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Pernicious Anaemia Society

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All posts for May 2021

Covid Tongue

I've read that B12 can causes mouth sores ect and oral thrush. Many of you have suffered this. So I'm aware of this. My b12 acute B12 symptoms s didn't...

I've read that B12 can causes mouth sores ect and oral thrush. Many of you have ...

Nackapan

•3 years ago

39 Replies

Edema Legs

Hello, I have PA and I get edema in my legs from time to time. Always thought it was stress related but it’s been happening a lot lately, 3-4 times a week...

Hello, I have PA and I get edema in my legs from time to time. Always thought ...

Dottyspotspot

•3 years ago

19 Replies

Diverticulities

I have recently been daiognosed with Diverticulitis, I can't see any great tieup between this and PA is there a link or is this just a left field thing

I have recently been daiognosed with Diverticulitis, I can't see any great tieup...

Chucknz

•3 years ago

5 Replies

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Thank you

Thank you guys for all your help. I’m going to tell a different GP what a have learnt from you and insist I get my B12 reinstated. I wish you all well for the...

Thank you guys for all your help. I’m going to tell a different GP what a have l...

Hedgehogs15

•3 years ago

3 Replies

MB12 expiration date and storage after opening and mixing with saline solution

hi. how many time does the oxford bioscience mb12 poxder vial lasts after mixing it with saline solution? can i divide it into doses in needles and store in...

hi. how many time does the oxford bioscience mb12 poxder vial lasts after mixing...

KS38

•3 years ago

3 Replies

Giving up hope

Morning everyone. This site is like a breath of fresh air. I had a big stomach operation when I was 28. I was told I would have pernicious anaemia because of...

Morning everyone. This site is like a breath of fresh air. I had a big stomach o...

Hedgehogs15

•3 years ago

9 Replies

A weird question hope you guys will share your views

From past few nights things have been a little different to me and I haven't experienced any of this before When I go to bed I lay down and I go to sleep no...

From past few nights things have been a little different to me and I haven't exp...

Akashrajput

•3 years ago

5 Replies

are b12 serum ranges different in every NHS area.

I'm confused. My B12 test results showed a range of 180-914. Yet it appears that some forum members are being denied treatment at much lower levels. It doesn't...

I'm confused. My B12 test results showed a range of 180-914. Yet it appears that...

charks

•3 years ago

15 Replies

Normal active b12 and serum b12 - does that mean I don't have pernicious aneamia?

Hello, I have recently come across pernicious anemia, I am 34 and have distil myopathy - nerve damage and muscle wasting in my legs (unknown cause) and I also...

Hello, I have recently come across pernicious anemia, I am 34 and have distil my...

gemini4378

•3 years ago

6 Replies

Can I take a 2nd B12 test after I skewed the first with supplements?

Hi Everyone Hope someone might have some useful advice. I couldn't find much on the forum from people who started supplementing before a B12 and folate test...

Hi Everyone Hope someone might have some useful advice. I couldn't find much on...

PointOfReference

•3 years ago

23 Replies

B12 level 163

My B12 level is163 and I have a lot of symptoms including burning sensation in my hands and feet fatigue breathlessness ringing in the ears anxiety and...

My B12 level is163 and I have a lot of symptoms including burning sensation in m...

louis1877

•3 years ago

30 Replies

Help Interpreting Blood Test Results

Sorry to post so much in the space of one week! My B12 crashed (due to a large gap between injections) and new GP ordered a bunch of blood tests. Since...

Sorry to post so much in the space of one week! My B12 crashed (due to a large g...

ottiliefloyd

•3 years ago

4 Replies

More symptoms

Seems to be a change. I've i think oral thrush well very sore tongue and mouth . Painful swallowing . Scalp really bad now. Patches of hair falling out....

Seems to be a change. I've i think oral thrush well very sore tongue and mout...

Nackapan

•3 years ago

12 Replies

Vitamin B12 deficiency - Recently diagnosed

Hi there. I was previously in the Thyroid UK group but one member suggested me this forum because of my low Vitamin B12. I am a 33-year-old woman. I weigh 60...

Hi there. I was previously in the Thyroid UK group but one member suggested me t...

Praga

•3 years ago

8 Replies

Off topic: tb test ambiguous

Any time I’ve had a tb skin test it has come back borderline. I’ve had to get the gold standard blood test and it’s come back negative. Wondering if my skin...

Any time I’ve had a tb skin test it has come back borderline. I’ve had to get th...

Purplegirl2

•3 years ago

4 Replies

B12 & Folate

Hi, I’m new here. I’m 31 and have had stomach issues for 4-5 years. I’ve been exhausted for about 2 years, can hardly make it through a day without napping...

Hi, I’m new here. I’m 31 and have had stomach issues for 4-5 years. I’ve been ...

Crazy_cat

•3 years ago

10 Replies

Worry about MS?

I do not have a P.A. diagnosis (negative for IF antibodies). When first tested my B12 was 146. All other blood tests come back fine. MRI of my head came...

I do not have a P.A. diagnosis (negative for IF antibodies). When first tested...

Ctadds1

•3 years ago

4 Replies

Oral v IM injections

Hi All, Apologies if this has been posted before but thought it might be of interest. https://bmjopen.bmj.com/content/10/8/e033687 Article suggested patients...

Hi All, Apologies if this has been posted before but thought it might be of inte...

Sleepybunny

•3 years ago

3 Replies

Help ...this B12 rollercoaster is doing my (fuzzy) head in

Hello All I haven't posted on here for a while. I have been doing great SI every 2nd day until all my neurological symptoms had gone and bit by bit the rest...

Hello All I haven't posted on here for a while. I have been doing great SI ever...

ottiliefloyd

•3 years ago

11 Replies

Anybody taken themselves to A&E?

Our GP said if symptoms got worse then take to A&E and i’m seriously considering it. My daughter is so utterly exhausted she has nothing left to give and...

Our GP said if symptoms got worse then take to A&E and i’m seriously considering...

ATS1304

•3 years ago

32 Replies

B12 injections - ALWAYS wipes me out and chronic fuzziness

Hi all, I was diagnosed low B12 (+ve IFA test) in November and received the loading doses (Folate, Iron and Ferritin levels were good) - they brought on a...

Hi all, I was diagnosed low B12 (+ve IFA test) in November and received the loa...

User2020-1

•3 years ago

3 Replies

B12 deficiency

Hi, I’m new here and just looking for some advice. I’ve been feeling tired for as long as I can remember, but over the last few years it’s beyond tired, some...

Hi, I’m new here and just looking for some advice. I’ve been feeling tired for a...

Jaiday

•3 years ago

29 Replies

To brighten the day

Sat outside hoping this mornings b12 injection will pick me up enough to get out. .Minding 4 rabbits so sitting in the rain giving them a run After getting 5...

Sat outside hoping this mornings b12 injection will pick me up enough to get out...

Nackapan

•3 years ago

3 Replies

Stopping oral supplements before blood tests

I can see that you should stop having B12 injections before you have a B12 test because otherwise you are just testing whether the B12 injection is entering...

I can see that you should stop having B12 injections before you have a B12 test ...

mickeymouse42

•3 years ago

14 Replies

NHS link about Cyanocobalamin

Just wondered what you thought about this NHS link about cyanocobalamin? https://www.nhs.uk/medicines/cyanocobalamin/

Just wondered what you thought about this NHS link about cyanocobalamin? https:/...

Sleepybunny

•3 years ago

9 Replies

Took Loading shots weekly instead of twice a week because of high serum levels. Feel extreme fatigue and extreme bloating

Help ! Extreme fatigue. History of shots: Last 4th shot in September last year. Oct: 1 maintenance shot, Nov:0, Dec:0, Jan:0, Feb : 2 shots, March: 0. Then in...

Help ! Extreme fatigue. History of shots: Last 4th shot in September last year. ...

Harrystar

•3 years ago

6 Replies

Long term affects of b12 injections

I am seeing a new doc who has Me concerned. Serum B12 is 1500+ and MMA is low range. I need injections one per week to feel well but I try to push myself to...

I am seeing a new doc who has Me concerned. Serum B12 is 1500+ and MMA is low r...

Ctadds1

•3 years ago

29 Replies

Has anyone here got their GP to give them a 'therapeutic trial' of B12 injections WITHOUT positive B12 deficiency blood test results?

Hello all. I'm currently suffering from a range of symptoms that overlap with B12 deficiency including some very strong numbness across my whole body but...

Hello all. I'm currently suffering from a range of symptoms that overlap with B...

Fleecie

•3 years ago

25 Replies

Is it normal to feel super tired after injection?

Hi guys, I was recently diagnosed with PA following 2 positive intrinsic factor antibody tests. I had my first injection of B12 a couple of days ago and have...

Hi guys, I was recently diagnosed with PA following 2 positive intrinsic factor...

JSD100

•3 years ago

8 Replies

B12 ampoules Hydroxocobalin to Uk

can anyone help please? i ordered my ampoules 2 weeks ago from Bodfel,and un beknown,my payment never went through,i could have sworn it had,it even told me...

can anyone help please? i ordered my ampoules 2 weeks ago from Bodfel,and un bek...

Debzeewestmids

•3 years ago

9 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2021

Covid Tongue

Edema Legs

Diverticulities

Thank you

MB12 expiration date and storage after opening and mixing with saline solution

Giving up hope

A weird question hope you guys will share your views

are b12 serum ranges different in every NHS area.

Normal active b12 and serum b12 - does that mean I don't have pernicious aneamia?

Can I take a 2nd B12 test after I skewed the first with supplements?

B12 level 163

Help Interpreting Blood Test Results

More symptoms

Vitamin B12 deficiency - Recently diagnosed

Off topic: tb test ambiguous

B12 & Folate

Worry about MS?

Oral v IM injections

Help ...this B12 rollercoaster is doing my (fuzzy) head in

Anybody taken themselves to A&E?

B12 injections - ALWAYS wipes me out and chronic fuzziness

B12 deficiency

To brighten the day

Stopping oral supplements before blood tests

NHS link about Cyanocobalamin

Took Loading shots weekly instead of twice a week because of high serum levels. Feel extreme fatigue and extreme bloating

Long term affects of b12 injections

Has anyone here got their GP to give them a 'therapeutic trial' of B12 injections *WITHOUT* positive B12 deficiency blood test results?

Is it normal to feel super tired after injection?

B12 ampoules Hydroxocobalin to Uk

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive

Has anyone here got their GP to give them a 'therapeutic trial' of B12 injections WITHOUT positive B12 deficiency blood test results?