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Pernicious Anaemia Society

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All posts for February 2022

My grandmother died of What can I do,?. I am hypothyroid & have all the symptoms of PA but GP said B12 OK

What can I do,?

PolyannaYorkshire

•3 years ago

13 Replies

A question 🍗🐟🧀🧈🥛🥕🍆🍅🥬🍒

Have I got this right? Every day your diet consists of meat, fish, cheese, butter, milk, vegetables and fruit. You don't have Helicobacter pylori. You have...

Have I got this right? Every day your diet consists of meat, fish, cheese, butte...

Beginner2

•3 years ago

11 Replies

Very high B12

Two years ago my B12 was low and my physician prescribed shots. I completed those and also took oral B12 and Complex for a while. My B12 levels were back to...

Two years ago my B12 was low and my physician prescribed shots. I completed tho...

ratnababu

•3 years ago

2 Replies

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High active b12 a problem?

Haemoglobin 122, red blood cell width 18.9%, MCV 77.6, MCH24.4, MCHC 314g/l Ferritin 18ug/l Folate 9.9 Vit D 106 B12- 1600(supplementing) Transferrin...

Haemoglobin 122, red blood cell width 18.9%, MCV 77.6, MCH24.4, MCHC 314g/l Fe...

Mintymoomoo

•3 years ago

3 Replies

Still intolerance for jab

I take 15000 mcg a day slow release methylcobalamine pills and inject every other day hydroxocobalamin and the next day cyanocobalamin. But I found that I...

I take 15000 mcg a day slow release methylcobalamine pills and inject every othe...

Hamayeshguy

•3 years ago

5 Replies

Maybe I'm panicking but ........

Just a thought. With all that's going on should we stock pile B12? Depressing but I couldn't stand going back to the state I was in before I starting taking...

Just a thought. With all that's going on should we stock pile B12? Depressing bu...

charks

•3 years ago

6 Replies

Plea to a GP - a poem

Well, I've lost a few teeth And I don't have much hair. My brain's a bit woolly- It's been a bit of a mare. Half of my symptoms Go unrecognised- Like those...

Well, I've lost a few teeth And I don't have much hair. My brain's a bit woolly-...

Cherylclaire

Forum Support•3 years ago

20 Replies

Medichecks Pernicious Anaemia Test

Hi, Just wondering whether anyone here has had the medichecks test done to see if they have Pernicous Anaemia? I have Hashimotos, and my B12 level at my last...

Hi, Just wondering whether anyone here has had the medichecks test done to see i...

Chasing-rainbows

•3 years ago

3 Replies

Bloods after supplementing

My question is .... If I am supplementing B12 (sublingual, not injections) and my serum/holo-T levels increase, does that mean supplements are effective?...

My question is .... If I am supplementing B12 (sublingual, not injections) and m...

dinkyoodle

•3 years ago

6 Replies

The Gp surgery saga continues .....update 3

Booked my IM b12 injection despite my medical notes saying 3 monthly now .(6 weeks ago) inject at home sc inbetween)with prescription b12 Nurse Who queried...

Booked my IM b12 injection despite my medical notes saying 3 monthly now .(6 wee...

Nackapan

•3 years ago

11 Replies

Very high active b12, off supplementing

Hi was supplementing with methyl b12 2000mcg and a December blood test showed 1900 high levels of b12. 6 weeks later tested active b12 and it is still very...

Hi was supplementing with methyl b12 2000mcg and a December blood test showed 19...

Mintymoomoo

•3 years ago

16 Replies

Oral Contraceptives and B12 and folate and Iron. Any update in the last 5 years?

Hi all, I've searched the forum about how B12 /folate is effected by oral contraceptives, which I have been on for over 20 years. The last posts I can find are...

Hi all, I've searched the forum about how B12 /folate is effected by oral contra...

Isolayslas

•3 years ago

7 Replies

Has anyone tried methyl cobalamin for injection from India, japan and Malaysia?

In these countries methylcobalamine is sold in supermarket. Indian methylcobalamine is so cheap and look like they have proper certificates for quality...

In these countries methylcobalamine is sold in supermarket. Indian methylcobala...

Hamayeshguy

•3 years ago

2 Replies

MMA urine test

Hi, Is the mma urine test more accurate than the blood test. My 23andme results show several mma mutations but the mma blood result was in range. Is it worth...

Hi, Is the mma urine test more accurate than the blood test. My 23andme results ...

Ecf123

•3 years ago

6 Replies

New regime

Hi everyone, well I’ve come a little way since I last posted. I’m now taking: Vitamin D3 5000iu daily Vitamin K2 100 mcg daily Folic acid 5 mg per day...

Hi everyone, well I’ve come a little way since I last posted. I’m now taking: Vi...

Hidden

•3 years ago

8 Replies

Cobalin H

I have been self injecting ‘Cobalin H ‘ brand of Hydroxocobalamin for years because I get a reaction at the injection site using generics. Unfortunately...

I have been self injecting ‘Cobalin H ‘ brand of Hydroxocobalamin for years beca...

Pentec

•3 years ago

7 Replies

B12 Genetics

I was diagnosed with PA at the approximate age of 16 by Hematologist. Taught to SI at 21 by GP. Due to sporadic treatment due to relocations, I was just...

I was diagnosed with PA at the approximate age of 16 by Hematologist. Taught to ...

ButterflySugarBaby

•3 years ago

36 Replies

Diagnosed this week

Hello, I was diagnosed with PA on Monday! Thought I would come on here to say 'Hi' and maybe see if anyone can offer camaraderie with my experiences. The most...

Hello, I was diagnosed with PA on Monday! Thought I would come on here to say 'H...

DocAJB

•3 years ago

7 Replies

Pernicious Anemia caused by MACD?

Is P/A caused by MACD, and if so how do you treat both without becoming allergic to the B12 shots which are histamine triggers meant to be avoided? What is...

Is P/A caused by MACD, and if so how do you treat both without becoming allergic...

nessanthemum

•3 years ago

2 Replies

MMA and iFAB tests

Hello, My question is about reference ranges for iFAB and MMA tests. My MMA was 26.8 ug/l and the reference says >32 is an issue. My iFAB was 1 AU/ml and the...

Hello, My question is about reference ranges for iFAB and MMA tests. My MMA wa...

Sparklyjenson

•3 years ago

12 Replies

Test for Unsaturated B12 Binding Capacity (UBBC)?

I'm in the UK and have read with interest a few posts on this forum about people who were given the UBBC blood test to identify whether issues with...

I'm in the UK and have read with interest a few posts on this forum about people...

theverytiredperson

•3 years ago

1 Reply

Can I start supplementing b12 now?

Or should I wait incase any more b12 blood tests are needed? I want to get some energy back asap and I don't currently supplement as I was waiting until after...

Or should I wait incase any more b12 blood tests are needed? I want to get some...

dinkyoodle

•3 years ago

6 Replies

Functional B12 Deficiency?

I think I read here that you can have a normal serum B12 result but be deficient if the B12 is not getting through to the cells. I have always received copies...

I think I read here that you can have a normal serum B12 result but be deficient...

flibertygibert

•3 years ago

33 Replies

SUCCESS!!!

Hi all. I just spoke to my primary who is a PA and very kind to me within the clinic that stopped my injections. Of course they were claiming I might have b12...

Hi all. I just spoke to my primary who is a PA and very kind to me within the c...

Wowo23

•3 years ago

13 Replies

vibrations

I have developed a vibration in my left groin. Previously I was suspected to have Covid 19 however I dont think my I did as I have Poly myalgia rheumatic and...

I have developed a vibration in my left groin. Previously I was suspected to hav...

jeanettelcoffey

•3 years ago

6 Replies

Looking for additional vitamin help

Hi guys, first poster here. I have pernicuous anemia and have injections every 10-12 weeks, although some injections barely last a month and im left feeling...

Hi guys, first poster here. I have pernicuous anemia and have injections every 1...

1Thesaint1

•3 years ago

9 Replies

Work effect on B12

Does anyone know if a couple of days of hard work can reduce the quality of the B12 injection. I am due for my next jab in one week but am extremely tired now.

Does anyone know if a couple of days of hard work can reduce the quality of the ...

Yentil

•3 years ago

9 Replies

Update

On 14th January my b12 was initially refused and the nurse has changed my notes to 3 monthly b12 injections. I'm prescribed 2 weekly. To date no...

On 14th January my b12 was initially refused and the nurse has changed my notes ...

Nackapan

•3 years ago

12 Replies

Advice on Folic Acid.

I am having B12 injections every eight weeks now. I was diagnosed nearly three years ago but haven't taken any Folic Acid yet so I've bought a low price,...

I am having B12 injections every eight weeks now. I was diagnosed nearly three y...

3rdNettydoon

•3 years ago

18 Replies

Suffering since 4 years and now pains are increasing.

Hi All, I would like you guys to know that around 4 years back I wrote a post here regarding my b12 + D3 + Calcium deficiency. History: I used to have burning...

Hi All, I would like you guys to know that around 4 years back I wrote a post he...

AbdusSaboor

•3 years ago

10 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2022

My grandmother died of What can I do,?. I am hypothyroid & have all the symptoms of PA but GP said B12 OK

A question 🍗🐟🧀🧈🥛🥕🍆🍅🥬🍒

Very high B12

High active b12 a problem?

Still intolerance for jab

Maybe I'm panicking but ........

Plea to a GP - a poem

Medichecks Pernicious Anaemia Test

Bloods after supplementing

The Gp surgery saga continues .....update 3

Very high active b12, off supplementing

Oral Contraceptives and B12 and folate and Iron. Any update in the last 5 years?

Has anyone tried methyl cobalamin for injection from India, japan and Malaysia?

MMA urine test

New regime

Cobalin H

B12 Genetics

Diagnosed this week

Pernicious Anemia caused by MACD?

MMA and iFAB tests

Test for Unsaturated B12 Binding Capacity (UBBC)?

Can I start supplementing b12 now?

Functional B12 Deficiency?

SUCCESS!!!

vibrations

Looking for additional vitamin help

Work effect on B12

Update

Advice on Folic Acid.

Suffering since 4 years and now pains are increasing.

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive