Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,951 members • 23,089 posts

All posts for March 2024

What type of consultant is able to help with P.A.

if you do suspect you have pernicious Anaemia, and the GP is willing to accept the possibility, what is the best type of consultant to see. Gastroenterologist...

if you do suspect you have pernicious Anaemia, and the GP is willing to accept t...

Chickens44

•27 days ago

13 Replies

Is This For Real?

I came across this posting earlier and thought it must be a joke. If true, why are we still being deprived of the the treatment we need?...

I came across this posting earlier and thought it must be a joke. If true, why a...

B12again

•27 days ago

36 Replies

Name Surgeries Who Suppor…?

Can anyone name GP surgeries who actually support B12 deficiency patients who SI and who supply the necessary dosage injection ampoules for their individual...

Can anyone name GP surgeries who actually support B12 deficiency patients who SI...

B12again

•27 days ago

11 Replies

Want to take advantage of all our features? Just log in!

Loading question!

When loading, why do we only inject every other day? Why not every day?

Laundretta

•27 days ago

9 Replies

Goats milk kefir

Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very...

Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the ...

Chickens44

•27 days ago

8 Replies

Confused

Guys, I'm in need of advice, please. I've been in severe pain with wisdom tooth and another tooth that was broken at the root. So, the dentist put me on...

Guys, I'm in need of advice, please. I've been in severe pain with wisdom tooth...

25092

•27 days ago

9 Replies

Chlorella

I have been told that chlorella is a good source of b12 but I am doubtful that in a daily dose of 10 chlorella tablets you would get sufficient b12? I would...

I have been told that chlorella is a good source of b12 but I am doubtful that ...

Vonni7

•28 days ago

12 Replies

New to the group - looking for some realistic advice on recovery time after loading doses

Hi all. I am new to the group and this delightful condition we all have! Similar story to many, blood tests showing low B12/folate/ferritin (although this...

Hi all. I am new to the group and this delightful condition we all have! Similar...

ClaireWF1346

•28 days ago

26 Replies

Folate supplements with B12 injections

I am currently receiving loading doses (3 so far). I was low on B12 at 170 and low on folate (about 2) as well as macrocytic but not anaemic. Incidentally, I...

I am currently receiving loading doses (3 so far). I was low on B12 at 170 and l...

La2016

•28 days ago

7 Replies

Happy Easter

I'm excited about lighter evenings !

Nackapan

•28 days ago

8 Replies

Is it needed and safe for my mom to supplement with folate or B12?

Hi all! I haven't posted before but I've been reading for a few months and find everything really helpful. My mom has had both chemotherapy and radiation this...

Hi all! I haven't posted before but I've been reading for a few months and find ...

Jr499

•28 days ago

7 Replies

low levels despite frequent injections?

My b12 levels are still low despite 8 months of frequent injections. My doctor doesn’t know why and I have to see a hematologist. has this happened to anyone...

My b12 levels are still low despite 8 months of frequent injections. My doctor d...

Merlotponty

•28 days ago

6 Replies

a totally different question

Has anyone seen or heard from Narwhale? She is always the first to comfort, reassure and hold a person with a problem, but I haven't seen a reply from her in...

Has anyone seen or heard from Narwhale? She is always the first to comfort, re...

totallyFrustrated

•29 days ago

6 Replies

Cyanocobalamin from Europe with prescription)

Hello everyone Unfortunately the injectable cyanocobalamin 1000 mcg I have 3-weekly is MIA and not expected to arrive in the uk for at least 2 months. I'm...

Hello everyone Unfortunately the injectable cyanocobalamin 1000 mcg I have 3-we...

ren41

•29 days ago

2 Replies

Do Drs get a bonus for prescribing certain drugs ?

Does anybody know if Gps get a hand out for prescribing statins ? There has been a lot of controversy in regard to this topic. Late yesterday afternoon I had...

Does anybody know if Gps get a hand out for prescribing statins ? There has been...

Jillymo

•29 days ago

61 Replies

Stopping Injections After 3 Loading Doses

Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies...

Hi! I’m new here and learning so much from reading all of the posts here. I was...

Hidden

•30 days ago

5 Replies

methylcobalamin

Can anyone tell me if it's possible to get a private prescription for methylcobalamin, given it's not available on the NHS? I am allergic to hydroxocobalamin,...

Can anyone tell me if it's possible to get a private prescription for methylcoba...

ren41

•30 days ago

11 Replies

child with dyslexia

My daughter has recently been diagnosed with dyslexic tendencies. She is almost 7yrs old in year 2 of primary school. I had her B12 tested last year due to...

My daughter has recently been diagnosed with dyslexic tendencies. She is almost ...

Murfie276

•30 days ago

12 Replies

High IgM and other markers

Hi, just had some more blood tests and my globulin and IgM levels are high. I understand they're linked with autoimmune and inflammatory conditions. Has anyone...

Hi, just had some more blood tests and my globulin and IgM levels are high. I un...

Myoldcat

•30 days ago

4 Replies

Low active b12 despite loading and monthly si

I’m feeling baffled by these results. Any insights welcomed. Feels like I’m just leaking the b12 out again…. Active b12 June 2021 177 after loading (The out...

I’m feeling baffled by these results. Any insights welcomed. Feels like I’m just...

Laundretta

•1 month ago

7 Replies

B12 orders

Can I just ask, is there is a general concensus on which is the best type of B12 to order if you want to SI. Different people seem to be using different forms...

Can I just ask, is there is a general concensus on which is the best type of B12...

Blueoxo

•1 month ago

8 Replies

Update: opinions please

Juat been told I have liw vitamin D.Could this be a reason my b12 was also low? I've read low vit D can effect B12 absorbtion. Is that correct?

Juat been told I have liw vitamin D.Could this be a reason my b12 was also low? ...

Popcorn12345

•1 month ago

22 Replies

Safe arrival from Verdandapo.

Hi guys just to let you all know my B12 came promptly and safely from Germany. However they weren't packed with any puffed Styrofoam just let loose in the box....

Hi guys just to let you all know my B12 came promptly and safely from Germany. H...

WorkingProgress

•1 month ago

14 Replies

New Course - "Applied Nutrition Literacy"

A new course was released by the folks behind Sigma Nutrition: "Applied Nutrition Literacy - How to Critique Nutrition Research with Confidence and......

A new course was released by the folks behind Sigma Nutrition: "Applied Nutritio...

Technoid

•1 month ago

2 Replies

12 Day Trial

1.5mg methylcobalamin, 1.5mg adenosylcobalamin, 1mg hydroxocobalamin. SC injection 5 times a day including setting an alarm to inject at night. 50 mg B6 in the...

1.5mg methylcobalamin, 1.5mg adenosylcobalamin, 1mg hydroxocobalamin. SC injecti...

WIZARD6787

•1 month ago

2 Replies

B12 Mouth Spray

my partner bought me the B12 mouth spray - apricot flavour! Up to 4 sprays a day. Do you think it will have any effect? Have you tried it?

my partner bought me the B12 mouth spray - apricot flavour! Up to 4 sprays a day...

Porridgeoaties

•1 month ago

5 Replies

Spring has sprung & Easter is on its way. 🐇🐣🐇🐣🐇🐣🐇🐣🐇🐣🐇🐣🐇🐣🐇

HAPPY EASTER TO ALL May the joys of Easter fill your heart with gladness. Wishing you and yours peace this Easter season.

HAPPY EASTER TO ALL May the joys of Easter fill your heart with gladness. Wish...

Jillymo

•1 month ago

15 Replies

obtaining B12 injections in Melbourne Aus

recent moved to Melbourne from NZ. I was self injecting, due to next to useless doctors. My test result was 2 points above deficient. I would like to...

recent moved to Melbourne from NZ. I was self injecting, due to next to useless...

Polkadot02

•1 month ago

4 Replies

Placebo effect

I have scoffed at doctors' suggestions that many people feel better when they are injecting B12 due to a placebo effect. That statement seems trite,...

I have scoffed at doctors' suggestions that many people feel better when they ar...

WiscGuy

•1 month ago

5 Replies

super high gastrin level

hi there - I just got diagnosed with pernicious anemia, autoimmune gastritis, and Barrett’s esophagus 3 months ago. My gastrin in sept was 200, in Dec it was...

hi there - I just got diagnosed with pernicious anemia, autoimmune gastritis, ...

Lhood08

•1 month ago

15 Replies

Search posts

Pinned Posts

See all

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

See all polls

How Often do you feel you actually need your B12 injection?

Vote

Topics

All posts(75)

All things Pernicious Anaemia Society(75)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2024

What type of consultant is able to help with P.A.

Is This For Real?

Name Surgeries Who Suppor…?

Loading question!

Goats milk kefir

Confused

Chlorella

New to the group - looking for some realistic advice on recovery time after loading doses

Folate supplements with B12 injections

Happy Easter

Is it needed and safe for my mom to supplement with folate or B12?

low levels despite frequent injections?

a totally different question

Cyanocobalamin from Europe with prescription)

Do Drs get a bonus for prescribing certain drugs ?

Stopping Injections After 3 Loading Doses

methylcobalamin

child with dyslexia

High IgM and other markers

Low active b12 despite loading and monthly si

B12 orders

Update: opinions please

Safe arrival from Verdandapo.

New Course - "Applied Nutrition Literacy"

12 Day Trial

B12 Mouth Spray

Spring has sprung & Easter is on its way. 🐇🐣🐇🐣🐇🐣🐇🐣🐇🐣🐇🐣🐇🐣🐇

obtaining B12 injections in Melbourne Aus

Placebo effect

super high gastrin level

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive