Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,675 members•24,074 posts

All posts for February 2019

Peniel

I have been diagnosed with pa .GP have loading dose of 1 b12 injection per week for three weeks and now on 3 monthly injections. I find all the symptoms are...

I have been diagnosed with pa .GP have loading dose of 1 b12 injection per week...

Peniel

•6 years ago

6 Replies

I am a senior male. Will decongestant eye drops enlarge my prostate?

BPH and decongestant rye drops

Jamewarr

•6 years ago

2 Replies

As a senior male age 71 with BPH, I have lost much muscle mass and have started taking 5mg of creatine daily. Will it make my BPH worse?

BPH and creatine

Jamewarr

•6 years ago

2 Replies

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The Challenges of Vitamin B12 Deficiency Diagnosis Event

Latest PAS news item https://pernicious-anaemia-society.org/events/the-challenges-of-vitamin-b12-deficiency-diagnosis-event/ Would be great if plenty of GPs...

Latest PAS news item https://pernicious-anaemia-society.org/events/the-challeng...

Sleepybunny

•6 years ago

7 Replies

MTHFR

Hi I have pa and was wondering if it is worth getting MTHFR testing? And where in the UK would be best for this?

Hi I have pa and was wondering if it is worth getting MTHFR testing? And where i...

Scothyroidy

•6 years ago

15 Replies

B12

Hi I have had loading doses a month ago. My numbness in my legs is getting worse plus I have a lot of pain with them. Feel tired all the time. Not been told...

Hi I have had loading doses a month ago. My numbness in my legs is getting worse...

Lunny

•6 years ago

3 Replies

B12 levels and pregnancy

Hi guys, I have been treated for pernicious anaemia for 10yrs now 3-monthly injections. I am currently trying to get pregnant been off the pill 2yrs but only...

Hi guys, I have been treated for pernicious anaemia for 10yrs now 3-monthly inje...

yogalove

•6 years ago

6 Replies

Methylcobalamin ampoules can again be obtained direct from Arnika .

Just phoned Arnika in Munich . Anyone wanting to try Methylcobalamin ampoules in UK can get them directly from Arnika again ( they had given the agency...

Just phoned Arnika in Munich . Anyone wanting to try Methylcobalamin ampoule...

wedgewood

•6 years ago

9 Replies

Now diagnosed with PA

Since my first post on here I've been diagnosed with Pernicious anaemia as the cause of my very low b12 level (58) I received my 6 loading doses and was told...

Since my first post on here I've been diagnosed with Pernicious anaemia as the c...

Showgem

•6 years ago

7 Replies

Acute itchiness in scalp

Hi . Has anyone on this site experienced acute itchy feeling in scalp.For the last two days I have had this problem. Around my hairline and neck area I had a...

Hi . Has anyone on this site experienced acute itchy feeling in scalp.For the la...

PamBow

•6 years ago

17 Replies

Tightening of skull

Sounds a weird question but apart from the sizzling in my head my skull bones are so so sensitive . I had a sun hat on and dark glasses as so light sensitive...

Sounds a weird question but apart from the sizzling in my head my skull bones ar...

Nackapan

•6 years ago

11 Replies

Gp to stop B12 again!

Hello, I have a B12 defiencicy diagnosed March 2017 and have received 12 weekly injections from the surgery. I have just received a random phone call from a...

Hello, I have a B12 defiencicy diagnosed March 2017 and have received 12 weekly...

greengrass100

•6 years ago

17 Replies

UK - vitamin b12 ok says GP

so, my GP says B12 is fine, but as I understand it this still may not be the case? I would like to try taking more B12 from other sources but am confused as...

so, my GP says B12 is fine, but as I understand it this still may not be the cas...

Luciejh

•6 years ago

2 Replies

P. ANEMIA QUESTION

I have been diagnosed with pernicious anemia, my legs and joints are stiff and painful, I have had my 6 loading dose injections and now had my first 3 monthly...

I have been diagnosed with pernicious anemia, my legs and joints are stiff and p...

jenr50

•6 years ago

16 Replies

Private blood test

Hi there, is there a reliable private blood test I can get to check for PA and AMG? Would it be intrinsic factor test? I saw Medichecks do one. Also would it...

Hi there, is there a reliable private blood test I can get to check for PA and A...

Sunnydevon

•6 years ago

5 Replies

Some advice please.

Hello all. My daughter has been struggling for the last 18 months now with exhaustion & very low moods, extreme anxiety etc. She can sleep for hours, get up...

Hello all. My daughter has been struggling for the last 18 months now with exha...

Ritchie1268

•6 years ago

2 Replies

Thank you

So much for all your help with medichecks advice... I had the tests done and some unusual things flagged up. My B12 was 155 when the docs advised me to start...

So much for all your help with medichecks advice... I had the tests done and som...

Nikki_55

•6 years ago

10 Replies

GP saying no more jabs as result high

Just had full bloods as I'm feeling awful. GP suspected low folate or ferritin, but only B12 has come back so far - high, so just had a call from the surgery...

Just had full bloods as I'm feeling awful. GP suspected low folate or ferritin,...

JanCymru

•6 years ago

14 Replies

Type 2 Diabetes and B12 injections

Hi After some strange incidents of perceived low blood sugar over the weekend I wonder if anyone on here has had any issues with their type 2 diabetes while...

Hi After some strange incidents of perceived low blood sugar over the weekend I ...

No_fixed_abode

•6 years ago

7 Replies

Advice needed still heavy legs

Advice needed please 5 weeks on since last loading injection and still experiencing slight tingling in bottom of feet, but more concerning is the heaviness in...

Advice needed please 5 weeks on since last loading injection and still experienc...

sbadd

•6 years ago

6 Replies

MMA Testing and hospital appointment

Hi, I had my last injection (hydro) in September 2018 after my GP stopped injections saying it’s not pa but most likely CFS. I have hospital appointment on...

Hi, I had my last injection (hydro) in September 2018 after my GP stopped inject...

joleen19832

•6 years ago

5 Replies

Methylcobalamin Supplier UK

Please can anyone give me some advice I’ve been using Arnaka to buy my methylcobalamin but I’ve run out and there not getting back to me, does anyone know...

Please can anyone give me some advice I’ve been using Arnaka to buy my methylcob...

Antstarr

•6 years ago

24 Replies

B12 supplies running low!

Hi I usually order b12 depot rotexmedica hydrox from goldpharma 10 x 1 ml, but they are out of stock might be for a while, the equivalent is hevent but it's...

Hi I usually order b12 depot rotexmedica hydrox from goldpharma 10 x 1 ml, but t...

ollie7horse

•6 years ago

4 Replies

POTASSIUM ADVICE PLEASE

I'm eating bananas and spinach but if I forget on any given day and need to take a quick vitamin instead, what is the best potassium supplement and amount to...

I'm eating bananas and spinach but if I forget on any given day and need to take...

e66--

•6 years ago

20 Replies

Determination of vitamin B12 in four edible insect species by immunoaffinity and ultra-high performance liquid chromatography

For any avid fans of I'm a celebrity… For the rest of us, probably only of passing interest. Food Chem. 2019 May 30;281:124-129. doi:...

For any avid fans of I'm a celebrity… For the rest of us, probably only of pas...

helvella

•6 years ago

10 Replies

Homocysteine and MMA connected?

Hi, apologies if this is a silly question. I checked my homocysteine recently and it was ok at 7.5 but I didn't check my MMA because the test was expensive. If...

Hi, apologies if this is a silly question. I checked my homocysteine recently an...

GastritisB12

•6 years ago

8 Replies

Thank you PAS

Hi all. Even tho I'm getting the jabs I need to improve my health, my heart goes out to those battling their docs for the proper dosage. I'm beyond frustrated...

Hi all. Even tho I'm getting the jabs I need to improve my health, my heart goes...

Wowo23

•6 years ago

6 Replies

B12 injections

Good morning. I’m trying to source Vitamin B12 injections. I seem to be drawing a blank with lots of no stock notifications Any help would be great

Good morning. I’m trying to source Vitamin B12 injections. I seem to be draw...

Windowclean

•6 years ago

10 Replies

Hashimoto thyroiditis - TSH levels wont stabilise!!

In 2013 I was diagnosed with hypothyroidism and in 2015 they found out that it was Hashimoto thyroiditis. At 21 years old I'm constantly battling with my TSH...

In 2013 I was diagnosed with hypothyroidism and in 2015 they found out that it w...

Bex1996

•6 years ago

2 Replies

Most symptoms have subsided. Vertigo persists...

I decided to supplement b12 and folic acid after being told I had low folate (2.8) and low end of "normal" b12 (238) . I'm pleased to say almost all initial...

I decided to supplement b12 and folic acid after being told I had low folate (2...

Awil

•6 years ago

5 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2019

Peniel

I am a senior male. Will decongestant eye drops enlarge my prostate?

As a senior male age 71 with BPH, I have lost much muscle mass and have started taking 5mg of creatine daily. Will it make my BPH worse?

The Challenges of Vitamin B12 Deficiency Diagnosis Event

MTHFR

B12

B12 levels and pregnancy

Methylcobalamin ampoules can again be obtained direct from Arnika .

Now diagnosed with PA

Acute itchiness in scalp

Tightening of skull

Gp to stop B12 again!

UK - vitamin b12 ok says GP

P. ANEMIA QUESTION

Private blood test

Some advice please.

Thank you

GP saying no more jabs as result high

Type 2 Diabetes and B12 injections

Advice needed still heavy legs

MMA Testing and hospital appointment

Methylcobalamin Supplier UK

B12 supplies running low!

POTASSIUM ADVICE PLEASE

Determination of vitamin B12 in four edible insect species by immunoaffinity and ultra-high performance liquid chromatography

Homocysteine and MMA connected?

Thank you PAS

B12 injections

Hashimoto thyroiditis - TSH levels wont stabilise!!

Most symptoms have subsided. Vertigo persists...

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