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Pernicious Anaemia Society

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All posts for March 2021

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Natural1970

•3 years ago

1 Reply

Negative ANA

Hi! I was recently diagnosed with PA because I have an antibody to parietal cell but I don’t have an antibody to intrinsic factor. I was just tested for a...

Hi! I was recently diagnosed with PA because I have an antibody to parietal cel...

Spidey313

•3 years ago

2 Replies

Chronic fatigue help

I’m really struggling with tiredness and any advice would be so helpful. I get my b12 injection every 12 weeks because of confirmed anti-parietal cells but...

I’m really struggling with tiredness and any advice would be so helpful. I get ...

FelineGhost

•3 years ago

8 Replies

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Needle change

Hi everyone, as some of you know I’m pretty new to self injecting. I’ve been using the green needle to draw the b12 and the blue to I.M inject. Apart from a...

Hi everyone, as some of you know I’m pretty new to self injecting. I’ve been usi...

SallyRees

•3 years ago

14 Replies

After loading B12 injections

Had my loading injections a few weeks ago. Initially I got a rush of symptoms which I posted about and recognise that this may be the nerves “waking up” again....

Had my loading injections a few weeks ago. Initially I got a rush of symptoms wh...

Hephzi

•3 years ago

3 Replies

Needles to administer b12

Hi I've bought the vitamin b12 depot from panpharma 1ml ,they are small glass ampoules,I haven't done this before.Does anyone know what I need to buy to I next...

Hi I've bought the vitamin b12 depot from panpharma 1ml ,they are small glass am...

caroash

•3 years ago

13 Replies

Ongoing gastric problems

Hi, has anyone else experienced ongoing gastric discomfort,bloating nausea and fatigue after starting regular 3monthly injections. Before I was diagnosed with...

Hi, has anyone else experienced ongoing gastric discomfort,bloating nausea and f...

Mrsmr

•3 years ago

19 Replies

B12 injections

Hi I’m new to this group I’m having b12 injections every three months but leading up to my due injections my body aches so much , buff to recently I have had...

Hi I’m new to this group I’m having b12 injections every three months but leadi...

Prettywoman73

•3 years ago

4 Replies

Does stress cause symptoms to appear for you?

Just wondering if anyone has experienced a return of some or all of their low b12 symptoms due to stressful events in their life. I am still having trouble...

Just wondering if anyone has experienced a return of some or all of their low b1...

anon4035

•3 years ago

7 Replies

Pregabalin & Deficiencies

After quite a lot of reading I’m starting to put together the pieces. I could very well still have PA but I more likely expect that my Pregabalin could be...

After quite a lot of reading I’m starting to put together the pieces. I could ve...

Purplegirl2

•3 years ago

5 Replies

Needle sizing .

I’m having a problem with the size of needle used for b12 injection in my arm. Can anyone advise me, I have it in the upper arm with a 22g at present but it’s...

I’m having a problem with the size of needle used for b12 injection in my arm. C...

Higgey

•3 years ago

12 Replies

Can B-12 Cyanocobalamin shots increase your Serum Cobalt levels?

can anybody with pernicious anemia that gets b-12 monthly injections let me know if it could or would raise your cobalt serum levels? I had a DR run mine out...

can anybody with pernicious anemia that gets b-12 monthly injections let me know...

robinsnestwalke

•3 years ago

4 Replies

hydroxocobalamin ampules where to purchase and ship to uk

hi guys, just wondering if anyone has managed to get any hydroxocobalamin ampules as my partner has pa and he self injects and we have only a couple left, we...

hi guys, just wondering if anyone has managed to get any hydroxocobalamin ampule...

Ect42

•3 years ago

4 Replies

GP asking for blood Test after B12 injections

After reverting to monthly B12 injections, and the nurse stating I can self inject at home. I have asked for a repeat prescription and GP has said no and...

After reverting to monthly B12 injections, and the nurse stating I can self inje...

Hidden

•3 years ago

9 Replies

Low BP, Chronic constipation.

I have PA and get my injections every 3 months. After the injection I am quite low and lethargic for a few days. Anyone else suffer this? On another note I...

I have PA and get my injections every 3 months. After the injection I am quite l...

AnneCh1

•3 years ago

5 Replies

Do you only need B12 injections if you have pernicious anaemia? How long does it take for B12 to be lost after an injection?

About 28 years ago, after around a year or more on proton pump inhibitors, I saw a gastroenterologist who diagnosed a small hiatus hernia and low B12. He said...

About 28 years ago, after around a year or more on proton pump inhibitors, I saw...

Moggy1234

•3 years ago

3 Replies

DNA

Has anybody had there dna tested. I question this as mine was double stranded DNA. Now to family.... numerous family with b12. I believe this to be from...

Has anybody had there dna tested. I question this as mine was double stranded DN...

Hidden

•3 years ago

16 Replies

Worth Going to Hematologist for B12 deficiency? (USA)

20F Lately been disappointed by the quality of my care from my neurologist about the b12 deficiency specifically. A year prior when I was first diagnosed with...

20F Lately been disappointed by the quality of my care from my neurologist about...

Purplegirl2

•3 years ago

14 Replies

B12 germany

As anybody wondered whether revealing they buy b12 ampoules from abroad are being exposed to the possibility Of prosecution . Or does purchasing ampoules for...

As anybody wondered whether revealing they buy b12 ampoules from abroad are bein...

Hidden

•3 years ago

14 Replies

desperate for help - 6 months in and no better...

I am 24 years old, and relatively new to this condition - I was diagnosed with PA in September after finding low b12 and folate levels 3 months prior (I was...

I am 24 years old, and relatively new to this condition - I was diagnosed with P...

Runnerblue7

•3 years ago

13 Replies

Pfizer Covid vaccine suggestions?

I am scheduled to get the Pfizer Covid vaccine today. Any known risks for people with PA or B12 issues or who receive B12 injections??

I am scheduled to get the Pfizer Covid vaccine today. Any known risks for people...

Ctadds1

•3 years ago

4 Replies

AMENDED instructions to GPs regarding B12 injections being denied to P.A. patients , who cannot absorb tablets .

Could someone please give me a link/ reference to the amended instructions about B12 tablets instead of Injections being given to P.A. patients . I’ve just...

Could someone please give me a link/ reference to the amended instructions about...

wedgewood

•3 years ago

2 Replies

Sky high folic acid levels ?

I am getting weekly B12 injections. Folic acid levels are sky high without supplementing. Do I worry about this ?

I am getting weekly B12 injections. Folic acid levels are sky high without supp...

Ctadds1

•3 years ago

22 Replies

Before MMA test, how long to cease sublingual B12 please?

On the test site it stipulates to cease B supplements for 14 days before a MMA test, does anyone know if that would still give accurate results? Im sure I...

On the test site it stipulates to cease B supplements for 14 days before a MMA t...

Gillybean1

•3 years ago

39 Replies

Odd results after supplements?

Would anyone be able to comment on why despite supplementing for two month my B12 Active result has gone down? Feb results 91.7 (37.5-187.5) March result 51.5...

Would anyone be able to comment on why despite supplementing for two month my B1...

Pinky3

•3 years ago

6 Replies

Purchasing

Versanpe Germany won’t ship to UK at the moment. Are there any other suggestions of where to purchase please?

Versanpe Germany won’t ship to UK at the moment. Are there any other suggestions...

THELadyP

•3 years ago

5 Replies

Gastroenterology telephone appointment

Update: The Gastroenterology Doctor telephoned and with my help, my daughter's memory is bad, we outlined the last 4 years. He will organise a small bowel...

Update: The Gastroenterology Doctor telephoned and with my help, my daughter's ...

Hidden

•3 years ago

27 Replies

Wrists pain after b12 injection

Hello everyone Before b12 injections i had no joint pain but when I took my third b12 injection after that i feel severe pain in my both wrists and numbness...

Hello everyone Before b12 injections i had no joint pain but when I took my th...

Zaidhfh

•3 years ago

13 Replies

Matt hancock

Just read an article regarding dementia, and Matt Hancock Mentioned the importance of vitamin b12, and all nutrition, he stated you can get the vitamin b12...

Just read an article regarding dementia, and Matt Hancock Mentioned the importan...

Hidden

•3 years ago

14 Replies

Swollen neck glands

Have any of you had swollen neck glands with PA?

BC1980

•3 years ago

17 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2021

Locked thread.

Negative ANA

Chronic fatigue help

Needle change

After loading B12 injections

Needles to administer b12

Ongoing gastric problems

B12 injections

Does stress cause symptoms to appear for you?

Pregabalin & Deficiencies

Needle sizing .

Can B-12 Cyanocobalamin shots increase your Serum Cobalt levels?

hydroxocobalamin ampules where to purchase and ship to uk

GP asking for blood Test after B12 injections

Low BP, Chronic constipation.

Do you only need B12 injections if you have pernicious anaemia? How long does it take for B12 to be lost after an injection?

DNA

Worth Going to Hematologist for B12 deficiency? (USA)

B12 germany

desperate for help - 6 months in and no better...

Pfizer Covid vaccine suggestions?

AMENDED instructions to GPs regarding B12 injections being denied to P.A. patients , who cannot absorb tablets .

Sky high folic acid levels ?

Before MMA test, how long to cease sublingual B12 please?

Odd results after supplements?

Purchasing

Gastroenterology telephone appointment

Wrists pain after b12 injection

Matt hancock

Swollen neck glands

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Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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