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Pernicious Anaemia Society

31,948 members • 23,087 posts

All posts for October 2015

Help. Just started trial of vit b12 cyanocobalamin

Hi, i have been unwell for the past year or so and was recently diagnosed with an inflammatory bowel disease. Apart from the gastro symptoms i have also had...

Hi, i have been unwell for the past year or so and was recently diagnosed with a...

•8 years ago

How much B12?

My serum b12 level were high at the last count (750) but I have many b12 deficiency symptoms. I've been taking hydroxycobalamin, adenosylcobalamin and...

My serum b12 level were high at the last count (750) but I have many b12 deficie...

•8 years ago

Interesting link about Megaloblastic Anemia

Found this as I was trawling through the internet (as we have to for information!) and found this interesting, particularly regarding the Schilling test....

Found this as I was trawling through the internet (as we have to for information...

•8 years ago

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Cyanocobalamin

I am interested in hearing if anyone has experience of taking the cyanocobalamin 50mcg tablets? My gp is trying these with me as the injections were causing...

I am interested in hearing if anyone has experience of taking the cyanocobalamin...

•8 years ago

Betaine hcl

Hi, I don't seem to be absorbing B12 and I get very bloated and I seemed to have become lactose intolerant. So I did the sodium bicarbonate test to check for...

Hi, I don't seem to be absorbing B12 and I get very bloated and I seemed to have...

•8 years ago

Newbie!

Hi, I'm new. Was diagnosed 2 yrs ago and my previous surgery gave me b12 injections every 12 weeks no issue. I just turned up and got the jab. I've now moved...

Hi, I'm new. Was diagnosed 2 yrs ago and my previous surgery gave me b12 injecti...

•8 years ago

Treatment for 'pins and needles' pain.

My parathesia is sometimes bad enough to wake me in the middle of the night - when it feels as if needles are being slid under my toenails. Paracetamol doesn't...

My parathesia is sometimes bad enough to wake me in the middle of the night - wh...

•8 years ago

B12 Injection brought forward yaaay... but the downside is....

Have just spoken with my GP and after telling him about my burning feet and legs, painful arms together with sheer exhaustion he has agreed to me having my B12...

Have just spoken with my GP and after telling him about my burning feet and legs...

•8 years ago

Mould allergy

For years my symptoms have improved when I'm away from home. Not miraculously but I definitely feel more well when I'm away for a few days. One thing that has...

For years my symptoms have improved when I'm away from home. Not miraculously bu...

•8 years ago

serum b12 2000

Hi would anyone know why serum b12 would be 2000 when I have p a ? Dr has stopped my injections because of this

Hi would anyone know why serum b12 would be 2000 when I have p a ? Dr has stoppe...

•8 years ago

Still feeling rubbish

Hi, I was diagnosed with low b12 and low iron blood levels last year. My initial bloods were negative for parietal cell antibodies, but were found to be...

Hi, I was diagnosed with low b12 and low iron blood levels last year. My initia...

•8 years ago

Advice appreciated: B12 injection issues.

My (apparently almost total) lack of B12 was detected on a blood screen for something else. I have had injections every three months at home with the District...

My (apparently almost total) lack of B12 was detected on a blood screen for some...

•8 years ago

Hope someone can advise

I had a blood test recently and my iron levels were technically normal, though my ferritin is 33 (13-150). I have been experiencing all the symptoms of anaemia...

I had a blood test recently and my iron levels were technically normal, though m...

•9 years ago

Still have swollen lower legs and numbfeeling in toes

Finished loading dose b12 25th Sept GP said next dose in Dec one injection only the Nuerologist said no permanent damage but only did a test withthis metal...

Finished loading dose b12 25th Sept GP said next dose in Dec one injection only ...

•9 years ago

Apologies for being slightly gross

I'm asking about urine this time! When I first started to supplement with B12 and B complex, I noticed my urine went bright yellow and the odour was not...

I'm asking about urine this time! When I first started to supplement with B12 a...

•9 years ago

problems due to excess vitamin b12 suppliment

Hi, I just took b12 2500 for a month. Since i was having these chest pain and had low b12 levels of around 214. Well now chest pain is gone but i have...

Hi, I just took b12 2500 for a month. Since i was having these chest pain and h...

•9 years ago

MTHFR compound heterozygous mutation

That's a mouthful right there! I have what is known as a compound heterozygous mthfr mutation. Basically this means that I received one faulty copy of two...

That's a mouthful right there! I have what is known as a compound heterozygous ...

•9 years ago

Trying to remain positive....,

Hello, I am not really sure what to write. I have had PA for many years but Drs (lived abroad) would not give me shots. I came back to the UK and Dr helped...

Hello, I am not really sure what to write. I have had PA for many years but Dr...

•9 years ago

And another lucky one

Yipee. Just got back from seeing my GP. I went with a list of symptoms that haven't improved since my loading doses 12 weeks ago. He was interested in the BMJ...

Yipee. Just got back from seeing my GP. I went with a list of symptoms that have...

•9 years ago

Bizarre aches and pains with PA

Hello all, I suspect that the strange sensations I'm suffering from at night are all part and parcel of this, but thought I'd ask if anyone else has these...

Hello all, I suspect that the strange sensations I'm suffering from at night ar...

•9 years ago

So apparently I am borderline but feel awful

Hello... I hope you can help me. I am not really sure where to start but hoping for some advice as my GP doesn't seem to understand. Firstly I have been...

Hello... I hope you can help me. I am not really sure where to start but hopi...

•9 years ago

Blood results can anyone explain.

These are my latest blood results any help is appreciated. Fbc 424 Wbc 10.7 Haemoglobin concentration 149g/l ( 115 - 165 ) Platelet count 240 10.9g/l (150 -...

These are my latest blood results any help is appreciated. Fbc 424 Wbc 10.7 Haem...

•9 years ago

Folate makes me feel icky!

So my serum Folate levels were low-ish a while ago. And I read everywhere that you should take in some folate/ folic acid to aid in the absorption of B12, so I...

So my serum Folate levels were low-ish a while ago. And I read everywhere that y...

•9 years ago

PA and chemotheropy

Dear all, I was diagnosed with PA (+Intrinsic Factor) 2 years ago. I am wondering if any of you have also been diagnosed with cancer and gone through...

Dear all, I was diagnosed with PA (+Intrinsic Factor) 2 years ago. I am wonder...

•9 years ago

Why Am I Bruising So Easily?

I am injecting most days, mainly in the lower abdomen, but I am bruising very easily. Is this normal? I am injecting sub-cutaneously. The backside doesn't...

I am injecting most days, mainly in the lower abdomen, but I am bruising very ea...

•9 years ago

How often do you get your vit b12 injections?

just wondering how often you get your vitb12 injections. I have just started getting mine and I have a prescription for 3 monthly. My friend only needs them...

just wondering how often you get your vitb12 injections. I have just started ge...

•9 years ago

B12 Injections - Loading Dose - Advice Please

Apologies for the length of this post but I just want to make sure I cover everythng! I've finally bitten the bullet. The ampoules arrived yesterday so I...

Apologies for the length of this post but I just want to make sure I cover every...

•9 years ago

Can You Believe I Got Lucky?

I saw my GP this week, armed with documents re difficulties in diagnosing and treating B12 deficiency. I marched into his room, put the file down on his desk...

I saw my GP this week, armed with documents re difficulties in diagnosing and tr...

•9 years ago

Have I got B12 deficiency

For just short of two years i'very been unwell and was diagnosed with spinal stenosis and two degenerated discs c4/c5. I have insomnia, burning mouth syndrome,...

For just short of two years i'very been unwell and was diagnosed with spinal ste...

•9 years ago

Breathlessness

Does anyone else suffer with breathlessness even though their bloods are 'within the range' as every doctor I have spoken to tells me. I have not met a doctor...

Does anyone else suffer with breathlessness even though their bloods are 'within...

•9 years ago

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