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Pernicious Anaemia Society

31,931 members • 23,068 posts

All posts for May 2018

B12 injections

Hi guys I first posted on here at the end of March - many thanks to Sleepybunny for your help at that time! - I tried a couple of injections because of...

Hi guys I first posted on here at the end of March - many thanks to Sleepybunny ...

FionaD

•6 years ago

4 Replies

Ferrous gluconate - how soon should I feel the effects?

Hi all, I have just been given a new prescription of ferrous gluconate 300mg (3 tablets per day) and wondered if you knew how quickly I might see the effects?...

Hi all, I have just been given a new prescription of ferrous gluconate 300mg (3 ...

SC88

•6 years ago

2 Replies

Why has my folate increased?

Have been taking sub-lingual B12 for a couple of months. Felt better than I have for 30 years. New blood results give an increase in B12 by 470 to 690 and...

Have been taking sub-lingual B12 for a couple of months. Felt better than I have...

JossB

•6 years ago

2 Replies

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Thinking of self-injecting

Hi I’m probably repeating question / advice request from elsewhere but hoping some of you can help - I’m new here! I live in the UK and was diagnosed with B12...

Hi I’m probably repeating question / advice request from elsewhere but hoping so...

Lynne17

•6 years ago

12 Replies

Is it still B12 symptoms or something else?

I was diagnosed with B12 deficiency last September with levels of 111 ( <130 consistent with deficiency). After my loading doses was offered 3 monthly...

I was diagnosed with B12 deficiency last September with levels of 111 ( <130 con...

Padders12

•6 years ago

21 Replies

Brain fog

Hi All I’ve heard this term used regularly by bloggers and it is used on official sites but do it is a bit of a ‘catch all’ term! I am not sure if my ‘brain...

Hi All I’ve heard this term used regularly by bloggers and it is used on officia...

Alfabeta

•6 years ago

12 Replies

Folate advice please?

Should I be supplementing Folate if I am SI weekly please?

Julie07

•6 years ago

3 Replies

Hang over from being active

Hi there I was feeling slightly better yesterday. Have been doing SI of Hydro every other day for about a month and added in folate 400 mcg. I pushed myself to...

Hi there I was feeling slightly better yesterday. Have been doing SI of Hydro ev...

Sita505USA

•6 years ago

14 Replies

SALT ** is also helping me.

Will try to write more on this later, but just wanted to get the message out. Thank you. Also just took some cinnamon, and cardamom earlier. *please make...

Will try to write more on this later, but just wanted to get the message out. T...

Fl17

•6 years ago

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Almost good news

About a month and a half ago I went back to the doctors, complaining that despite my injections and patches I still wasn’t seeing any improvement. They...

About a month and a half ago I went back to the doctors, complaining that despit...

heather_turner

•6 years ago

2 Replies

Pins and Needles?

A couple weeks ago I started exercising more regularly. After about three days, my legs mostly my calves would start to tingle or get pins and needles and I...

A couple weeks ago I started exercising more regularly. After about three days, ...

JMck2004

•6 years ago

1 Reply

Help! Where can we buy B12 ampoules?

Sorry, I'm sure this has been answered already and I did try a search, but couldn't find answers. I just tried to order my latest supply of 100 ampoules of...

Sorry, I'm sure this has been answered already and I did try a search, but could...

kirsten555

•6 years ago

11 Replies

Hanna

Hi,new here, i have PA, and i get 2 times a week B12 injections, for over two years now, still i am not much better, numbness in feet, tingling in hands and...

Hi,new here, i have PA, and i get 2 times a week B12 injections, for over two ye...

Muttilina

•6 years ago

10 Replies

Help

Hi, thanks in anticipation , Having had symptoms of falling, fuzzy head, unable to hold down a conversation, terrible electric shock feelings in my fingers...

Hi, thanks in anticipation , Having had symptoms of falling, fuzzy head, unable...

PamBow

•6 years ago

2 Replies

Hyperchlorhydria with PA?

Hi All! Wondering if anyone has heard of having Hyperchlorhydria (increased acid secretion) versus Hypochloridria (decreased stomach acid) with PA? I had a...

Hi All! Wondering if anyone has heard of having Hyperchlorhydria (increased ac...

RAAnn

•6 years ago

6 Replies

Confusion over conflicting information regarding low b12

Was diagnosed with low folate last year and borderline b12 Prescibed folic acid for three months ,new blood tests low b12 177 range 180-2000 .serum folate 5.1...

Was diagnosed with low folate last year and borderline b12 Prescibed folic acid ...

Isycampbell

•6 years ago

7 Replies

Tinnitus

I eventually got my loading doses after getting my doctors to acknowledge that I was B12 deficient , the many symptoms I had improved massively apart from sore...

I eventually got my loading doses after getting my doctors to acknowledge that I...

Wendyr2010

•6 years ago

4 Replies

Taken off B12

Hi please help. I was told I no longer needed the injection as my levels were very high and should have had my jab end of April. Since then felt really rubbish...

Hi please help. I was told I no longer needed the injection as my levels were ve...

Lorraine-ann

•6 years ago

8 Replies

Injection Timetable?

I am self diagnosed and really feel the improvement in self injecting. I am not sure I was getting enough so am in the middle of loadi g infections daily,...

I am self diagnosed and really feel the improvement in self injecting. I am not...

1sjc

•6 years ago

3 Replies

Is my B12 too low? I have insomnia, muscle twitching..

Hello, I started having widespread muscle twitching 3 months ago, and so much fatigue, very bad insomnia and night sweats. My GP just told me my B12 is a bit...

Hello, I started having widespread muscle twitching 3 months ago, and so much fa...

missymystique

•6 years ago

47 Replies

More patronising GP guff. This time in the press.

The Northern Echo published a letter from somebody unhappy with her B12 treatment. And she got fobbed off with same old claptrap......

The Northern Echo published a letter from somebody unhappy with her B12 treatmen...

fbirder

•6 years ago

3 Replies

Anyone know anything about glutathione SI?

I realize this is off the topic of PA, but does anyone have any info on glutathione, SI or IV, or a place where I can find information? I'm particularly...

I realize this is off the topic of PA, but does anyone have any info on glutathi...

loves-dogs

•6 years ago

9 Replies

Confusing MCH and MCV results; help please?

Hi There, I've just received some blood tests that I'm a little confused by. It seems like my MCH and MCV are high, but Vitamin B12 and Vitamin D are normal....

Hi There, I've just received some blood tests that I'm a little confused by. It...

lisalisapumpkineater

•6 years ago

8 Replies

Numbness not getting better

Hello, About 5 months ago, I came to my primary with some tingles / numbness that kept popping up in my hands and feet. My primary checked my blood levels...

Hello, About 5 months ago, I came to my primary with some tingles / numbness th...

onesneakymofo

•6 years ago

7 Replies

Is my folate low

Hi folks, I've been feeling quite dizzy lately along with tiredness, little breathless, feel like I have vertigo, have weird headaches as if I'm dehydrated...

Hi folks, I've been feeling quite dizzy lately along with tiredness, little brea...

Irishjen

•6 years ago

6 Replies

Vitamin B12 and Vitamin D deficiency

Hello All, I have been diagnosed with deficiency of B12 (158) and Vitamin D (20) and Dr currently prescribed me remlyn D (which has 1500 mcg B12) daily and...

Hello All, I have been diagnosed with deficiency of B12 (158) and Vitamin D (...

Riseup01

•6 years ago

23 Replies

Newbie - Amy advice appreciated x

Good morning Recently diagnosed with low b12 (80) and pernicious anemia. I’ve had my six loading shots and due to see doc next week. I’ve made the appointment...

Good morning Recently diagnosed with low b12 (80) and pernicious anemia. I’ve h...

Mandymoos8

•6 years ago

4 Replies

B12 deficiency

Hi All I’ve written about my problem on numerous occasions - I have b12 deficiency caused by being a vegetarian/vegan and having been put on omaprezole for...

Hi All I’ve written about my problem on numerous occasions - I have b12 deficien...

Alfabeta

•6 years ago

2 Replies

POTASSIUM ** writing this for you to look into, B12 - related.

Edit: please look at post below. Ty. Took some tonight and feel much? better, brain that is. You can do search here, and online. Video online too about B12...

Edit: please look at post below. Ty. Took some tonight and feel much? better, br...

Fl17

•6 years ago

4 Replies

Any advice appreciated!

Hi and thanks to everyone involved in this forum. I have a few questions about my daughter if any one can help. I’ll give a little background information...

Hi and thanks to everyone involved in this forum. I have a few questions about ...

Dadvatar

•6 years ago

5 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2018

B12 injections

Ferrous gluconate - how soon should I feel the effects?

Why has my folate increased?

Thinking of self-injecting

Is it still B12 symptoms or something else?

Brain fog

Folate advice please?

Hang over from being active

SALT ** is also helping me.

Almost good news

Pins and Needles?

Help! Where can we buy B12 ampoules?

Hanna

Help

Hyperchlorhydria with PA?

Confusion over conflicting information regarding low b12

Tinnitus

Taken off B12

Injection Timetable?

Is my B12 too low? I have insomnia, muscle twitching..

More patronising GP guff. This time in the press.

Anyone know anything about glutathione SI?

Confusing MCH and MCV results; help please?

Numbness not getting better

Is my folate low

Vitamin B12 and Vitamin D deficiency

Newbie - Amy advice appreciated x

B12 deficiency

POTASSIUM ** writing this for you to look into, B12 - related.

Any advice appreciated!

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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