Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

33,123 members•24,408 posts

Sort posts by:

Professional Help with case of late diagnosis.

Hello, Hope everyone is as well as can be. I found out in 2023 that I had pernicious anaemia since 2013 left untreated. I have records of the negligence...

Hello, Hope everyone is as well as can be. I found out in 2023 that I had p...

Farls143

•3 hours ago

4 Replies

Palpitations

Hi..does any body who self injects b12 had a onset of palpations afterwords

Mozza127

•12 hours ago

1 Reply

Hashimoto and PA

Hi, All. I was dx with hashimoto 25 years ago. Started on 25 mcg levothyroxin and 20 plus years later my dose was 150. I started SI 2 years ago. I've made tons...

Hi, All. I was dx with hashimoto 25 years ago. Started on 25 mcg levothyroxin an...

Iheartb12

•14 hours ago

Be the first to reply

Want to take advantage of all our features? Just log in!

Cyanocobalamin vs hydroxocobalamin

A common question among people with vitamin B12 deficiency is whether there is a difference between cyanocobalamin and hydroxocobalamin in the treatment of B12...

A common question among people with vitamin B12 deficiency is whether there is a...

WiscGuy

•1 day ago

5 Replies

Neurology appointment update

Went to see my neurologist today due tp my continuing neuro symptoms and she is confused as to why my gp has stopped my injections and the symptoms have...

Went to see my neurologist today due tp my continuing neuro symptoms and she is ...

Hgsn

•1 day ago

4 Replies

Italians are on the brain

https://www.mdpi.com/1422-0067/25/1/590 This article is a bit beyond my weary synapses, but it gives a good overview of the recent (2023) knowledge on what...

https://www.mdpi.com/1422-0067/25/1/590 This article is a bit beyond my weary sy...

Oneash

•1 day ago

5 Replies

Help needed please

I'm in the middle of getting my B12 NHS prescription sorted .During which time the G.p has 'allowed ' my B12 injections. Although repeat prescription...

I'm in the middle of getting my B12 NHS prescription sorted .During which time t...

Nackapan

•1 day ago

6 Replies

My B12 PA - Intrinsic factor missing story, so far...

My B12 Pernicious Anaemia (PA) / Intrinsic Factor deficiency would apear to be generational / DNA related, my grandmother suffered from it and way back then...

My B12 Pernicious Anaemia (PA) / Intrinsic Factor deficiency would apear to be g...

WotNotAgainM8

•2 days ago

4 Replies

Did new symtpoms arise before feeling better?

Getting concerned, I have been on twice a week injections since October. I started with Hydroxocobabalmin and then switched to Methyl in December. I cannot...

Getting concerned, I have been on twice a week injections since October. I star...

fx9898

•2 days ago

8 Replies

Anyone here have a folate defiency from taking agressive b12 injections?

fx9898

•3 days ago

11 Replies

Brick Wall Poem

I always write my feelings n thoughts down into short poems. It is how I deal with everything I go through. I recently posted on the fibromyalgia forum...

I always write my feelings n thoughts down into short poems. It is how I deal w...

SlothMode

•3 days ago

14 Replies

Help please with folic acid

I've asked a few questions before but really struggling i was given foilc acid as a touch low I've taken the tablets for nearly 3 weeks no improvement really...

I've asked a few questions before but really struggling i was given foilc acid a...

Missfolic63

•3 days ago

6 Replies

Need skin help!

I know this might seem like the least of my worries but my skin since finishing loading dose injections is just so so bad. Full on acne all over my face and...

I know this might seem like the least of my worries but my skin since finishing ...

Hgsn

•3 days ago

11 Replies

Interesting article about high Homocysteine values which untreated or undertreated B12D/ P.A. patients very likely to have .

https://foodforthebrain.org/lowering-homocysteine-why-it-matters-and-how-to-do-it/

https://foodforthebrain.org/lowering-homocysteine-why-it-matters-and-how-to-do-i...

wedgewood

•4 days ago

6 Replies

Conflicting blood test results IFA..I’m struggling

Hello everyone …I’m so pleased I found this page …Sorry if this is too much ..but Im Thinking to introduce myself I need to write some of my life (first time...

Hello everyone …I’m so pleased I found this page …Sorry if this is too much ..bu...

Dislancas69

•4 days ago

10 Replies

levels after injections

After having my loading injections stopped by the GP because the nurse decided to take my bloods straight after my first injection which resulted in a result...

After having my loading injections stopped by the GP because the nurse decided t...

Kayls32

•5 days ago

67 Replies

low cortisol?

anyone ever had issues with low cortisol? What was your level, symptoms and did you find any solution?

anyone ever had issues with low cortisol? What was your level, symptoms and d...

B12life

•6 days ago

12 Replies

Can you test for anti-intrinsic factor antibodies while injecting?

fx9898

•6 days ago

9 Replies

high MCV, MCH….low MCHC

Hello im newand thanks for letting me join. would appreciate any feedback please. AUG 24 MCV 101.4 (80-100) MCH 32 (27-32) MCHC 316 (320-360) Could...

Hello im newand thanks for letting me join. would appreciate any feedback pleas...

FoxyTed

•7 days ago

20 Replies

Extreme fatigue

I finished my loading doses +3 a week and a half ago, my active b12 level was 16- classed as sever deficiency i believe.... Saw my gp this week as my fatigue...

I finished my loading doses +3 a week and a half ago, my active b12 level was 16...

Hgsn

•7 days ago

61 Replies

ADENOSYLCOBALAMIN - Nestle patent application

For those who like a dense medical read: https://patents.google.com/patent/WO2021058514A1/en My take away is Nestlé is applying for a patent for a formulation...

For those who like a dense medical read: https://patents.google.com/patent/WO202...

Iheartb12

•7 days ago

11 Replies

High Folate inhibits B12 absorption

Interesing read on how high levels of Folate could cause issues with b12 absorption. https://www.sciencedirect.com/science/article/pii/S2161831322005257...

Interesing read on how high levels of Folate could cause issues with b12 absorpt...

fx9898

•8 days ago

7 Replies

SI Aluminium toxicity?

Have had someone suggest to me--not a medical professional, but someone well-read in STEM--that injections administered at a high frequency (say EOD, as I do)...

Have had someone suggest to me--not a medical professional, but someone well-rea...

a-wonderful-seed

•8 days ago

24 Replies

Do I need Folate?

I take 2 weekly Methylcobalamin injections for suspected b12 deficiency. My legs which were suffering from weakness, burning, sharp pains and tingling seem to...

I take 2 weekly Methylcobalamin injections for suspected b12 deficiency. My legs...

fx9898

•8 days ago

1 Reply

over heated b12 ampoules?

I stored my ampoules in dark cupboard, However now looking back I cannot say for certain it remained under 25c - as heating would be on Would this cause...

I stored my ampoules in dark cupboard, However now looking back I cannot say f...

Veeru1093

•8 days ago

3 Replies

Update . Repeat prescription cancelled by an admin.

I then got a doctors appointment as was not informed but found out as the pharmacy didn't have my prescription. Repeat disappeared ftom the app. G.p did...

I then got a doctors appointment as was not informed but found out as the pharma...

Nackapan

•9 days ago

30 Replies

WANTED: Open-mined haematologist!

My doctor has agreed to let me self-inject b12 weekly, if I can find an NHS haematologist who can confirm that this dose is not toxic. NHS neurologists may...

My doctor has agreed to let me self-inject b12 weekly, if I can find an NHS haem...

newlandvale

•10 days ago

60 Replies

Positive IFA, diagnosis not accepted by GP

I was diagnosed with Pernicious Anaemia in 2018 but was not aware that I needed injections for it, so took oral supplements instead. I switched GP's a few...

I was diagnosed with Pernicious Anaemia in 2018 but was not aware that I needed ...

greenmug

•10 days ago

19 Replies

Advice on b vitamins

After the help I had yesterday, another question.Can I ask if a multi b vitamin is necessary? The dr I saw at the start says no, as you can get most from food,...

After the help I had yesterday, another question.Can I ask if a multi b vitamin ...

Charlie27612

•10 days ago

6 Replies

B12 different ranges

Please can someone correlate the active B12 with these other ranges. It was taken from a restless legs article in Pernicious Anemia Society article. Trying to...

Please can someone correlate the active B12 with these other ranges. It was take...

Marymary7

•10 days ago

8 Replies

Write a post or ask a question

Search posts

Pinned Posts

See all

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

See all polls

How Often do you feel you actually need your B12 injection?

Vote

Topics

All posts(109)

All things Pernicious Anaemia Society(109)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

Professional Help with case of late diagnosis.

Palpitations

Hashimoto and PA

Cyanocobalamin vs hydroxocobalamin

Neurology appointment update

Italians are on the brain

Help needed please

My B12 PA - Intrinsic factor missing story, so far...

Did new symtpoms arise before feeling better?

Anyone here have a folate defiency from taking agressive b12 injections?

Brick Wall Poem

Help please with folic acid

Need skin help!

Interesting article about high Homocysteine values which untreated or undertreated B12D/ P.A. patients very likely to have .

Conflicting blood test results IFA..I’m struggling

levels after injections

low cortisol?

Can you test for anti-intrinsic factor antibodies while injecting?

high MCV, MCH….low MCHC

Extreme fatigue

ADENOSYLCOBALAMIN - Nestle patent application

High Folate inhibits B12 absorption

SI Aluminium toxicity?

Do I need Folate?

over heated b12 ampoules?

Update . Repeat prescription cancelled by an admin.

WANTED: Open-mined haematologist!

Positive IFA, diagnosis not accepted by GP

Advice on b vitamins

B12 different ranges

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive