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Pernicious Anaemia Society

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Looking for PA Consultant

Hi, I was diagnosed about thee months ago and I'm on B12 injections and feeling much better. However, diagnosis remains very uncleal. Very low B12, below...

Hi, I was diagnosed about thee months ago and I'm on B12 injections and feeling ...

oilbeetle

•48 minutes ago

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Help please

I am really struggling.i usually self inject every week and have tried to keep that up but had two bad infections with antibiotics .my thyroid levels were off...

I am really struggling.i usually self inject every week and have tried to keep t...

Andypandy30

•2 hours ago

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Parietal cell regeneration

I think my B12 deficiency is due to malabsorption. Possibly from taking omeprazole for 20 years. I am addressing my deficiencies with all cofactors, but my...

I think my B12 deficiency is due to malabsorption. Possibly from taking omeprazo...

Chickens44

•3 hours ago

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medical Cannabis

Does anyone have experience of medical cannabis? There was a webinair, last week that said it promoted the growth of the myelin ?

Does anyone have experience of medical cannabis? There was a webinair, last wee...

westwalessupport

•7 hours ago

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cobalamin supplies going free

hello all. I made an error and ordered the wrong ampules. These are the ones I have - Pascoe Vitamin B12 Injectopaz 1000 mcg, Vitamin B12 Deficiency,...

hello all. I made an error and ordered the wrong ampules. These are the ones I ...

Kpfrosty

•8 hours ago

4 Replies

Oregano Oil

Does anyone take Oregano oil (not the essential oil, but the capsules). It is supposed to help lots of ailments, including inflammation, infections, and it...

Does anyone take Oregano oil (not the essential oil, but the capsules). It is s...

Chickens44

•22 hours ago

3 Replies

iron blood test

can someone help me understand these results please my mch is low 24.9 my Mcv 80 and my Mchc is 299

can someone help me understand these results please my mch is low 24.9 my Mcv ...

ninja1

•1 day ago

1 Reply

Given Private Diagnosis But Antibody Test Is Negative? A Little Confused.

I recently had a private diagnosis of Autoimmune Thyroiditis. This was given in the context of seeking a diagnosis of my B12 deficiency which was said to be...

I recently had a private diagnosis of Autoimmune Thyroiditis. This was given in ...

B12again

•2 days ago

5 Replies

Help!!

Hi have been very unwell for over 2 years now please can you look at my profile and offer any advice .... I really am struggling and don't know what to do...

Hi have been very unwell for over 2 years now please can you look at my profile ...

Cabbages123

•2 days ago

6 Replies

B12 and thyroid problems

I usually self injevt every week but due to going through settling thyroid levels I dint know when I should inject .is anyone else in same position

I usually self injevt every week but due to going through settling thyroid level...

Andypandy30

•2 days ago

2 Replies

Thanks for yr thghts on sudden ferritin rise...wonder if anyone can advise on iron panel results please...

Thank you for your help with thoughts as to rise in ferritin recently. My iron panel has worked, it was a fingerprick test so unsure as to accuracy? But...

Thank you for your help with thoughts as to rise in ferritin recently. My iron p...

Jo5454

•2 days ago

6 Replies

iron tablet joy

morning, I’ve just been diagnosed with iron deficiency anaemia and am on day 8 of iron tablets. Yesterday diarrhoea started. I’m interested in people...

morning, I’ve just been diagnosed with iron deficiency anaemia and am on day 8 o...

Ejcl

•2 days ago

7 Replies

why does foot pain go away and come back

hello everyone, I was wondering on like today my feet are good on injection day and in the eve the pain comes then it goes away, is that the nerves trying to...

hello everyone, I was wondering on like today my feet are good on injection day...

JesusMercy60

•3 days ago

3 Replies

Vitamin B6 vs B6 as P5P

I am having problems finding a B complex to take. I am trying to find a supplement that only has 10mg of B6, has no iron included in the mix and no...

I am having problems finding a B complex to take. I am trying to find a suppleme...

Chickens44

•3 days ago

11 Replies

Letters to GP templates and NICE guidelines

Hi Can someone tell me where to find the template letters to the GP? Also the NICE guidelines re the frequency of jabs, and Doctors wanting to do a repeat...

Hi Can someone tell me where to find the template letters to the GP? Also the ...

emmjay77

•3 days ago

1 Reply

Methylcobalamin B12

Hi I’m going to try and do the B12 injections myself but I’m looking for the methylcobalamin B12 I’ve heard a lot of people buy it from Germany please could...

Hi I’m going to try and do the B12 injections myself but I’m looking for the met...

Bess48

•4 days ago

4 Replies

Purchasing Hydroxocobalamin Ampoules UK

Hello All, Just wondering if anyone can advise where is the best place to source hydroxocobalamin vials from in the UK, please (plus syringes)? I found a...

Hello All, Just wondering if anyone can advise where is the best place to sour...

New144

•4 days ago

9 Replies

Optimal Dose For Oral B12 In a Test To Replace Injections.

Having been self injecting for a year now and in a good place, with all cofactors applied, I’m wanting to test myself in increasing the gap between EOD...

Having been self injecting for a year now and in a good place, with all cofactor...

B12again

•4 days ago

4 Replies

B12 low-ish, low-ish vit D negative anti-intrinsic factor. What next?

Hi there, Just hoping to get some guidance on all this. I have hashimoto's, recently diagnosed and my bloods came back showing low-ish B12 and low-ish...

Hi there, Just hoping to get some guidance on all this. I have hashimot...

LifeintheMed

•4 days ago

7 Replies

Can the gut repair after long term use of PPIs?

interesting question put on FB. After using PPis for many years, which have probably reduced stomach acid causing malabsorption, can the gut be healed/repaired...

interesting question put on FB. After using PPis for many years, which have prob...

Chickens44

•4 days ago

1 Reply

does anyone use cyano b12 and have mthfr mutated genes

hello Everyone, I have been studying reading on this issue and find it very controversial, I feel more calm on the cyano for my last two inj. and have been on...

hello Everyone, I have been studying reading on this issue and find it very con...

JesusMercy60

•5 days ago

3 Replies

almost three month eod inj. back nerve pain starting to itch today more I hope is good news

Hello all, I hope this is good news as next month will begin the 4th month of eod injections, my feet pain, back nerve pain and hands this last month have...

Hello all, I hope this is good news as next month will begin the 4th month of e...

JesusMercy60

•5 days ago

2 Replies

90 day Update.

Years ago I rejected the principle that EOD was all I could do although it 'worked'. A year ago I rejected the science of detention times as applied to...

Years ago I rejected the principle that EOD was all I could do although it 'wo...

WIZARD6787

•5 days ago

7 Replies

Active B12 better, do I reduce injections?

I started on hydroxocobalamin injections EOD at the end of May, plus cofactors. I have recently done a Medichecks test which showed my folate and Active B12...

I started on hydroxocobalamin injections EOD at the end of May, plus cofactors. ...

Chickens44

•5 days ago

17 Replies

Markers, PA or MS?

Does PA show as markers in spinal fluid, the same as MS?

westwalessupport

•5 days ago

2 Replies

Medichecks Optimal Health Blood Test

Just received my results back from Medichecks. £199 plus £35 to go to a clinic to get the blood drawn so not cheap. I received 4 pages of results and a Doctors...

Just received my results back from Medichecks. £199 plus £35 to go to a clinic t...

john159

•5 days ago

16 Replies

Usual diagnosis problems

Hello all, first post, but been reading for a while. I seem to be in the usual position, I think I have B12 deficiency but my doctors think otherwise. My...

Hello all, first post, but been reading for a while. I seem to be in the usual ...

frogmore

•5 days ago

12 Replies

follow up

I just had a follow-up with my GP (the unicorn one) - she’s been gobsmacked at my progress on the more regular B12. Interestingly, my most recent blood tests...

I just had a follow-up with my GP (the unicorn one) - she’s been gobsmacked at m...

PlatypusProfit8077

•5 days ago

17 Replies

going on holidays on plane with b12 ampoules and needles etc

I was diagnosed PA 20 years ago. and had monthly injections. I moved to England and new surgery. After blood tests I was reduced to every 3 months. Then when...

I was diagnosed PA 20 years ago. and had monthly injections. I moved to England ...

Higgey

•6 days ago

9 Replies

please help how many ml is 2500 micrograms in an ampule

hello all, I received ampules for the first time from b12 store.com and they came in 2,500 mcg per ampule. I inject 1 ml normally of methyl b12 from a vile...

hello all, I received ampules for the first time from b12 store.com and they ca...

JesusMercy60

•6 days ago

8 Replies

Write a post or ask a question

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

Looking for PA Consultant

Help please

Parietal cell regeneration

medical Cannabis

cobalamin supplies going free

Oregano Oil

iron blood test

Given Private Diagnosis But Antibody Test Is Negative? A Little Confused.

Help!!

B12 and thyroid problems

Thanks for yr thghts on sudden ferritin rise...wonder if anyone can advise on iron panel results please...

iron tablet joy

why does foot pain go away and come back

Vitamin B6 vs B6 as P5P

Letters to GP templates and NICE guidelines

Methylcobalamin B12

Purchasing Hydroxocobalamin Ampoules UK

Optimal Dose For Oral B12 In a Test To Replace Injections.

B12 low-ish, low-ish vit D negative anti-intrinsic factor. What next?

Can the gut repair after long term use of PPIs?

does anyone use cyano b12 and have mthfr mutated genes

almost three month eod inj. back nerve pain starting to itch today more I hope is good news

90 day Update.

Active B12 better, do I reduce injections?

Markers, PA or MS?

Medichecks Optimal Health Blood Test

Usual diagnosis problems

follow up

going on holidays on plane with b12 ampoules and needles etc

please help how many ml is 2500 micrograms in an ampule

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