Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,669 members•24,062 posts

Sort posts by:

Does instrinic factors test determine the severity your PA?

Hi all,I was just wondering. I know you need MMTHFR, folate, iron ect..., but whay does the number or level does instrinic test mean? If any

Hi all,I was just wondering. I know you need MMTHFR, folate, iron ect..., but wh...

Wowo23

•6 hours ago

2 Replies

Magnesium supplements

Has anyone used either Magnesium Chloride (which I understand you can get in a powder), or a magnesium chloride spray? Are they as effective as capsules. I...

Has anyone used either Magnesium Chloride (which I understand you can get in a p...

Chickens44

•19 hours ago

15 Replies

Any doctors in Orange County California that do B12 injections?

Please let me know if there are any doctors willing to do B12 injections for my Mom in Orange County California. Thank you so much.

Please let me know if there are any doctors willing to do B12 injections for my...

Simonapo

•21 hours ago

1 Reply

Want to take advantage of all our features? Just log in!

Hi - 1.5mg VS 1mg Hydroxocobalamin ampoules?

I SI 1mg every 4 days currently to stay functioning. (Was diagnosed back in 2015) I have only been self injecting for the last year and my ability to function...

I SI 1mg every 4 days currently to stay functioning. (Was diagnosed back in 2015...

f1ddle_st1cks

•21 hours ago

3 Replies

4 Years In

Today is the four year anniversary of the start of a 6 day hospitalization. B12 diagnoses was made. At the hospital I was in they only measure to 150 on the...

Today is the four year anniversary of the start of a 6 day hospitalization. B12 ...

WIZARD6787

•22 hours ago

1 Reply

painkillers

what’s the best painkiller to take that does not irritate atrophic gastritis? Thanks 🙏

what’s the best painkiller to take that does not irritate atrophic gastritis? Th...

lifegems

•23 hours ago

10 Replies

Yet another GP trying to stop B12 injections

I have been 'lucky' to get B12 ampoules on prescription but I suspect (although I'm not surprised) that my GP is showing signs of withdrawing this...

I have been 'lucky' to get B12 ampoules on prescription but I suspect (although ...

ClaireWF1346

•1 day ago

18 Replies

Hypothyroidism and diabetes type 2

I have been on T4 since 1995 and had T3 added in about ten years ago. I keep getting very high sugar and high blood pressure. (I eat sensibly and walk most...

I have been on T4 since 1995 and had T3 added in about ten years ago. I keep get...

Jewiemax15

•1 day ago

3 Replies

MMA test ?

my husband is doing the mma test today. He has to collect his urine for 24 hours. He collected twice but when He went to the gym and forgot and went to the...

my husband is doing the mma test today. He has to collect his urine for 24 hours...

StRaphael

•2 days ago

3 Replies

iron test

hello everyone hope your all as good as can be I wonder if you could give me your opinion on these results, thanks Serum iron 10(5.83-34.5) Transferrin 206...

hello everyone hope your all as good as can be I wonder if you could give me you...

Kowbie

•2 days ago

6 Replies

low active b12

when I listed my symptoms and suggested low b12, Dr said" wouldn't that be convenient" my active is 69 and I am missing half a colon. Am I imagining it all?

when I listed my symptoms and suggested low b12, Dr said" wouldn't that be conve...

Rustythedog

•2 days ago

7 Replies

Please help

Hi, I have posted here about my mom few months back. She had her second bone marrow biopsy and they found everything normal, she had been taking sublingual B12...

Hi, I have posted here about my mom few months back. She had her second bone mar...

Simonapo

•2 days ago

27 Replies

Singing to myself!

I have the Three Degrees song in my head constantly! Because I keep singing ‘When will I feel well again, when will I have precious moments, etc….’ 🫣 🎶 The...

I have the Three Degrees song in my head constantly! Because I keep singing ‘Whe...

Chickens44

•2 days ago

4 Replies

Where to obtain B12 ampuoles

Hi, My doctor stopped my B12 at injections because my IF test was negative and I'm now "topped up" apparently. I was initially put on oral B12 when I was first...

Hi, My doctor stopped my B12 at injections because my IF test was negative and I...

Dfthbhjj

•2 days ago

9 Replies

Counter Intuitive Self Treatment.

Wwwdot wrote something to the effect that the process of self treating is counter intuitive and someone else wrote that they needed higher amounts than thought...

Wwwdot wrote something to the effect that the process of self treating is counte...

WIZARD6787

•2 days ago

5 Replies

PAS South Wales Coffee Morning

Hi All, I noticed this recently on PAS website. https://pernicious-anaemia-society.org/event/south-wales-coffee-morning/ There is a coffee morning at PAS...

Hi All, I noticed this recently on PAS website. https://pernicious-anaemia-soc...

Sleepybunny

•2 days ago

Be the first to reply

Frustration with German websites.

Can anyone help please. I'm trying to order B12 Depot from any of the German sites recommended - Versandapo (grudgingly), Apohealth, etc. I tried to follow...

Can anyone help please. I'm trying to order B12 Depot from any of the German sit...

Scipio99

•3 days ago

10 Replies

Symptoms not symmetrical.

Long ago I noticed that in diagnosis criteria it is often stated that the neurological symptoms of B12D are symmetrical. At first when grossly under...

Long ago I noticed that in diagnosis criteria it is often stated that the neurol...

WIZARD6787

•3 days ago

3 Replies

Which battle to fight first?

I have joined another vitamin D deficiency group and it appears all the same symptoms manifest themselves as in B12 deficiency. So if deficient in both, which...

I have joined another vitamin D deficiency group and it appears all the same sym...

Chickens44

•3 days ago

11 Replies

PAS - Surveys and Newsletters - LEGACY MEMBERS

Please note that it is important that members of PAS make sure that their Account is up to date with their current email address and that they check junk...

Please note that it is important that members of PAS make sure that their Accoun...

PAScomms

•3 days ago

Be the first to reply

mma test

hello, new here I’ll try to be brief. Husband dx PA about 6 years ago. Had injections weekly until B12 was in normal range than monthly injections. About...

hello, new here I’ll try to be brief. Husband dx PA about 6 years ago. Had in...

StRaphael

•4 days ago

31 Replies

New Understanding

I have written here often that when I change my suplimentation and it is an improvement what I experience is an uptick followed by a downturn then a gradual...

I have written here often that when I change my suplimentation and it is an impr...

WIZARD6787

•4 days ago

4 Replies

A New Sign of Improvement?

I'm wondering if this is a sign of a new nerve improvement. I was chopping onions yesterday and my eyes started burning and tears were running down my face....

I'm wondering if this is a sign of a new nerve improvement. I was chopping onio...

MoKayD

•4 days ago

9 Replies

Sub cutaneous.........

What equipment.........needle size etc do I need for sub cutaneous jabs please??

What equipment.........needle size etc do I need for sub cutaneous jabs please??...

edeuweed

•5 days ago

8 Replies

Normal Serum/Low Active

Hi everyone Has anyone any idea why my Serum B12 is normal and my active is low (39) Any help much appreciated

Hi everyone Has anyone any idea why my Serum B12 is normal and my active is lo...

oily1601

•5 days ago

20 Replies

The proverbial has hit the proverbial.

An update... You're all no doubt aware if my many previous posts about my experience with horrible agitation and anxiety during 'reversing out'. I've been...

An update... You're all no doubt aware if my many previous posts about my exper...

Laverdista

•5 days ago

22 Replies

Research / survey

I still can't locate the link to participate with the PHD student.Very frustrating.

I still can't locate the link to participate with the PHD student.Very frustrati...

Nackapan

•6 days ago

3 Replies

Is there any value in a Reticulocyte blood test to evaluate B12 and Irons if taking B12 and B Complex supplements?

Hello Everyone, As usual I am a bit out of my depth, or clutching at straws possibly. But wondered on your thoughts about doing this test, and would...

Hello Everyone, As usual I am a bit out of my depth, or clutching at straws pos...

Gillybean1

•6 days ago

25 Replies

Active B12 level on injections

What level would you expect your active B12 level to be after five months of SI EOD? I’ve just done a Medichecks test and it has come back as 150 (range 37.5 -...

What level would you expect your active B12 level to be after five months of SI ...

Chickens44

•6 days ago

54 Replies

I'm Going To Give SI A Stab 😆

I currently get NHS B12 jabs every 2 months, but I have a lot of Neuro symptoms. I have pins and needles in my hands and feet constantly for years, balance...

I currently get NHS B12 jabs every 2 months, but I have a lot of Neuro symptoms....

Sparklingsunshine

•6 days ago

5 Replies

Write a post or ask a question

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

Does instrinic factors test determine the severity your PA?

Magnesium supplements

Any doctors in Orange County California that do B12 injections?

Hi - 1.5mg VS 1mg Hydroxocobalamin ampoules?

4 Years In

painkillers

Yet another GP trying to stop B12 injections

Hypothyroidism and diabetes type 2

MMA test ?

iron test

low active b12

Please help

Singing to myself!

Where to obtain B12 ampuoles

Counter Intuitive Self Treatment.

PAS South Wales Coffee Morning

Frustration with German websites.

Symptoms not symmetrical.

Which battle to fight first?

PAS - Surveys and Newsletters - LEGACY MEMBERS

mma test

New Understanding

A New Sign of Improvement?

Sub cutaneous.........

Normal Serum/Low Active

The proverbial has hit the proverbial.

Research / survey

Is there any value in a Reticulocyte blood test to evaluate B12 and Irons if taking B12 and B Complex supplements?

Active B12 level on injections

I'm Going To Give SI A Stab 😆

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive