Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,915 members • 23,045 posts

All posts for May 2020

B12 Deficiency - no treatment yet :(

Hi all. I’m wondering if I can get some advice! A couple of weeks ago now I found out I have really low B12 and serum folate levels after getting a blood...

Hi all. I’m wondering if I can get some advice! A couple of weeks ago now I fo...

Greenandpink

•4 years ago

7 Replies

What website for buying B12 ampules and syringe and needles is best ?

What is the best website for B12 ampules , syringes and needles ?

Georgialb97

•4 years ago

7 Replies

Purchased too much hydroxocobalamin!

Have no idea why. Panic bought 100 ampoules as was concerned my Gp would refuse injections but they didn't. Even so I had gotten low my tinnitus returned....

Have no idea why. Panic bought 100 ampoules as was concerned my Gp would refuse ...

Hidden

•4 years ago

9 Replies

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Getting worse again .... Great not!!

I started injecting vit B12 at Christmas took a while to feel better & even when I did it wasn’t much better, The last few weeks I’ve felt ill again & it’s...

I started injecting vit B12 at Christmas took a while to feel better & even when...

Queeniz

•4 years ago

4 Replies

Taken from the NICE website .

Here is the photo which I referred to in a previous post . Only just found out how to put it on here!

Here is the photo which I referred to in a previous post . Only just found out h...

wedgewood

•4 years ago

9 Replies

High B12

I got my first b12 test on 27th april which was 152, immediately started mecobal inj 500mcg. Also started B complex supplements. At first i was given 7 jabs...

I got my first b12 test on 27th april which was 152, immediately started mecobal...

kashifiq

•4 years ago

2 Replies

Methylcobalamin vs Hydroxocobalamin

I have bought both types of B12 online, the Methylcobalamin from the skin place in Brighton UK and Hydroxocobalamin from the Germany based pharmacies. I was...

I have bought both types of B12 online, the Methylcobalamin from the skin place ...

ajervis

•4 years ago

19 Replies

Other types of PA

What about the other types of aneamia. Like the one where your platelets are not right. Mine were dilute. What does that mean. What type of anaemia is...

What about the other types of aneamia. Like the one where your platelets are no...

Soundwell1

•4 years ago

2 Replies

Lowered immune system

Hi, I was just wondering if having crohns disease and pernicious anaemia (well i had been told I had PA and had injections for 17 yrs.... until the recent...

Hi, I was just wondering if having crohns disease and pernicious anaemia (well i...

lfc4eva

•4 years ago

5 Replies

Struggling with my letter to the GP

So I’m trying to compose a letter to the GP to say how disappointed I am with the whole b12 Injection situation (them being cancelled, basically telling me I...

So I’m trying to compose a letter to the GP to say how disappointed I am with th...

Kaceysimo

•4 years ago

3 Replies

Antibiotics

As stomach acid low . And having absorbtion problems Finally after struggling for a month have recieved dental treatment. My first root canal work as he...

As stomach acid low . And having absorbtion problems Finally after struggling fo...

Nackapan

•4 years ago

7 Replies

Am shocked to read that NICE ( National Institute for Clinical Excellence ) states that neither B12 or folate should be tested

Unless a full blood count indicates Macrocytosis. But I thought that it’s a fact that you can have B12 deficiency / Pernicious Anaemia without having...

Unless a full blood count indicates Macrocytosis. But I thought that it’s a fact...

wedgewood

•4 years ago

16 Replies

Please help! Could I be B12 def?

Hi, I am a 34 year old mum. I have had ‘episodes’ of exhaustion since I was 19. I have had routine blood tests at the Dr and they always come back normal. In...

Hi, I am a 34 year old mum. I have had ‘episodes’ of exhaustion since I was 19. ...

LucyRose-86

•4 years ago

12 Replies

Can these results mean I may need to think I have PA?

Oct 2019 uk Vit b12 247 ng/l. (145 - 910 ng/l) Folate 8.6 ug/l (3.00 - 20ug/l) Ferritin 48 (10 - 150ug/l) Vit D result 26th May 2020, 66.7. I also take...

Oct 2019 uk Vit b12 247 ng/l. (145 - 910 ng/l) Folate 8.6 ug/l (3.00 - 20ug/l) F...

Soundwell1

•4 years ago

8 Replies

B12 ampoules

Just ordered ampoules from versandapo.de and paid £63 for 100 x ml really pleased I've ordered just need to order syringes wipes and sharps box now ☺

Just ordered ampoules from versandapo.de and paid £63 for 100 x ml really pleas...

Fedup2020

•4 years ago

11 Replies

B12 blood results

I got my blood test result back that included intrinsic factor and doc told me b12 levels were high but I'm not happy as feeling symptoms now tired painful...

I got my blood test result back that included intrinsic factor and doc told me b...

Fedup2020

•4 years ago

10 Replies

B12 injection appointment

I am very happy to say GP surgeries are now making routine appointments. I have been fortunate enough to make a B12 injection appointment 😁😁. Good luck .

I am very happy to say GP surgeries are now making routine appointments. I hav...

Debbiscott16

•4 years ago

7 Replies

Phew.......

After a battle I've had my B12 injection, why should we have to battle so much , the last! doctor that rang me..... (I had written to the practice manager,...

After a battle I've had my B12 injection, why should we have to battle so much ...

Mewsmom

•4 years ago

12 Replies

Omeprazole 20mg & PA

Hello, anyone with PA taking omeprazole 20mg? Any issues? Thanks

FlorencePocket-Owl

•4 years ago

5 Replies

B12 rules in my world...

Hi, I get my b12 injections every 2 months, I can't wait to get my injections, it gives me a kind of buzz, I feel great more energy, although I have to admit...

Hi, I get my b12 injections every 2 months, I can't wait to get my injections, i...

Monkeyman58

•4 years ago

2 Replies

Iron supplements

Hi everyone, I don't have pernicious anaemia, I'm iron deficient but I thought this would be a good place to ask. My GP prescribed Ferrous Fumerate 210mg...

Hi everyone, I don't have pernicious anaemia, I'm iron deficient but I thought t...

fish0ut0fwater

•4 years ago

15 Replies

Sedation and B12

Just for information... whilst undergoing recent colonoscopy, my consultant said I am safe for sedation only as I am having treatment for low B12 otherwise low...

Just for information... whilst undergoing recent colonoscopy, my consultant said...

Hidden

•4 years ago

6 Replies

Dillema

Have started a new regime. Sc b12 injection then 10 days another then 10 days IM at the surgery. Was on 2 weekly IM. Have a tooth that needs attention ad...

Have started a new regime. Sc b12 injection then 10 days another then 10 days IM...

Nackapan

•4 years ago

24 Replies

Pernicious anaemia

Hi all. I am currently having a battle to get my B12 injection. Ive rung the surgery 3 times in the last week as injection due. They keep saying someone will...

Hi all. I am currently having a battle to get my B12 injection. Ive rung the su...

Bobbles4

•4 years ago

7 Replies

Should I avoid caffeine?

Hello all, I have pernicious anemia and am new to getting b12 shots. Will caffeine affect my b12 levels or the effectiveness of my shot? I am already avoiding...

Hello all, I have pernicious anemia and am new to getting b12 shots. Will caffei...

Xena2202

•4 years ago

4 Replies

Really Struggling

Hi Everyone :) I’m just looking for some help, guidance or to see if anyone is able to relate to the way I’m struggling at the moment. I am 21 years of...

Hi Everyone :) I’m just looking for some help, guidance or to see if anyone is...

Ellesbells12

•4 years ago

44 Replies

I don't think I know what is wrong with me

Hi, I am here, newly registered. I take B12 injections for functional B12 deficiency. So far as I know due to active monitoring since 2017 my level of B12 is...

Hi, I am here, newly registered. I take B12 injections for functional B12 defici...

Slowmo19

•4 years ago

10 Replies

B12 question

If your b12 improves is it a possibility to no longer need injections even though your folate is low and symptoms still persist, just been told this by my GP

If your b12 improves is it a possibility to no longer need injections even thoug...

Davepolo

•4 years ago

14 Replies

First time self injecting

Well after receiving my Ampoules from Germany and needles and syringes from Medisave last night was my first attempt at self injecting with the help of my...

Well after receiving my Ampoules from Germany and needles and syringes from Medi...

Hidden

•4 years ago

15 Replies

Pernicious anaemia

Because of Coronavirus , I have been prescribed B12 in tablet form, does anybody know if the tablets are as good as the injection ? Thankyou

Because of Coronavirus , I have been prescribed B12 in tablet form, does anybody...

Rosie1960

•4 years ago

8 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2020

B12 Deficiency - no treatment yet :(

What website for buying B12 ampules and syringe and needles is best ?

Purchased too much hydroxocobalamin!

Getting worse again .... Great not!!

Taken from the NICE website .

High B12

Methylcobalamin vs Hydroxocobalamin

Other types of PA

Lowered immune system

Struggling with my letter to the GP

Antibiotics

Am shocked to read that NICE ( National Institute for Clinical Excellence ) states that neither B12 or folate should be tested

Please help! Could I be B12 def?

Can these results mean I may need to think I have PA?

B12 ampoules

B12 blood results

B12 injection appointment

Phew.......

Omeprazole 20mg & PA

B12 rules in my world...

Iron supplements

Sedation and B12

Dillema

Pernicious anaemia

Should I avoid caffeine?

Really Struggling

I don't think I know what is wrong with me

B12 question

First time self injecting

Pernicious anaemia

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive