I reduced the frequency of injections to once per week as I was feeling much better. Since feeling better, I've been doing more activities and seem to crash when I do too much. As a result I went back to EOD and have felt absolutely shattered since and joint pain is back. Is this a reversing out thing again?
Do I just have a low threshold for how much I can exert myself now?
I spent a day walking/shopping recently and at the end of the day I felt like I was getting the flu with body aches and unbelievably tired. I return to work soon after a long absence and I'm worried how I'll build up to full time again!
I'm also taking hydrocortisone for adrenal issues which has helped massively.
I was doing really well and the only change I can think of is reducing and then going back to EOD injections. Will this reversing out pass, if that's what it is?
Thank you
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RedOne1
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I'm 4 12 months on injections, that happened to me when I was trying to find my good dosage but I was like only 2 1/2 months in on inj's, so I started to feel better then all my symptoms came back so I had to start eod. yes I had the reversing out again. so when I started to feel better again I of course started doing more this month and decided to inj everyday and had a little more nerve pain and tiredness with the extra dose. I'm still in new of treatment so I still have nerves waking up and trying to heal so I am still feeling these at eve time
Thank you. It may be something for me to consider doing every day injections when I am doing more. I hope you continue to heal well. It's a very up and down process isn't it!
I am not sure I have the answer to the question but I can tell you the same thing happened to me.
I'm doing well now after a year and half on injections but it was a rough ride the first year. I had many periods where everything got worse for a while. Overall I had good progress but it was all ups and downs and very scary to me. I did try to reduce the frequency a few times than crashed and went to more frequent injections again. Or in the beginning when I increased my injections I'd have so much pain and intense symptoms. I kept going and got better but it took a long time.
you just answered one of my questions I've been having since I increased my inj's is that I was getting more pain so I was thinking oh my is it now working? but you also increase and received more nerve pain and then it got better I have been going through that exact thing but now I know and thank you for sharing.
Have you been on the hydrocortisone for awhile? Could you be having side effects from that? I know that is a steroid and I was on prednisone, which is also a steroid, for a bad case of poison ivy. I was only on the prednisone for 12 days and have been off of it for a month now, but I have been worse symptom wise since.
That's a good point! I've been taking them for close to two months. The only side effect I experienced initially was an increase in anxiety but this has started to ease off now. Maybe it could be related, I'll speak to doc about it. I hope not though as even though I'm struggling now, it's nowhere near as bad as before i started the hydrocortisone. Another reason I think it may be b12 related is the tingling and pins and needles in my arms is back.
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