Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,950 members • 23,089 posts

All posts for January 2020

So nervous and upset.

Hi everyone. I am new here and taken ages to pluck up courage to write anything! I was diagnosed with very low b12 back in 2000. At the time my GP said he had...

Hi everyone. I am new here and taken ages to pluck up courage to write anything!...

kittyflowers

•4 years ago

29 Replies

vitamin b12 and d deficiency

just had my quarterly b12 jag but feel like I need them more frequent, doctor has halved my vitamin d from 1600 to 800 and I feel worse than ever, I feel like...

just had my quarterly b12 jag but feel like I need them more frequent, doctor h...

alex27islay

•4 years ago

9 Replies

Resources for symptom tracking

So many in this community recommend symptom tracking....and I'm finally getting around to doing it! I've been using the Symple app, so I wanted to share this...

So many in this community recommend symptom tracking....and I'm finally getting ...

Hidden

•4 years ago

3 Replies

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I am really worried about having B12 Injections

I am really concerned about having to have B12 Injections. I have been told that my B12 is low. After getting over my fear of having blood tests, with the help...

I am really concerned about having to have B12 Injections. I have been told that...

8d6e91

•4 years ago

4 Replies

Do I self treat now?

Hello - long post ahead. I posted here last year, prior to seeing a neurologist as I was (and still am having) neuro symptoms: occasional tremor in hands,...

Hello - long post ahead. I posted here last year, prior to seeing a neurologist ...

Hidden

•4 years ago

3 Replies

Self injecting and GP

Hi all, I’m close to the end of first three monthly period between GP injections, and I have self injected three times in this period, so I’m guessing monthly...

Hi all, I’m close to the end of first three monthly period between GP injections...

Callum4878

•4 years ago

4 Replies

Help!!!

I need a link to buy B12 injections as the ones I got haven’t got any right now ??

I need a link to buy B12 injections as the ones I got haven’t got any right now ...

Queeniz

•4 years ago

5 Replies

Can you overdose on B12?

I wonder if you can help - my daughter is 17 and posted for the first time recently. I’m writing on her behalf as I’m her mum. She went to have her monthly b12...

I wonder if you can help - my daughter is 17 and posted for the first time recen...

SAM2608

•4 years ago

56 Replies

PPI’s

Just a further quick update and question please folks. I had the results back from my polyectomy (encouraged to go for endoscopy and colonoscopy by you guys...

Just a further quick update and question please folks. I had the results back fr...

lifegems

•4 years ago

4 Replies

P. A for 12months

Can anyone tell me if I should be getting symptoms. My G.p diagnosed my P. A through routine blood tests. I am have b12 injections 6weekly . Since injections...

Can anyone tell me if I should be getting symptoms. My G.p diagnosed my P. A thr...

Goneboating

•4 years ago

6 Replies

Agoraphobia after starting injections

I started cyanocobalamin injections on August 4 2018, almost right away I developed agoraphobia. I am doing the B12 protocol, daily injections, folic acid...

I started cyanocobalamin injections on August 4 2018, almost right away I develo...

Hidden

•4 years ago

20 Replies

Pain and Numbness after injections

I have been having some moderate pain/throbbing down my arm after injections. This starts about 5 minutes after the injection, subsides to a numb feeling, and...

I have been having some moderate pain/throbbing down my arm after injections. Th...

BethCam

•4 years ago

8 Replies

Anyone tried Cytoplan B12?

I've got some Cytoplan B12 which says it's 500ug of methylcobalamin and 500ug of adenosylcobalamin. Does anyone know if this is as effective as 100%...

I've got some Cytoplan B12 which says it's 500ug of methylcobalamin and 500ug of...

matty220

•4 years ago

13 Replies

Sooo where do I return this banjaxed body of mine?

Hello knowledgeable B12 folks! I have been dealing with what I believe is B12 deficiency for a couple of months now. I'm vegan and have been deficient a couple...

Hello knowledgeable B12 folks! I have been dealing with what I believe is B12 de...

MariaMe

•4 years ago

6 Replies

Oral spray, increased serum B12

Hello I have just got my latest blood results. IF negative and my B12 has increased from starting my Oral B12 spray on the 10th of December. I have gone from...

Hello I have just got my latest blood results. IF negative and my B12 has incre...

Sasical

•4 years ago

7 Replies

Side effects after B12 injections

Hey, I have been having some odd side effects after the b12 injections and wanted to know if anyone else had a similar experience. I had a few little...

Hey, I have been having some odd side effects after the b12 injections and want...

Raqc

•4 years ago

8 Replies

Any connection with B12 deficiency and Bladder issues?

This forum seems such a helpful community, I have finally plucked up courage to post. I have some questions which I would be really grateful if someone might...

This forum seems such a helpful community, I have finally plucked up courage to ...

papaya259

•4 years ago

18 Replies

Cognitive issues

Hello. As part of my b12 deficiency I have bad cognitive issues. This has had a real impact on my work. I run an architectural practice with my husband. I have...

Hello. As part of my b12 deficiency I have bad cognitive issues. This has had a ...

Itchyislander

•4 years ago

24 Replies

Help I am needle phobic

Help!!! I am needle phobic. I can just about manage to have a blood test. Having to put numbing cream on my arm before I have the blood test done. I have just...

Help!!! I am needle phobic. I can just about manage to have a blood test. Having...

8d6e91

•4 years ago

7 Replies

size of needle?

For two years I have had b12 injections which were SO painful. Once I nearly fainted from the pain, and always left with tears in my eyes from the pain....

For two years I have had b12 injections which were SO painful. Once I nearly fa...

jillc39

•4 years ago

7 Replies

Buying b12 in Germany in person

Hi, ha anyone experienced actually buying b12 over the counter in a german pharmacy? I am there on holiday in June and wondered if I should take the...

Hi, ha anyone experienced actually buying b12 over the counter in a german pharm...

PArunner

•4 years ago

4 Replies

Pernicious anemia and urticaria (hives)

Hi I have my b12 injection every two months for the past ten years ,also have treatment for underactive thyroid, I have been suffering with urticaria (hives)...

Hi I have my b12 injection every two months for the past ten years ,also have tr...

Alice70

•4 years ago

11 Replies

Side effects from injections?

I was wondering if anyone could share if they've experienced side effects from their injections? I'm in the USA so my treatment involved "loading doses" which...

I was wondering if anyone could share if they've experienced side effects from t...

Hidden

•4 years ago

15 Replies

Update. Headaches/ Eye strain

Hi guys, Ive posteda after a while. So March 2019 I experienced pins and needles on one side and daily headaches. I started treating myself with loading doses...

Hi guys, Ive posteda after a while. So March 2019 I experienced pins and needles...

KurupPrateek

•4 years ago

11 Replies

High B12 results.

I have heard that having very high B12 blood test results can indicate a health problem. Please could someone enlarge on that info ? I have all the symptoms of...

I have heard that having very high B12 blood test results can indicate a health ...

Everdean

•4 years ago

9 Replies

Confused

Since my last b12 injection 10 days ago I've been really poorly. A shift or decline in symptoms . I've never been symptom free . I've been in a constant....

Since my last b12 injection 10 days ago I've been really poorly. A shift or decl...

Nackapan

•4 years ago

8 Replies

Feel really awful

Does anybody somedays feel totally exhausted,I have arthritis also and not sure if the pains in my joints are this or PA related.pins and needles are really...

Does anybody somedays feel totally exhausted,I have arthritis also and not sure ...

Hesterbear

•4 years ago

7 Replies

Producing new red blood cells

I have Haemochromatosis with mild iron overload which requires regular blood letting (venesections) until my ferritin reaches an optimum level of 50 with a...

I have Haemochromatosis with mild iron overload which requires regular blood let...

B12newby

•4 years ago

6 Replies

Dangers of b12

I read this on web MD - is it correct? Vitamin B12 is LIKELY SAFE for most people when taken by mouth, applied to the skin, taken through the nose,...

I read this on web MD - is it correct? Vitamin B12 is LIKELY SAFE for most peopl...

Alfabeta

•4 years ago

4 Replies

Folate and Ferritin

Hi I have PA and self inject b12 every three weeks, just wondering if my levels for folate and ferritin would benefit from extra supplements - any advice...

Hi I have PA and self inject b12 every three weeks, just wondering if my levels ...

Mandymoos8

•4 years ago

1 Reply

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2020

So nervous and upset.

vitamin b12 and d deficiency

Resources for symptom tracking

I am really worried about having B12 Injections

Do I self treat now?

Self injecting and GP

Help!!!

Can you overdose on B12?

PPI’s

P. A for 12months

Agoraphobia after starting injections

Pain and Numbness after injections

Anyone tried Cytoplan B12?

Sooo where do I return this banjaxed body of mine?

Oral spray, increased serum B12

Side effects after B12 injections

Any connection with B12 deficiency and Bladder issues?

Cognitive issues

Help I am needle phobic

size of needle?

Buying b12 in Germany in person

Pernicious anemia and urticaria (hives)

Side effects from injections?

Update. Headaches/ Eye strain

High B12 results.

Confused

Feel really awful

Producing new red blood cells

Dangers of b12

Folate and Ferritin

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive