Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,950 members • 23,089 posts

All posts for August 2021

Serum B12 result

Hello , I finally have had the GP test after the low active B12 test at 62 from medichecks. It says B12 - 381 range 120-625 Folate 11.8 Ferritin 93 range...

Hello , I finally have had the GP test after the low active B12 test at 62 from...

Blackpanther46

•3 years ago

13 Replies

Homocysteine after supplementation

Hello! Does anyone know how fast homocysteine levels are affected by supplementation? I took 1mg sublingual methylcobalamin a day for two weeks, then ceased...

Hello! Does anyone know how fast homocysteine levels are affected by supplementa...

SebastianB

•3 years ago

4 Replies

Extreme insomnia after taking B12 shots

Has anyone experienced insomnia after taking B12 injections? I never had sleep issues my entire life. My doctor gave me 5 B12 shots for 5 weeks. My sleep...

Has anyone experienced insomnia after taking B12 injections? I never had sleep ...

Nish12

•3 years ago

43 Replies

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B12 supplier

Struggling to find supplier of b12. Versandapo and mycare not letting me order.

Struggling to find supplier of b12. Versandapo and mycare not letting me order. ...

Lurcher-lady

•3 years ago

11 Replies

Arm,chest, and upper back muscle tightness. Spastic muscles

Does anyone else experience random muscle tightness that is hard to get rid of. My arms and upper back get very tense often times mid day or at night. It’s...

Does anyone else experience random muscle tightness that is hard to get rid of. ...

Ctadds1

•3 years ago

25 Replies

Please help me get to the bottom of my brain fog!!

Hello newbie here 🖐 I have had brain fog / dizziness since last November, I had blood tests back then which came back with the following : Ferritin - 4...

Hello newbie here 🖐 I have had brain fog / dizziness since last November, I had...

Whatiswrongwithme

•3 years ago

7 Replies

Low B12 in babies?

My late mum, myself and my daughter all have pernicious anaemia. My 3 month old granddaughter is struggling to gain weight, has a very high pitched cry and...

My late mum, myself and my daughter all have pernicious anaemia. My 3 month old ...

Snowflake16

•3 years ago

10 Replies

Are these common symptoms?

So I have been sick since May. I was just diagnosed with PA. My symptoms are pins and needles in arms legs, chest, face. Rapid heartrate out of blue, shaky,...

So I have been sick since May. I was just diagnosed with PA. My symptoms are p...

Greenkids

•3 years ago

8 Replies

General question about frequency of injections

I often read statements like i get injections "3 monthly". In the US, that would generally be interpreted as 3 injections per month but I get the feeling that...

I often read statements like i get injections "3 monthly". In the US, that woul...

EiCa

•3 years ago

10 Replies

Hashimotos thyroiditis and B12 injections

Does Hashimotos thyroiditis go away with B12 injections? I have had Hashimotos for 28 years. I'm so confused. I have been on B12 once a week for 8 weeks.

Does Hashimotos thyroiditis go away with B12 injections? I have had Hashimotos f...

Ninagreen

•3 years ago

3 Replies

One more question...on expiration date

I received ten syringes of hydroxycobolamin (not ampoules like you get in Europe but 1000mcg/1ml syringes from a local compounding pharmacy; no preservatives)...

I received ten syringes of hydroxycobolamin (not ampoules like you get in Europe...

EiCa

•3 years ago

2 Replies

Private injections

B12 injections seemed very fashionable a year or so ago. Many aesthetic clinics offer them. What to look for? Is an injection off this type of clinic useful to...

B12 injections seemed very fashionable a year or so ago. Many aesthetic clinics ...

morgan45

•3 years ago

3 Replies

Is MMA level going down quickly a good sign?

My doctor did not order a B12 but he did order an MMA. (Methylmalonic acid). My MMA has been as high as 10. (Range 0-5) It was 0 in this test Am I correct in...

My doctor did not order a B12 but he did order an MMA. (Methylmalonic acid). My ...

EiCa

•3 years ago

3 Replies

Help

I've been getting b12 injections over 15 years, 3 years ago my GP cut the injections from monthly to 3 monthly due to new guidelines apparently, however...

I've been getting b12 injections over 15 years, 3 years ago my GP cut the injec...

Hayzedawn

•3 years ago

6 Replies

Wax

Does anybody else suffer with ear wax I can clean from my ears twice a day and will still have.It’s only been around a year since it starter any advice would...

Does anybody else suffer with ear wax I can clean from my ears twice a day and w...

Chance15

•3 years ago

15 Replies

Diagnosis. - which blood test?

I appear to have all the symptoms, minus the red tongue, but have only had a CBC. Should I ask for a more sensitive blood tes, and if so, which one? I’m aware...

I appear to have all the symptoms, minus the red tongue, but have only had a CBC...

AFGran

•3 years ago

2 Replies

New supplier

I have just tried this supplier: Vitamin B12 fusion Both cheaper and efficient delivery in just over a week

I have just tried this supplier: Vitamin B12 fusion Both cheaper and efficient d...

Yentil

•3 years ago

6 Replies

Risk of cardiomyopathy from overexposure to cobalt

Interesting report suggests overexposure to cobalt can risk cardiomyopathy. Worth noting...

Interesting report suggests overexposure to cobalt can risk cardiomyopathy. Wor...

PointOfReference

•3 years ago

8 Replies

GPs and hospitals to limit blood tests in England due to bottle shortage

I know people have posted about this recently, but it is now obviously worse. Although this is specifically about NHS England, I doubt that the other three...

I know people have posted about this recently, but it is now obviously worse. A...

helvella

•3 years ago

14 Replies

Nausea

Hi, does anyone else experience nausea even though they are on 3 monthly injections? Had endoscopy and abdo CT scan, all clear except for mild gastritis . I...

Hi, does anyone else experience nausea even though they are on 3 monthly injecti...

Mrsmr

•3 years ago

15 Replies

What B12 injection dose do you use?

I inject 1ml/mg B12 alternate days. Supply, as you know, has become harder recently so I'm looking around. I came across one that supplies ampoules of 2mg/ml....

I inject 1ml/mg B12 alternate days. Supply, as you know, has become harder recen...

GalDriver

•3 years ago

17 Replies

A query about blood testing.

I’m a member of thyroid uk site and have since gravitated to this site due their good advice .This is my first time posting here. I’m due my annual blood...

I’m a member of thyroid uk site and have since gravitated to this site due thei...

Golli

•3 years ago

2 Replies

New supplier?

Are Arznei, good to order from? They appear to deliver to UK. I usually use VersandoApo, but large pkts unavailable therefore more expensive. I do every other...

Are Arznei, good to order from? They appear to deliver to UK. I usually use Vers...

jaybirdxNHM

•3 years ago

2 Replies

Treatment Confusion Need Help

Hi everyone, I am 20F, been receiving b12 injections for the past year. I get them weekly at my neurology clinic. I moved to university and I live there for...

Hi everyone, I am 20F, been receiving b12 injections for the past year. I get th...

Purplegirl2

•3 years ago

10 Replies

I have just been diagnosed with PA, b12 was 187, my GP won’t do loading doses, she says this is just within normal range, is this right?

Pernicious anemia b12 levels loading doses

Thorpe1984

•3 years ago

38 Replies

High systolic blood pressure but normal diastolic blood pressure meaning in B12 deficiency, do you have the same issue?

My systolic blood pressure 14.5 mm hg and diastolic blood pressure is between 9.2 to 8.1 Is that normal and I have mostly muscle weakness neuropathy. Higher...

My systolic blood pressure 14.5 mm hg and diastolic blood pressure is between 9....

Hamayeshguy

•3 years ago

1 Reply

Ear/headache

Hi all I woke up the yesterday morning and both my ears were hurting, now my head feels quite weird and I got headache is this related , I have had problem...

Hi all I woke up the yesterday morning and both my ears were hurting, now my hea...

Prettywoman73

•3 years ago

1 Reply

very rare -need info!

information about non -alcohol related Wernicke's Encephalopathy

Kidsmomof9

•3 years ago

2 Replies

Nof able to absorb every brand of B12, specially generic brand

I’m wondering if there is anyone here that has had the following experience. I was diagnosed with PA 1 1/2 ago and had such severe neurological symptoms that...

I’m wondering if there is anyone here that has had the following experience. I w...

Bunbun123

•3 years ago

7 Replies

PA, neuropathy and celiac

I'm happy to find this website about PA. I just started B12 shots and are praying they work and I feel better soon. I also have celiac disease, neuropathy in...

I'm happy to find this website about PA. I just started B12 shots and are prayin...

Aveytxenglab

•3 years ago

10 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2021

Serum B12 result

Homocysteine after supplementation

Extreme insomnia after taking B12 shots

B12 supplier

Arm,chest, and upper back muscle tightness. Spastic muscles

Please help me get to the bottom of my brain fog!!

Low B12 in babies?

Are these common symptoms?

General question about frequency of injections

Hashimotos thyroiditis and B12 injections

One more question...on expiration date

Private injections

Is MMA level going down quickly a good sign?

Help

Wax

Diagnosis. - which blood test?

New supplier

Risk of cardiomyopathy from overexposure to cobalt

GPs and hospitals to limit blood tests in England due to bottle shortage

Nausea

What B12 injection dose do you use?

A query about blood testing.

New supplier?

Treatment Confusion Need Help

I have just been diagnosed with PA, b12 was 187, my GP won’t do loading doses, she says this is just within normal range, is this right?

High systolic blood pressure but normal diastolic blood pressure meaning in B12 deficiency, do you have the same issue?

Ear/headache

very rare -need info!

Nof able to absorb every brand of B12, specially generic brand

PA, neuropathy and celiac

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive