Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for June 2021

Anyone have a noticeable difference when changing types of B12

I’m in The US and the primary type of B12 used is cyno. I have been receiving injections for about a year. I would say I have 50% improvement in symptoms but...

I’m in The US and the primary type of B12 used is cyno. I have been receiving i...

Ctadds1

•3 years ago

12 Replies

B12 HELP PLS!

Hi, Am now officially out of vials and for some unjustified reason cannot seem to order anymore hydroxocobalamin from amazon.de. I last ordered in October last...

Hi, Am now officially out of vials and for some unjustified reason cannot seem t...

Traveller702

•3 years ago

6 Replies

Hello

Hello everyone. Im new here. Why are my serum B12 levels normal, and yet I am getting worrying neurological symptoms. I have B12 injections and have had...

Hello everyone. Im new here. Why are my serum B12 levels normal, and yet I am...

Dancers1

•3 years ago

9 Replies

Want to take advantage of all our features? Just log in!

Active B12 HIGH !

Hi, my Active B12 is 120( very high), my Vitamin 12 is normal (300) never took any supplements ever...Shall I be concerned to get the Astra jab? Thanks for...

Hi, my Active B12 is 120( very high), my Vitamin 12 is normal (300) never took ...

Star59

•3 years ago

6 Replies

C Diff and B12 Deficiency?

Anybody have experience with C Diff and possible B12 deficiency? I had 2 rounds of C Diff (the first in January 2021). B12 symptoms were not present...

Anybody have experience with C Diff and possible B12 deficiency? I had 2 rounds ...

Pain12345

•3 years ago

6 Replies

Mutaflor

Anyone tried mutaflor with success ? I’ve been reading positive things about it’s impact on the gut

Anyone tried mutaflor with success ? I’ve been reading positive things about it’...

lifegems

•3 years ago

Be the first to reply

MMA test results

I recently saw a doc who told me my MMA results are low (standard range 87-318). My results were 73. She said this tell her my body’s store of B12 is very high...

I recently saw a doc who told me my MMA results are low (standard range 87-318)....

Ctadds1

•3 years ago

8 Replies

GP says it’s low B12 Level but not PA

My B12 serum level was 248 which my GP says is at the low end of normal. She ordered one B12 injection a month for 3 months (3 injections total). I have pins...

My B12 serum level was 248 which my GP says is at the low end of normal. She ord...

Pain12345

•3 years ago

21 Replies

Urine vs blood for B vitamins - anyone understand why one could be high and one low?

I have had several blood tests for Vitamin B12 which has increased over the past 12-14 months via supplementation (igennus super B mainly). My latest...

I have had several blood tests for Vitamin B12 which has increased over the past...

jsy_girl

•3 years ago

5 Replies

With an allergic reaction to B12 injections, what is the reaction to?

I currently take sublingual Hydroxycobalamin by Biocare, with no problem, in fact a staggering improvement, but a long way to go and contemplating self...

I currently take sublingual Hydroxycobalamin by Biocare, with no problem, in fac...

Gillybean1

•3 years ago

10 Replies

Gastritis improvement with injections

I am curious if those with gastritis have found it improved after injections. I had an endoscopy last year, after monthly injections were started, which...

I am curious if those with gastritis have found it improved after injections. I...

siamesefrmsiam

•3 years ago

4 Replies

Positive intrinsic factor tests

Hi there, I have had 2 positive intrinsic factor antibody tests. I also have all of the symptoms of PA. Fatigue, nausea, pins and needles in feet, loose...

Hi there, I have had 2 positive intrinsic factor antibody tests. I also have a...

JSD100

•3 years ago

22 Replies

Getting B12 in Northern Ireland

Hello - I am in Northern Ireland and due to Brexit we are having trouble getting g lots of things here. My b12 from Germany seems to be one. I have found a...

Hello - I am in Northern Ireland and due to Brexit we are having trouble getting...

Jennygal

•3 years ago

5 Replies

Any B12D situations that rectify with replacement, except vegan/diet ? Also, anyone else in Gloucestershire?

Hi, me again. Sorry I have not replied to some comments on previous post, I will but been struggling. I have written to GP as knew blood tests would be ok...

Hi, me again. Sorry I have not replied to some comments on previous post, I will...

eclilley

•3 years ago

11 Replies

Iron and b12 supplements

Hi all, Quick question, but if I supplement with a vitamin b complex, will this deplete iron reserves? I ask as my ferritin levels were at the low end of...

Hi all, Quick question, but if I supplement with a vitamin b complex, will this...

Job387

•3 years ago

2 Replies

Could I have B12 deficiency or PA

For over a decade I have been suffering from severe fatigue and was told I had hypothyroidism and prescribed levothyroxine. I have been gaining weight too...

For over a decade I have been suffering from severe fatigue and was told I had h...

Pixelchic

•3 years ago

14 Replies

B12 injection and neck rash

I had my initial loading doses in March this year. After 8 days a rash appeared on the back of my neck. 3 days after I had finished the loading doses I...

I had my initial loading doses in March this year. After 8 days a rash appeared...

B52s

•3 years ago

7 Replies

Opening posts

Anyone else having problems?

Nackapan

•3 years ago

8 Replies

Blood test results

I have always been able to pick up a print out of my test results from my GP. but we moved house in Sept last year and joined a new practise, when I asked for...

I have always been able to pick up a print out of my test results from my GP. bu...

miravet

•3 years ago

15 Replies

active b12 result??

hi i’m undiagnosed but i also have autoimmune thyroid disease i did a private blood test to check my vitamins and my active b12 came back at 20 (26.5-165)...

hi i’m undiagnosed but i also have autoimmune thyroid disease i did a private b...

chloe12334455

•3 years ago

4 Replies

Folic Acid and B12 injections

I have always had low Iron and Folate but until recently my GP has done nothing to correct the levels. It was a diagnosis of Oral Lichen Planus to have my...

I have always had low Iron and Folate but until recently my GP has done nothing ...

B52s

•3 years ago

7 Replies

Happy Birthday to Nackapan !

Just wanted to say happy BIG birthday, Nackapan . Hope this year brings you some answers, health improvements and a chance to make a lot of happy memories. Oh...

Just wanted to say happy BIG birthday, Nackapan . Hope this year brings you some...

Cherylclaire

Forum Support•3 years ago

19 Replies

Something different re PA to read

Over the past week I've found mentions of PA in a couple of unexpected places. The first was a magazine from a professional society of which I am a member...

Over the past week I've found mentions of PA in a couple of unexpected places. ...

Suzibelle

•3 years ago

1 Reply

Neuropathy and diabetes?

I have now been diagnosed with diabetes and the nurse said there is a strong link between PN and diabetes. Does anyone else know about this?

I have now been diagnosed with diabetes and the nurse said there is a strong lin...

jillc39

•3 years ago

6 Replies

Can b12 in blood be high but still deficient in cells

Can b12 be high in blood but still be deficient in cells? I was given b12 injections in 2015 by gp but no further testing was done to see if I was deficient or...

Can b12 be high in blood but still be deficient in cells? I was given b12 inject...

Auntyp62

•3 years ago

18 Replies

Worried about bulbar als

Over the last 6-7 weeks I’ve been feeling lightheaded, headaches, a strange sensation in my tongue like it’s stiff and doesn’t move properly when I talk,...

Over the last 6-7 weeks I’ve been feeling lightheaded, headaches, a strange sens...

Sarah0192

•3 years ago

13 Replies

Cyanocobalamin v Hydroxocobalamin

Hi all I've just managed to find the information I had read online a while back regarding the various forms of Vitamin B12 and which one to use. Although...

Hi all I've just managed to find the information I had read online a while back ...

Moggy1234

•3 years ago

10 Replies

Good hematologist in Glasgow/central belt of Scotland

Hi - does anyone have experience of a good hematologist in Glasgow or the wider Central Belt of Scotland? I would be very great if you could PM me if you have...

Hi - does anyone have experience of a good hematologist in Glasgow or the wider ...

Bluemallers

•3 years ago

Be the first to reply

B12 injection appointment

Hi, Following on from my previous post (not sure if I should have started new or just added to last one, if admin want to let me know) Anyway, I went to my...

Hi, Following on from my previous post (not sure if I should have started new or...

lfc4eva

•3 years ago

41 Replies

Cyanocobalamin or Hydroxocabalamin?

I recently placed an order with Amazon.de but inadvertently ordered Cyanocobalamin instead of Hydroxocobalamin injections. Can anyone advise on the benefits...

I recently placed an order with Amazon.de but inadvertently ordered Cyanocobalam...

Moggy1234

•3 years ago

15 Replies

Search posts

Pinned Posts

See all

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

See all polls

How Often do you feel you actually need your B12 injection?

Vote

Topics

All posts(76)

All things Pernicious Anaemia Society(76)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2021

Anyone have a noticeable difference when changing types of B12

B12 HELP PLS!

Hello

Active B12 HIGH !

C Diff and B12 Deficiency?

Mutaflor

MMA test results

GP says it’s low B12 Level but not PA

Urine vs blood for B vitamins - anyone understand why one could be high and one low?

With an allergic reaction to B12 injections, what is the reaction to?

Gastritis improvement with injections

Positive intrinsic factor tests

Getting B12 in Northern Ireland

Any B12D situations that rectify with replacement, except vegan/diet ? Also, anyone else in Gloucestershire?

Iron and b12 supplements

Could I have B12 deficiency or PA

B12 injection and neck rash

Opening posts

Blood test results

active b12 result??

Folic Acid and B12 injections

Happy Birthday to Nackapan !

Something different re PA to read

Neuropathy and diabetes?

Can b12 in blood be high but still deficient in cells

Worried about bulbar als

Cyanocobalamin v Hydroxocobalamin

Good hematologist in Glasgow/central belt of Scotland

B12 injection appointment

Cyanocobalamin or Hydroxocabalamin?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive