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Pernicious Anaemia Society

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All posts for January 2024

I have hypothyroidism, elevated B12 and elevated MCH. No one knows why. Has anyone experienced this and do you know how to correct it?

I have hypothyroidism, elevated B12 and elevated MCH. No one knows why. Has anyo...

Jeannebon46

•3 months ago

3 Replies

B12 injections frequency

Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12...

Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I...

Welshtoffee

•3 months ago

14 Replies

should I keep going

I started my loading doses of B12 and l was very up and down with it. Then in October l got my first 3mth injection and it floored me for 2wks after that my...

I started my loading doses of B12 and l was very up and down with it. Then in O...

Ooopsy

•3 months ago

24 Replies

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results of 156

Hi, I’ve just finished a course of loading does and had a blood test following which the receptionist has told me has come back as 156 and no further action...

Hi, I’ve just finished a course of loading does and had a blood test following...

JessB94-

•3 months ago

9 Replies

Help with test results - haemochromatosis with iron deficiency?

A few years ago I regularly had blood tests which showed high iron levels so my doc suspected Haemochromatosis. I had the genetic testing which showed I had...

A few years ago I regularly had blood tests which showed high iron levels so my ...

tnefeh

•3 months ago

5 Replies

I had b12 injections stopped during covid I’m now getting them again

I was diagnosed with pernicious anemia many years ago I was put on b12 injections,some years later I started experiencing numbness in my left leg burning...

I was diagnosed with pernicious anemia many years ago I was put on b12 injection...

bigE20

•3 months ago

10 Replies

Worried bout weight

I have put on 15lb in just 3 weeks.Its so uncomfortable breathing plus stomach is hard bloated. Just worrying about my breathing too as I...

I have put on 15lb in just 3 weeks.Its so uncomfortable breathing plus stomach i...

Kittykat50

•3 months ago

6 Replies

Rapid Heart Rate & Metallic Taste

I have had palpitations overnight and a strong metallic taste in my mouth since starting Iron tablets. I started B12 injections in November last year and...

I have had palpitations overnight and a strong metallic taste in my mouth since ...

Shannondor

•3 months ago

4 Replies

PALVE

I’m about to start b12 injections alternate days for two weeks then every 3 months. I appreciate this isn’t enough for neurological problems which I have....

I’m about to start b12 injections alternate days for two weeks then every 3 mont...

Palum

•3 months ago

6 Replies

AUTOIMMUNE LIVER BLOODS

I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12...

I am new to this community and have found some useful information here. I was d...

Frenchbetty

•3 months ago

11 Replies

High MMA

Hello I have just received the results of my urine MMA results Vitamin B12. MMA. Result 3.4. Range. 0-2.5 ug Symptoms are pins and needles in my hands and...

Hello I have just received the results of my urine MMA results Vitamin B12. M...

Bean101

•3 months ago

15 Replies

Swap?

Admin edit: Please note that it is illegal to supply injectible B12 for medical purposes without a prescription in the UK - this post has been closed to...

Admin edit: Please note that it is illegal to supply injectible B12 for medical ...

Davy28

•3 months ago

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Scartgabe13

My wife wss diagnosed with PA 3 years ago, after our daughter suggested she should have a blood test to find out if her b12 was low,it was36 ,our daughter who...

My wife wss diagnosed with PA 3 years ago, after our daughter suggested she shou...

scartgabe12

•3 months ago

8 Replies

New here, seeking advice

Hi all,I have been suffering from neuropathy since 2014. The only way that I can describe it is reduced feeling which spread all over my body. It started with...

Hi all,I have been suffering from neuropathy since 2014. The only way that I can...

Cassav

•3 months ago

19 Replies

Muscle spasm

I si about every 2 weeks now (symptoms improved but still there). Over the last few weeks, my pins and needles feeling is worse again, I have developed pain...

I si about every 2 weeks now (symptoms improved but still there). Over the last...

NOTI1

•3 months ago

17 Replies

SI Hardware

If anyone in Ireland is looking and perhaps requires a reliable source of hardware https://www.medguard.ie/

If anyone in Ireland is looking and perhaps requires a reliable source of hardwa...

OldmanD

•3 months ago

6 Replies

recovery

Hello, does how quickly you feel better after initial b12 injection(s) and iron infusion depend on your deficiencies severity?

Hello, does how quickly you feel better after initial b12 injection(s) and iron ...

TheLabSquad

•3 months ago

8 Replies

Vit B12 deficient again after being taken off injections two years ago.

Hello Everyone, I haven’t been here for years and I need some advice please. My hubby started having strange symptoms over ten years ago and it was discovered...

Hello Everyone, I haven’t been here for years and I need some advice please. My...

CarolineAnne

•3 months ago

28 Replies

Purpura and b12 deficiency, Query

Does anyone else suffer with purpura on here and have a b12 deficiency or low iron? Im just trying to figure out if theyre linked or not? Thanx

Does anyone else suffer with purpura on here and have a b12 deficiency or low ir...

jadeite11

•3 months ago

5 Replies

I found this helpful

I evaluated the information on injecting available regarding injecting insulin with regards to risk of self preloading syringes and multi use vials. I also...

I evaluated the information on injecting available regarding injecting insulin w...

WIZARD6787

•3 months ago

2 Replies

constipation

I have been diagnosed wit PA.I have had 5 injections of B12 and my levels have returned to normal range .However I am suffering from constipation. Has any one...

I have been diagnosed wit PA.I have had 5 injections of B12 and my levels have r...

36Hele

•3 months ago

9 Replies

Autoimmune Atrophic Gastritis and Pernicious Anemia diagnosis

I was just diagnosed with AIG in addition to the PA. Apparently, the AIG caused the PA. My only symptoms were constant heartburn, exhaustion, hair loss, and...

I was just diagnosed with AIG in addition to the PA. Apparently, the AIG caused ...

ReallyWondering

•3 months ago

20 Replies

b12 injections making me worse

Hi, My bloods came back as having a serum b12 of 73 so my doctor started me on b12 injections. I have had 3 out of 6 so far, but instead of feeling better my...

Hi, My bloods came back as having a serum b12 of 73 so my doctor started me on ...

hc918

•3 months ago

13 Replies

High b12

Hi, my husband has been diagnosed with high b12 but is feeling tired all the time, breathless and lethargic. Wonder if anyone has any advice. Thanks

Hi, my husband has been diagnosed with high b12 but is feeling tired all the tim...

Phyloreardon

•3 months ago

12 Replies

Low iron

I have an iron count of between 29 and 33 from 2021 to now on a range of 11-360. For the last six months I've been taking a supplement to boost the serum iron...

I have an iron count of between 29 and 33 from 2021 to now on a range of 11-360....

Orchard33

•3 months ago

2 Replies

syringe

hi All. I’ve been SI for about 8 years with no problem. I have recently tried to buy syringes off Amazon. I’m in Portugal . I’ve not had a problem before but...

hi All. I’ve been SI for about 8 years with no problem. I have recently tried to...

lifegems

•3 months ago

25 Replies

High MCV

Hi, I have felt unwell for years was diagnosed with Fibromyalgia in 2018. Recently took an interest in my blood tests that have been took over the years and my...

Hi, I have felt unwell for years was diagnosed with Fibromyalgia in 2018. Recent...

Ab197

•3 months ago

7 Replies

My Vitamin B12 test after injection

Hello dear community membersI tested my vitb12 level as 187 pg/ml. (182-955) I started taking loading doses of 6 *1mg every 2 weeks. After loading doses i...

Hello dear community membersI tested my vitb12 level as 187 pg/ml. (182-955) I s...

Emiroskui

•3 months ago

11 Replies

Ordering b12 in the US

hi friends, I am in the US, and understand that many of the folks in the US order their b12 online from Canada. Can some recommend a reputable able source??...

hi friends, I am in the US, and understand that many of the folks in the US o...

MuppDog

•3 months ago

8 Replies

SI - opinion valued

Have been SI sub cut EOD since late July 2023, (due to neuropathy and have a formal diagnosis from neurologist of Short Fibre Neuropathy). I had been using...

Have been SI sub cut EOD since late July 2023, (due to neuropathy and have a for...

JanCymru

•3 months ago

13 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2024

I have hypothyroidism, elevated B12 and elevated MCH. No one knows why. Has anyone experienced this and do you know how to correct it?

B12 injections frequency

should I keep going

results of 156

Help with test results - haemochromatosis with iron deficiency?

I had b12 injections stopped during covid I’m now getting them again

Worried bout weight

Rapid Heart Rate & Metallic Taste

PALVE

AUTOIMMUNE LIVER BLOODS

High MMA

Swap?

Scartgabe13

New here, seeking advice

Muscle spasm

SI Hardware

recovery

Vit B12 deficient again after being taken off injections two years ago.

Purpura and b12 deficiency, Query

I found this helpful

constipation

Autoimmune Atrophic Gastritis and Pernicious Anemia diagnosis

b12 injections making me worse

High b12

Low iron

syringe

High MCV

My Vitamin B12 test after injection

Ordering b12 in the US

SI - opinion valued

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive