, very weak and generally feel ill, lymph...

Still having extremely weird symptoms, widespread persistent numbness, muscle sp...

Mag999

•4 years ago

7 Replies

DON’T FORGET , WHEN ORDERING FROM AMAZON , USE AMAZON SMILE ,AND CHOOSE P.A.S. AS YOUR CHARITY AND CONTRIBUTE AT NO COST TO YOURSELF !

Sorry to be a bore , but I’m putting out this message again , so newcomers can see it . It’s really worthwhile .

Sorry to be a bore , but I’m putting out this message again , so newcomers can s...

wedgewood

•4 years ago

5 Replies

Difference Between Hydroxo, Cyano, and Methyl cobalamin

I'm new here and my first post. Have been on once/month injections until covid came to town this past March. No injections until 4 weeks ago (end of July)....

I'm new here and my first post. Have been on once/month injections until covid ...

dfitz

•4 years ago

1 Reply

Help with blood results

Dear fellow members... Newby.. I have been reading you for a month /trying to educate myself/ and I am getting more and more confused. Would someone be so...

Dear fellow members... Newby.. I have been reading you for a month /trying to ed...

gina76

•4 years ago

13 Replies

Quite a newby

When first diagnosed a year ago, the practice-nurse said she didn't need to test for PA. B12 was 76 and symptoms spoke for PA. She has B12d herself. 3 weeks...

When first diagnosed a year ago, the practice-nurse said she didn't need to tes...

barbegrub

•4 years ago

8 Replies

Easier to use syringes

I si both my thighs and upper arms, the latter mean that I need to be able to inject single handed and with my left hand at times. I often found that the...

I si both my thighs and upper arms, the latter mean that I need to be able to in...

JanD236

•4 years ago

2 Replies

B12 deficiency and treatment for 15 months and chronic headache

I am 15 months in for treatment of b12 deficiency. I currently take 1 injection every 3 weeks. In the beginning after the loading doses I was on 1 injection a...

I am 15 months in for treatment of b12 deficiency. I currently take 1 injection ...

Coonass1

•4 years ago

4 Replies

Has anyone used an auto injector before?

Hello! So I am looking into self injecting and am thinking about buying this https://unionmedico.com/disposable-90m/ Just wondering if anyone has used this...

Hello! So I am looking into self injecting and am thinking about buying this htt...

katamarang

•4 years ago

2 Replies

Additional supplements ?

I have finished my loading injections and I am awaiting results on if my body has accepted the b12 or if I have pernicious anaemia. I was just wondering about...

I have finished my loading injections and I am awaiting results on if my body ha...

Recharged

•4 years ago

3 Replies

yoppa

Hello, I have been reading posts saying people are self injecting vit 12 Hydroxocobalamin and wonder where they are purchasing these ampoules. I self inject...

Hello, I have been reading posts saying people are self injecting vit 12 Hydroxo...

ositive

•4 years ago

19 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2020

Am I still not absorbing iron?

Diagnosis Detectives

ALL DIZZY B12d friends

Mixed reviews

Has Anyone with a vitamin b12 deficiency Been mis diagnosed with heart problems I have not had and vit b12 injections since lock down.

B12d advise required

Metformin or Proton Pump Inhibitors?

Pernicious Anemia with worsening neuropathy. I'm new here.

Cause of fatigue

B12 neuro folic acid

Diagnostic tests

Frightened of B12 injection side effects

Self injection into arm - B12 [hydroxocobalamin]

B12 levels

Anyone else using red and near infrared light to help with their neuropathy and fatigue?

Refused B12 injections

Which is best to use? Single dose B12 ampules or multi dose bottles?

Doctors want to stop injections altogether

Best needle size

The Jabs are Back For Me

No change after loading doses

DON’T FORGET , WHEN ORDERING FROM AMAZON , USE AMAZON SMILE ,AND CHOOSE P.A.S. AS YOUR CHARITY AND CONTRIBUTE AT NO COST TO YOURSELF !

Difference Between Hydroxo, Cyano, and Methyl cobalamin

Help with blood results

Quite a newby

Easier to use syringes

B12 deficiency and treatment for 15 months and chronic headache

Has anyone used an auto injector before?

Additional supplements ?

yoppa

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Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

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