Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,915 members • 23,044 posts

All posts for December 2016

Happy new year!

Happy new year to all my friends! May the new year bring you all health and happyness! Love u all x

Happy new year to all my friends! May the new year bring you all health and happ...

•7 years ago

Help needed please

Just joined, I had to leave 2 jobs due to underperformance caused by tiredness, brain fog, poor memory/attention/concentration and also muscle weakness and...

Just joined, I had to leave 2 jobs due to underperformance caused by tiredness, ...

•7 years ago

Alternative to 5mg Folic Acid and high Ferratin dose

Hi i was diagnosed with PA in nov 7 yrs after crohns bowel surgery. My B12 level was 160 and i was suffering from fatigue, palpitations, anxiety, muscle...

Hi i was diagnosed with PA in nov 7 yrs after crohns bowel surgery. My B12 level...

•7 years ago

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B12 deficiency

I have just been diagnosed with b12 deficiency and also iron deficiency. I was initially told I was not anaemic although I had large blood cells but gp said I...

I have just been diagnosed with b12 deficiency and also iron deficiency. I was i...

•7 years ago

Fear of the new year

Hey guys! I haven't written a post in a little while but I have been on here talking to you guys. I hope you all are very well and excited for 2017. So...

Hey guys! I haven't written a post in a little while but I have been on here tal...

•7 years ago

Martyn Hooper MBE

Just seen that Martyn Hooper has been awarded an MBE...

Just seen that Martyn Hooper has been awarded an MBE...

•7 years ago

Tesco, formula milk and the UK Food Safety Act - Update

This relates to a post a couple of months ago https://healthunlocked.com/pasoc/posts/134462439/tesco-formula-milk-and-the-uk-food-safety-act This is the reply...

This relates to a post a couple of months ago https://healthunlocked.com/pasoc/p...

Administrator•7 years ago

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Get up and just do it !!

I've just realised I always leave injecting until I can hardly function and am staggering all over the place. I always get into a kerfuffle as I am so...

I've just realised I always leave injecting until I can hardly function and am s...

•7 years ago

U.S. patients and B12 insurance coverage

Hi everyone and Happy New Year! I am directing this question to those that live in the US and have a confirmed PA diagnosis. I have a definitive diagnosis of...

Hi everyone and Happy New Year! I am directing this question to those that live...

•7 years ago

B12 Until no further improvement

My 20 year old daughter has been having alternate day b12 injections since the beginning of November for neuro symptoms. Initially her symptoms: pain,...

My 20 year old daughter has been having alternate day b12 injections since the b...

•7 years ago

Ranitidine tabs 150mg twice daily advice pls...

Hi all, was diagnosed in Nov with a hiatus hernia and prescribed Ranitidine and the lady that did the Camera etc said this was an older tab looked it up and...

Hi all, was diagnosed in Nov with a hiatus hernia and prescribed Ranitidine and ...

•7 years ago

Working with PA

Has anyone had any experiences with PA disrupting their working life/forcing them to quit/change career etc? I have an appointment with occupational health the...

Has anyone had any experiences with PA disrupting their working life/forcing the...

•7 years ago

New here

Hi I am new to the PA forum and HU. I am 26 years old and I have other health problems (hypothyroid diagnosed in 2011) but so far as I am aware the results of...

Hi I am new to the PA forum and HU. I am 26 years old and I have other health p...

•7 years ago

Nerve issues literally jumping around from place to place

Hi all! i've been injecting daily now for 2 months and my nerve issues have gone from severe burning to slight tingling ants crawling, and socks/gloves - so...

Hi all! i've been injecting daily now for 2 months and my nerve issues have gon...

•7 years ago

Help with test results!

Hi everyone, this is my first post as I have just got my test result! I have an under active thyroid and am on 100 meg daily. I have been feeling quite ill...

Hi everyone, this is my first post as I have just got my test result! I have an ...

•7 years ago

Copy of blood tests

Finally got a copy of my test results. Refer to old posts for updates. But do my levels for all my other tests look ok? Does my ferritin need to be higher?...

Finally got a copy of my test results. Refer to old posts for updates. But do my...

•7 years ago

Continuous low ferritin levels

Was wondering if anyone had any idea why I cannot get my ferritin levels to stop falling? I have pernicious anaemia and Hashimotos thyroid. My ferritin dropped...

Was wondering if anyone had any idea why I cannot get my ferritin levels to stop...

•7 years ago

advice again please

my last post I told you's about my gp stopping my maintenance dose of b12 &vitd I am waiting for my b12 advanced test from b/h and their nurse will come to my...

my last post I told you's about my gp stopping my maintenance dose of b12 &vitd ...

•7 years ago

Serum v active b12 confusion

Hi, I'm finding it difficult to see what low serum but "Normal" active b12 really means. I'm due back at the doctors to state my case for treatment but read on...

Hi, I'm finding it difficult to see what low serum but "Normal" active b12 reall...

•7 years ago

Wondering about needle size and method for injecting B12 and also new to posting.

Have been diagnosed with PA four years ago and iron deficiency Anemia. Started with daily injections of B12 and followed usual course of tapering off to once a...

Have been diagnosed with PA four years ago and iron deficiency Anemia. Started w...

•7 years ago

Waking up feeling down

Does anyone else wake up feeling really depressed? I'm in loads of pain and mornings aren't good for me at the best of times but for the last three months I've...

Does anyone else wake up feeling really depressed? I'm in loads of pain and morn...

•7 years ago

Advanced dementia & B12 deficiency

Greetings from Canada! Just over 6 weeks ago I realised I was significantly B12 deficient despite having serum levels in the 500-800 range. I had classic...

Greetings from Canada! Just over 6 weeks ago I realised I was significantly B12 ...

•7 years ago

Please sir, can I have some more?

I'm going to the docs tomorrow for my last loading dose, 6/6. I'm still getting palpitations, which are worrying, would this be a genuine reason to request...

I'm going to the docs tomorrow for my last loading dose, 6/6. I'm still getting ...

•7 years ago

Took the plunge

I hope everyone had a good Christmas. Yesterday my cousins's wife (a Nurse) showed me how to inject myself. Should have done this long ago but I am so excited...

I hope everyone had a good Christmas. Yesterday my cousins's wife (a Nurse) show...

•7 years ago

High b12, low iron (both), enlarged RBC

Hi - my B12 serum levels are high because I was supplementing both orally and had injections (Hydroxy) whilst on holiday in Australia. I think that I have...

Hi - my B12 serum levels are high because I was supplementing both orally and ha...

•7 years ago

Thank You & A Happy New Year

I enjoyed good health for 56 years of my life apart from occasional breathlessness/wheezing, due to asthma, which would have me back on inhalers (which I...

I enjoyed good health for 56 years of my life apart from occasional breathlessne...

•7 years ago

Thank you all

Just wanted to thank everyone for the help and advice when I lost my neve after hitting a nerve in my leg when self injecting. Managed to give myself half a ml...

Just wanted to thank everyone for the help and advice when I lost my neve after ...

•7 years ago

inconsistent response to injections

I'm in the U.S., was doing a cyanocobalamin injection once a month, but felt I needed it more, so my husband was trained to inject. I find that I have "bouts"...

I'm in the U.S., was doing a cyanocobalamin injection once a month, but felt I n...

•7 years ago

Breathing trouble

Hi Does anyone else get trouble breathing - especially around winter? I have asthma anyway, and I've pulled a chest muscle so obviously deep breaths are...

Hi Does anyone else get trouble breathing - especially around winter? I have ast...

•7 years ago

which tests

which tests shall be doing, symptoms anxiety depression

which tests shall be doing, symptoms anxiety depression

•7 years ago

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