Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,930 members • 23,068 posts

All posts for September 2014

Feels like I am walking on Bubble Wrap in both feet

I have had Pernicious Anemia now for 20 years and it started with my right foot as a little numbness but then it got worse and now I have it in both feet. I...

I have had Pernicious Anemia now for 20 years and it started with my right foot ...

•10 years ago

New blood tests results in

From 29th July - hmm - they are the results the GP decided to treat me based on It's taken me this long to get them B12 128 in a range 130-1100 Folate 2.2 in...

From 29th July - hmm - they are the results the GP decided to treat me based on ...

•10 years ago

Immediate Action from my Hematologist

Following on from my previous comments re the numerous serious symptoms that I have, I am pleased to update that I received my first B12 injection today! Met...

Following on from my previous comments re the numerous serious symptoms that I h...

•10 years ago

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What to do next

My teenage relative was given six loading doses of B12 after their level tested at 136. Iron levels were low normal folate normal blood count etc normal....

My teenage relative was given six loading doses of B12 after their level tested ...

•10 years ago

Not diagnosed but injecting b12, can I still test?

Hello all, I have an MS diagnosis, but as primary progressive, no treatment, so nothing to lose. My FBC showed MCV 108, ferritin 8, b12 280 2 years ago. My...

Hello all, I have an MS diagnosis, but as primary progressive, no treatment, so ...

•10 years ago

If you have normal active b12 but low blood serum b12............is that ok?

I'm hoping someone might be able to throw some light on this. My serum b12 is about 250 but my active b12 is normal at about 69? What is a good level for...

I'm hoping someone might be able to throw some light on this. My serum b12 is ab...

•10 years ago

Not sure where to turn to next and what to do.

A little low down was told in june I've pa since then I've pretty much been on b12 every other day till 3 weeks ago after 2 weeks all my symptoms are back....

A little low down was told in june I've pa since then I've pretty much been on b...

•10 years ago

What else should be checked in Blood Test other than B12 Level?

Hi :) I was diagnosed with PA about 9 months ago. Other than a blood test 4 weeks after my loading dose I haven't had my bloods checked since. Should I...

Hi :) I was diagnosed with PA about 9 months ago. Other than a blood test 4 we...

Strawberry_Dream

•10 years ago

Help! Spots following loading dose

I wondered if anyone can help or offer me any advice. I've recently been diagnosed with PA. I've finished my 6 injections in two weeks and I have now broken...

I wondered if anyone can help or offer me any advice. I've recently been diagnos...

•10 years ago

Stages of B12 Deficiency - V Herbert

I'm paraphrasing here because Victor Herbert wrote in a lot of places of the stages of b12 deficiency and I'm trying to make it as clear as possible -...

I'm paraphrasing here because Victor Herbert wrote in a lot of places of the sta...

•10 years ago

Maintenance dose frequency

I was previously on 3 monthly maintenance doses following diagnosis 5 years ago, but a year ago I started getting brain fog and exhaustion 6 weeks in. Since...

I was previously on 3 monthly maintenance doses following diagnosis 5 years ago,...

•10 years ago

Is it time to get snotty?

It's Sunday again... Just thinking: in light of the new BMJ article is it worth going to the docs with heads held high (and moral support if necessary),...

It's Sunday again... Just thinking: in light of the new BMJ article is it worth...

•10 years ago

My b12 levels were 98

Now I think this is pretty low. I did have loading doses about 5 weeks ago but am still get shivers. So was thinking of getting b12 spray. I will be getting...

Now I think this is pretty low. I did have loading doses about 5 weeks ago but ...

•10 years ago

Why western medicine gets autoimmune diseases all wrong.

Interesting video featuring Dr Amy Myers on how autoimmune diseases originate in the gut:...

Interesting video featuring Dr Amy Myers on how autoimmune diseases originate in...

•10 years ago

Is there any connection between B12 deficiency & Vitamin D or K2 deficiency

As my GP is testing me for Vit D as well as treating the B12

As my GP is testing me for Vit D as well as treating the B12

•10 years ago

Good link to neuro problems

http://www.ncbi.nlm.nih.gov/books/NBK390/

http://www.ncbi.nlm.nih.gov/books/NBK390/

•10 years ago

Be the first to reply

Help with blood test results please!

I know the question has been asked many times, But I would appreciate any thoughts on the following results. My main problems are Hair loss and numbness. I am...

I know the question has been asked many times, But I would appreciate any though...

•10 years ago

Ignore the spelling mistake!

http://www.bmj.com/content/349/bmj.g5226/rapid-responses Please try and consider using this opportunity to improve your own treatment and quality of life....

http://www.bmj.com/content/349/bmj.g5226/rapid-responses Please try and conside...

•10 years ago

Calling hamster

Hi sometime ago someone told me to look at replies by hamster because they were so knowledgable I found a link that they posted which showed how and when...

Hi sometime ago someone told me to look at replies by hamster because they were ...

•10 years ago

Just to say...

I just thought I'd mention that over the last 7 days I've phoned 4 people because I had some specific questions to ask in respect of b12 deficiency. Not once,...

I just thought I'd mention that over the last 7 days I've phoned 4 people becaus...

•10 years ago

Be the first to reply

You need to be tested

You need to be tested for intrinsic factor to determine if you have a B12 deficiency

You need to be tested for intrinsic factor to determine if you have a B12 defici...

•10 years ago

B12 deficiency symptoms but doc won't treat as test results normal

I had B12 blood test results come back showing a level of 319. My symptoms have been severe fatigue, headaches, migraines, depression, anxiety and I would like...

I had B12 blood test results come back showing a level of 319. My symptoms have ...

•10 years ago

How do I know.....

If I have functional B12 deficiency rather than Pernicious anaemia...... Would symptoms be different ? .....or would blood test results be different ??

If I have functional B12 deficiency rather than Pernicious anaemia...... Would s...

•10 years ago

Is it possible to have pa and raised hb?

I have just had some blood results which are showing raised hb levels. I have B12 injections every 8 weeks.

I have just had some blood results which are showing raised hb levels. I have B1...

•10 years ago

Is anything 'better' than before?

I know this sounds like a really bizarre question but I'm going to ask anyway: Has anybody noticed if some skills are actually better than before they were...

I know this sounds like a really bizarre question but I'm going to ask anyway: ...

•10 years ago

Reactions to loading doses

I'm on loading doses for B12 deficiency 1 injection a week for 6 weeks, then a blood test, then I see the GP again I always feel a bit down after the...

I'm on loading doses for B12 deficiency 1 injection a week for 6 weeks, then a b...

•10 years ago

Severe Allergic Reaction to First Shot

Hello everyone, after months on chasing random symptoms we finally got a definitive diagnosis of PA. I had IF antibodies as well as Parietal Cell antibodies....

Hello everyone, after months on chasing random symptoms we finally got a definit...

•10 years ago

Duh......

I am such a dipstick ! Went to my doctors appointment this morning only to find I was a week early! Luckily (?) one of the other doctors agreed to see me ,...

I am such a dipstick ! Went to my doctors appointment this morning only to find...

•10 years ago

Cruel things people say...

Since I've only recently discovered that the majority of the population believe that b12 deficiency is a blood condition which is sorted the second your b12...

Since I've only recently discovered that the majority of the population believe ...

•10 years ago

What comes next?

My GP was quite sympathetic to my list of symptoms but has said she cannot make a decision about further treatment at present and has requested that I attend...

My GP was quite sympathetic to my list of symptoms but has said she cannot make ...

•10 years ago

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Pinned Posts

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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How Often do you feel you actually need your B12 injection?

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